15 hour round trip to see doctor too much

Discussion in 'Fibromyalgia Main Forum' started by alyssalyn, Jan 20, 2012.

  1. alyssalyn

    alyssalyn New Member

    I used to have the greatest specialist only 3.5 hours away for like, a decade, almost who could nail my conditions with special diagnostic equipment, and one day I lost this clinical specialty through no fault of my own that I am aware of and I am beside myself and in all this time have not been able to replace my health care with anything that remotely fits. To replace this specialist (with someone who has the same equipment) I would have to travel 15 hours round trip and stay in a hotel overnight, and take a cab, and part of it is 139.5 miles freeway and I cannot do freeway driving due to my disabilities.

    Is it unreasonable to go 15 hours round trip in my condition AND stay in a hotel overnight AND get in a cab, and have to go out to eat because the hotel probably is too cheap to serve food?

    Here are my disabling conditions:

    I have Chronic Fatigue Syndrome, Fibromyalgia, Situational Depression, Anxiety, Hypoglycemia, Hypothyroidism, Insomnia, Frequent urination when ill, Irritable bowels and sudden diarrhea when ill, electrolyte imbalance when ill, periodic nerve pain in my right arm or hip, if lifting heavy items, Asperger's High Functioning Autism, Borderline Personality Disorder, Post Traumatic Stress Disorder, Persecutory Disorder, agoraphobia not officially diagnosed, codependency personality not officially diagnosed, and am on Social Security Disability. I get extremely cold, extremely anxious, due to my conditions, and do not function well in unfamiliar large cities due to poor map skills.

    I am afraid that traveling that far will put me into a flare (relapse), which I may not be able to dig myself out of for weeks or even months.

    I have to have my specialist based close enough so I can drive it (which has been 3.5 hours, with rests and breaks), where there are no mandatory freeways.

    What I need to know is, what distance do you go for your doctor?

    At which distance do you consider it unreasonable?

    I cannot find an Equally Competent Doctor within reasonable distance of my home.

    What can I do?

    The clinic, they were my family physicians, who could tell if a condition was coming up again. I cannot get any help from anywhere after a long long time. I don't know what to do. Please help me. I am at home hoping my body will heal with food and rest, trying to find an equal alternative to what I lost.

    I never expected this would happen to me and I am depressed and anxious trying to replace health care that worked for nearly a decade. I am so, so, so frustrated.


  2. Mikie

    Mikie Moderator

    Where I live, we have good docs close by, even though this is a smallish town. I am so sorry for what you are having to endure to find docs. I wish I had an answer for you. I'm sending up a prayer that you can find help closer to you.

    Love, Mikie
  3. kbak

    kbak Member

    Hi Alyssalyn,
    I have great sympathy for you. I'm facing the same kind of thing. Since I live in the middle of nowhere I tried to travel 6 hrs. one way to see a specialist. I couldn't do it for long because the traveling just killed me. I was never lucky enough to have ever had a good doc.

    I wish I has some kind of answer for you. I don't have any. If I wasn't married I could live somewhere that had help for me, but my husband refuses to move, and I do understand because he's to old to get another good job. Life is a challenge! Maybe someone will have something more helpful.

    Take care,
  4. Saoirse3

    Saoirse3 Member

    so I know what you must be going through. Our closest big city is Anchorage, 3 1/2 hours from us on days where weather isn't a major factor (it can snow anywhere from September to May, and after November, we only have 5 hours of daylight). We don't have an interstate, and it's a 2 lane road all the way.

    Is there a friend or relative you may be able to stay with, who might be closer to the clinic? Or perhaps one of the physicians does a clinical visit to a local hospital near you (we used to have a pain specialist visit our local hospital once a month, until we got our own pain clinic). Perhaps they could recommend a colleague, close to you.

    In the meantime, we are always here for you, and I understand. My son has Aspergers, and I have a daughter with BPD and PTSD. I have FMS, Diabetes, osteoarthritis and liver disease. I'm no expert but I have arms to hug and ears to listen.

    Soft hugs,