10th Peptide Injection Already

Discussion in 'Fibromyalgia Main Forum' started by Mikie, Aug 13, 2012.

  1. Mikie

    Mikie Moderator

    Not just any doc can start doing the Oxford treatments. They have to continually update their education after being accepted. The two docs here are mainstream; I don't know about any of the other docs in the program. There are no tests required unless the doc thinks they may help diagnose the problem. I did have a CRP when my ANA came back neg. despite my having all the symptoms of Sjogren's. The CRP showed a high level of inflammation, consistent with an inflammatory immune response.

    I take Klonopin and don't have to stop it prior to the shots. I do have to stop my BP meds and I stop everything else just to make sure. Anything which changes cell walls or interfers with receptors in the body will stop the injection's effectiveness. Anything which affects the immune system cannot be taken near the time of the injections. The doc can tell from one's list of meds and supps what cannot be taken.

    Some of the docs doing these will see a patient and take his or her history and give a shot. Then, the doc will send the serum to one's local doc for injection. So, you might call the docs in the LA area to see whether they know a doc closer to you or whether they would consider seeing you once and sending the serum to your doc.

    Used to be that the docs in the program could send plasma to a lab in Europe for an assay that would help determine which serum would help. A serum tailored to an individual could be made if none existed which would work. That lab is now closed. If one is sick due to an immune or auto-immune condition, the HS wide-spectrum serum should be helpful.

    Hope this helps.

    Love, Mikie
  2. msxxxx

    msxxxx New Member

    Thanks again for both of your replies. I also had heard one could send in a blood sample to have a serum made, but did not know that lab is now closed. I have not heard of a SAM-HS before, but have heard of SAM-U which is a universal one, which sounds like it would be like your HS . Do you know what HS stands for? The ones I am fiamilar with is the SAM-AL for allergies, and the SAM-DR which is for any type of drug induced autoimmune, and I believe the one for Rheumatoid arthritis is SAM-RH. I know they make one for MS but don't know what the label is, most likely SAM-MS.
    I would really like to know what the HS one you are using stands for.

    Thanks for your info
  3. Mikie

    Mikie Moderator

    I really don't know. Wish I could help.

    Love, Mikie
  4. msxxxx

    msxxxx New Member

    jaminhealth - I made contact with Dr. Greens office today, and they are using a different product. Theirs comes for Switzerland and was developed in Thailand. The SAM injection were developed at Oxford University. Interestingly they both cost $300 an injection.
    The company they get them from has a website: http://www.rms-peptides.com/index.php?request=regenapep

    I wish the SAM company had a website.

    Just thought I'd pass this info on
  5. IanH

    IanH Active Member

    Do you know which peptides are being used?
  6. msxxxx

    msxxxx New Member

    I don't understand the question about which are being used. They both are being used, just each by different doctors. Hope that helps
  7. IanH

    IanH Active Member

    There are over 9700 different peptides in the body ranging from neuropeptides, immunological peptides, digestive peptides and many different specific organ peptides, many of which are hormones like insulin. Each endogenous peptide is made by a gene which, if not functioning properly may make a faulty protein. Peptides are assembled by RNA from the amino acids. Peptides are proteins but are called peptides because they are small molecules, usually up to about 50 amino acids long. Some peptides used in medicine are exogenous peptides being derived from sources such as milk or other animal sources.

    Also SAM usually stands for self assembled monolayer a term derived from amyloid peptides in alzheimers research.

    A commonly used peptide in cancer is the HER2 peptide usually along with a VEGF peptide inhibitor.

    What I would like to know is which of these 9700 peptides are being injected and then I can follow up on the rationale for using these peptides.

    [This Message was Edited on 08/23/2012]
  8. Mikie

    Mikie Moderator

    The peptide sequences being used is proprietary info and closely held. In fact, before I could start the treatment, I had to sign a paper that I would never try to find out what is in the serum. I believe the concern is that Big Pharma will copy the peptide sequences and make a fortune out of all the research done by Oxford. They are careful about which labs they use to prepare the injections.

    Actually, Big Pharma is researching and producing their own peptide injections. One for Lyme is now in human trials. I believe that this treatment will be important in treating disease and Big Pharma sees dollar signs in the future. I can only imagine what these injections will cost when produced for profit. That is one reason I wanted to get mine now.

    That the FDA, which is run by Big Pharma, has approved this treatment tells me that they are getting ready to bring it to market as soon as possible.

    Love, Mikie
  9. I don't know what happened... I wrote a reply to your post a couple of days ago via my phone, but when I checked back, it wasn't there... So here I go again...

    I'm so happy to hear you're getting such good results from the peptide shots! I started taking the peptide shots in the fall of 2010... only did mine for 6 months, per my doctor's instructions. I do think they helped some. But then 2011 was such a super stressful year (3 deaths in our family in the span of 6 months, my daughter's wedding, and a long trip for help with my CFS, among other things) that I think the results were skewed by the immense stress.

    I just started the peptide shots again (mine come from a lab in France, though). It is the SAM-HS peptide shot, too. But the doctor I originally went to for help in 2010 is 3 hours away, so his office sends me the shot through the mail each month. I had forgotten that I was suppose to get off of my digestive enzymes 3 days before and an hour after the shot till I read some of your posts! Now I feel like I wasted my money on the last 2 shots I took (starting in June)! But thanks for the reminder!

    Do you have to get off of any supplements too? I just want to be sure nothing is getting in the way of these shots working. The only "meds" I'm on, besides supps, is my thyroid replacement and bio-identical hormones to help with menopause. Also, is there a web address for your doctor? I may want to call and see if he does phone consults if I'm able to fax him my info and test results. He sounds like a really good doctor, and the specialist in CFS/ME that I went to last year (that is 12 hours away) doesn't do the peptide injections.

    Thanks for any info you can share, Mikie! And I hope the fatigue that is hanging on gets much better too! Thanks again and God bless!

    Hugs and Blessings,
  10. msxxxx

    msxxxx New Member

    Can you please share what doctor you are currently getting your peptide injections from that mail them to you? If they come in small brown glass vials and the label says "SAM-HS" they are the same type of injection that Mikie has been referring to. I also use these in the past, I used the SAM-DR. It helped some, but like you, other issues caused me not to get the full benefit. I now want to try the SAM-U or maybe the SAM-HS, if only I can find someone who can explain the difference to me. They were developed in Oxford, but are produced and sold out of a different country, so perhaps France is where there lab is.
    If you would please share the name of your doctor, and where he is located, and if he has a website or phone you can list that you are currently getting your peptide injections from I would greatly appreciate it.

    As far as how to use them, one needs to fast (water only) for 5 hours before and 2 hours after the injection. There should be no adrenal shots or supplements 1 day prior and 1 day after the injection. No fish oil one day prior and 3 days after and no enzymes 1 day prior and one day after the injection. That is the information I was given, and there are no other supplements stated that should be avoided. The rational is that these supplements suppress inflammation, there for prevent the peptides from finding all the white blood cells that are causing the inflammation, so avoiding each for the designated time allows the peptides to find and bind with all white blood cells that are causing the inflammation. I hope this offers some help

  11. Mikie

    Mikie Moderator

    So good to hear from you but sorry for all you've been through. I hope things are getting better for you.

    I stop taking everything except my clonazepan (Klonopin). If I get a headache, I can take acetaminiphen as long as it's not the morning of the shot. I have to fast until one hr. after the shot.

    I hope the shots will help you. Keep us updated.

    Sorry this is so short but am preparing for the hurricane

    Love, Mikie
  12. Thanks so much, Mikie and ms, for the helpful info!

    Ms, the doc who sends the injections is Dr. James Carter and his clinic is in Mandeville, Louisiana... about 45 minutes north of New Orleans, just west of Slidell, La. But I did have to see him first and get some testing done, initially. I don't know what part of the country you're in, but either way, I hope you can find someone to help you! God bless you!

    Mikie, I'm praying for you with this hurricane bearing down on us! Let me know how you make out! I'm probably going to have to evacuate and I'm not in very good shape to do so. (Uuugghh!) But take care and be safe! Praying this system falls apart or at least doesn't strengthen as is predicted! God be wit you!

    Hugs and Blessings,
  13. msxxxx

    msxxxx New Member

    Thank you Shel for sharing the information about the doctor that you gets the injections through. Can you tell me what type of testing he did to determine which type of SAM to give you? I would be interested to hear from everyone that has used any of the SAM injections what type of testing was done to determine which type to give you.

    Mikie, I learned from one source that for the SAM-HS , the HS stands for Homeostasis. At least that was what I was told, but it sure is hard to get any information on these

    I hope both of you do well with the hurricane and suffer no damage. Prayers are sent your way to both of you. I believe strongly in the power of prayer!


  14. Thank you so much for your prayers! I'm sure Mikie has lost power by now with the storm hitting south Florida right now. I'm in northwest Florida, so I'm trying to decide where to evacuate to, if it comes to that.... also trying to get packed and prepared... not easy with this disease! But looking to the Lord for guidance.

    I can't remember off the top of my head exactly what kind of testing my doc did. I would need to try to look for the paperwork and am not able to right now with this storm approaching. But as soon as I can find out, I'll let you know! I completely understand your eagerness to find something to hopefully help you feel better! Wish I could be more help right now! I'll try to find out after the storm passes. Hopefully we won't have a lot of damage or problems to deal with here once it passes.

    But thanks again for your prayers! I also believe in the power of prayer! God is my refuge and strength.... I may not know what to do, but my eyes are on Him! Praying for Mikie as well and all of us in the path of this storm. God bless you, ms!

    Blessings and Hugs,

    [This Message was Edited on 08/26/2012]
  15. quanked

    quanked Member

    Thank you mikie for sharing your info on your progress with the injections. I check in every now and then to see how you are doing. I appreciate your efforts immensely.


    I am kind of in the same boat you are. I live in Southern Oregon and I need something closer than LA. I could have sworn I had a name of a doc in the bay area but I cannot find it. The next best thing is the Gerber Medical Clinic in Reno, Nevada, 775-826-1900--he has a website--http://www.gerbermedical.com/. He calls his tx amino therapy and it is buried under therapies he provides (I think). If you follow through please share how it goes.
  16. Mikie

    Mikie Moderator

    Ms, sorry, we must have been posting at the same time as I didn't see your post. We didn't lose power here--yet.

    Shel, I hope you didn't have to evacuate after all. My prayers go out to all in harm's way.

    I cannot take anything except my Klonopin and acetaminophen for two days before, the day of, and the day after my injections. I must fast for six hrs. before my 9:00 a.m. shots and not eat anything for an hour afterward. This may be a bit different for each doc.

    I wish I'd get over my head injury faster so I could tell just how much the injections have helped. Actually, except for fatigue, I don't have any symptoms from my illnesses. The cognitive and memory symptoms are from the head injury and are improving. I think the fatigue is improving a bit too. Doc says fatigue is also from the injury. Only time will tell. I've been very sick for a very long time.

    Wishing everyone well who decides to do this treatment.

    Love, Mikie
  17. lke1165

    lke1165 Member

    Hi Jam, I think we're going to the same docs. I just concluded my peptide injections. Originally, doc said 1 injection of 1 vile, per week, for 6 weeks. Then, changed it to 1/2 vile/2x/week for 6 weeks. Just for kicks (since I felt NO change - boo), I did 1 whole/last vile yesterday morning. Nothing. If anything, peptides may have made my sinuses less inflamed - but not really sure of even that :(

    Going to "check-in" with doc today and let him know - all my money spent was for not, and to mention the type of peptide Mickie has been using.

    On another note, been trying ionic detox foot baths. Results of first 2 treatments indicated liver very toxic, kidneys somewhat, some candida and some mucus. Maybe I'm too toxic for ANYTHING to work ? ? ?

    Hmmm, what to do. . . ?

  18. roge

    roge Member

    thank you Mikie for telling us about this treatment. I am too ill to say much more right now but just wanted to say thank you for your efforts. Perhaps one day I will try these.

  19. Mikie

    Mikie Moderator

    Thank you for your kindness. I hope that everyone who wants this treatment can have it and that it helps. I know the injections have made a huge difference but, because of my recent fall and head injury, it's difficult to tell when I'll be at least 80 percent, if not better. I don't call this treatment a "cure." It is supposed to train the body to produce healthy peptide sequences and, thus, healthy amino acids/proteins. I don't think it addresses the underlying genetic problems. Still, I have no more symptoms from my conditions. The faigue I have, which is getting better, is from the concussion. My cognitive and memory functions are improving too. It's just taking a lot longer than I wish.

    All along, I have wanted to document my progress so that others can see what one patient's experience has been. We are all different but, according to my doc, my progress has been pretty typical of his patients on the treatment.

    Love, Mikie
  20. msxxxx

    msxxxx New Member

    I am some what familiar with ion foot baths. There is much controversy over them largely due to the misguided lies so many that provide them tell. First their are benefits to ion footbaths due to the negative ions generated in the water and taken into the body. Negative ions have great benefits to the body as they cause a lot of releasing of toxins and aid in repair of damaged cells. Negative ions are generated naturally by waterfalls, the oceans waves, and other areas of nature (all apart of Gods plan). The feet are one area, but certainly not the only area of the body that toxins, especially metals, are released. The down side is that while footbaths negative ions do cause releasing of toxins, not just in the feet but all through the body, they are simply release, not bound with anything, like glutathione, therefore much of what is released just gets moved around and absorbed in other areas of the body. That which does get released into the foot bath is so microscopic it can not possibly be seen, anymore that one could see what gets released from the skin in the water from a warm bath, or in their urine for that matter. The junk you SEE in the water after an ionic footbath is corrosion from the parts of the bath system, and NOT from your body, that is where the lies come in. The water would look the same if the bath was run for the same amount of time with no feet in it.
    That said, all sources of negative ions have healing power to the body.

    Thank you for sharing your information. I have been aware of Dr. Gerber, and wondered if you knew he has been stripped of his medical license, due to causing the death of several people. That is why he practices under a homepathic license. Have you ever been treated by him? If so were you pleased with the results?
    If you should ever happend to come across the name of a doctor in the Bay Area, please post! Thanks again for your post.

    It would be nice to get a list complied of all the doctors as we become aware of them that use these SAM injection, as a resource for those who want to find a doctor that has them. I am surprised there are not more doctors in CA.

    Another note, to anyone interested in trying something different to see if it helps, I have learned that a doctor in Switzerland has been having much success in treating autoimmune by using a homeopathic that stimulates the peyer's patches in the small intestine. Peyers patches is a name of small intestine mucosa lymph follicles, so named after the man who discovered them. The job of these lymph follicles, at least in part, is to identify all the different types of antigens that travel through the small intestines, and communicate to the the developing white blood cells, so that all antigens are identified and responded to correctly. The homepathic product on the market is called Pleo Reb. It comes several different ways, one is a sip, also a capsel and as suppositories. They contain peyers patch extract of 4X.
    I have been trying these, and chose to use the suppositories, since oral homeopathic can be effected by so many things, this is the easiest to use, if one doesn't mind the "yuck" factor of using suppositories. It is also the only one that can be divided up to use a smaller dose.
    They are very stimulating so it was suggested to me to start with just 1/4 to 1/3 of one at first and work up slowly. I have been using 1/3 and sticking with that for several weeks and have seen some improvements. It is used in the evening, after one is sure there will be no more bowel movements before bed. I use it just before dinner. The idea is that it works, over time, to reprogram the white blood cells
    The doctor in Switzerland is Dr. Thomas Rau of the Paracelsus clinic.

    This is info I found online about what they treat:
    for peyer patch PRODUCT DESCRIPTION:

    • chronic and recurrent inflammations
    • including disturbances in the humoral body defense
    • gastrointestinal conditions
    • chronic hepatitis and angina lacunaris.
    • Rebuilds the immune system and is for all chronic and recurrent inflammations.

    Some site listed it only to treat nausea and vomiting, but are are correct.
    One might want to google Pleo Reb to get an idea on the price. I get the pack of ten suppository for $33. and since I use on 1/3 each night, the box last one month.
    Just thought some might be interested in this info.