1ST draft of letter to MP - SUPPS BAN IN UK

Discussion in 'Fibromyalgia Main Forum' started by tansy, Jul 25, 2003.

  1. tansy

    tansy New Member

    Slowgirl (barb) asked me to draft a letter concerning the ban on supps etc in the UK. Here is my first attempt, I suggest we each write out own but you're welcome to use this and change it as suits your own particular needs.

    I am writing to you asking you to vote against the Food Supplements Directive and sign the Early Day Motion #1442 immediately. EDM #1442 came into being on June 18th 2003.

    Many of us are reliant upon both supplements and herbal remedies to treat chronic illnesses and improve our physical well-being. Despite claims by some to the contrary they are safer than many of the pharmaceutical agents that we might otherwise have to depend upon.

    Freedom of choice in health care is a fundamental and inalienable right that millions in the UK exercise; the FSD is a violation of this freedom

    The growth in alternative medicine and availability of these supplements and herbal remedies is proof in itself that they are both safe and effective. Current UK laws are already adequate providing these products are appropriately labelled.

    Would you please do everything in your power to repeal the Vitamin Directive or resist its implementation in the United Kingdom. Would you ensure that the amendments to the Pharmaceutical Directive do not contain any amendments allowing it to widen its definition of ‘medicine’ to include alternative or nutritional products. It is important you also oppose the Traditional Medicines Directive, which will result in the banning of many safe herbal products with a long record of safety. Please also refuse to allow the Pharmaceutical Directive to take jurisdiction over all other Directives.

    The use of supplements, natural remedies, and alternative medicine has saved the NHS and the government the cost of funding their equivalents, can the NHS really afford to replace all this.

    There are many of us who cannot gain access on the NHS to the specialists and treatments we need even with our GPs' support. Supplements, natural remedies, and alternative medicine give us an opportunity to do something positive about the illnesses and health problems that would otherwise have even more detrimental effects upon our lives.

    If the government and EU take away this freedom to choose and be proactive about my illness and disability, then they take away all my hope too.

    This cannot be allowed to happen.


    Cheers

    Tansy
    [This Message was Edited on 07/25/2003]
    [This Message was Edited on 07/25/2003]
    [This Message was Edited on 07/25/2003]
  2. tansy

    tansy New Member

    We need to contact our MPs and MEPs now, because the next stage is very soon.

    cheers

    Tansy
    [This Message was Edited on 07/26/2003]
  3. nickname

    nickname New Member

    Well done Tansy for giving us all a kick to do something. I will certainly write to my mp/mep. All of what u wrote is relevant, but I will also add that not only will this impact on UK industry as a whole, it will also impact on small business. We, as the consumer, rely on local health food shops to provide us with these supplements, and who at the same time, provide employment for local people.

    If you go onto the edm website, u can see a copy of this edm, together with a list of the 51 mps who have signed up
    to it.

    Best wishes
    nickname
    [This Message was Edited on 07/26/2003]
  4. tansy

    tansy New Member

    act upon this. Relatives and friends of mine are going to support this but the numbers need to grow and we need all our MPs to sign the Early Day Motion #1442.

    I know it's difficult for all of us but this is important particularly in the Uk where very little is done to actually treat our problems.

    Cheeers

    Tansy
  5. nickname

    nickname New Member

    ........bumping.
    nickname
  6. nickname

    nickname New Member

    ......bump to the top.
  7. nickname

    nickname New Member

    .......bumping up one more time.
  8. tansy

    tansy New Member

    Thank you so much for bumping this post for me.

    It is important that everyone acts on this, and get as many people we know as possible to do the same.

    Love

    Tansy
  9. nickname

    nickname New Member

    Hope u had a good break away - welcome back! Do you know I sent letters to all MPs in my home county plus those mentioned on the Health Freedom website - 27 in total! The more I thought about it, the more I got going, and once going, I could'nt stop. Never done this before - wonder if they will reply.

    Best wishes
    nickname
  10. tansy

    tansy New Member

    even more than I've so sent so far.

    I realise some board members feel doing this is overwhelming but that is why a draft was posted. It's too easy to feel powerless when dealing with ME/CFS policies in the UK. Taking some action, no matter how small, and doing something about it all helps us feel we can influence what goes on now and in the future.

    Yes I enjoyed the break though not the travelling. My sister and I get on well and exhausted ourselves and one another chatting. She's a pharmacist so got some useful feedback from her, when I can get thoughts in order may post on this, since those in the UK may find it helpful to understand what is accepted and the policies against prescriptions of ABx etc.

    Love

    Tansy
    [This Message was Edited on 08/02/2003]
  11. nickname

    nickname New Member

    Hi there - you know that I wrote to 27 MP's re the impending supplement problem, and I thought I'd give you an update.

    Have had lots of prompt replies in, some whithin a matter of days. I have never done anything like this before, so it was a bit intimidatingto do it, and then to receive House of Commons envelopes thru the door, was a bit awe inspiring.

    One major thing I learnt, was that only a persons constituent MP is allowed, under strict Parliamentary guidelines, to act on a person's behalf. Therefore, most MPs wrote to say that they would pass my letter on to the relevant member. In the future, I shall know only to write to my own MP. However, I hope that in receiving all these copies, he will understand the importance of how one of his constituents feels, and the gravity of what is being proposed. Have yet to get his reply, but it is holiday time.

    I have had replies from two Conservative members that were very informative, and I only wish I could post them here. I don't know if I can, or even how to. Basically the jist of what they said, was that the Conservatives have argued against the Directive, they think it is an appalling state of affairs, and that the Government is hell bent on being part of the EU, and this is another resulting burocracy of Brussels.

    One also enclosed in her letter to me, the minutes from the Second Standing Commmitee, where she wrote: "For your interest I thought you would apreciate reading the appalling case set out by Miss Melanie Johnson, the Health Minister in charge of this Directive." Having read it, yes it was an appalling case set out - the deed is done, and there is no argument. I just wished I could get this posted for you all.

    I will quote just a bit from what Miss Johnson said at this Standing Committee because this is relevant to us all:

    "We must be clear about what the directive does and does not do. It establishes two lists, one of which details the permitted vitamins and minerals, such as Vic C and calcium and the other of which lists permitted vitamin and mineral sources............The lists can be added to if safety data for additional substances are submitted for evaluation by the European Food Safety Authority. The derogation that we secured allows us to permit the continued marketing of food supplements based on vitamins and minerals, and vitamin and mineral sources, that are not in the permitted lists until 1 January 2010, so long as they were used in products which were on the market when the directive was adopted last year;
    safety data supporting their used have been submitted by July 2005; and an unfavourable opinion on their safety has not been adopted by EFSA. By 2010, the Commission plans to have proposed an amendment to the positive lists to add the nutrients and nutrient sources for which EFSA has accepted the safey data, so that their use can continue beyond that date."

    The lists of permitted/banned supps/sources was not accounted for, but certain supps were mentioned. Those were: B6, Vic C, germanium, calcium, magnesium, boron, silicon, chromium picolinate. Glucosamine sulphate is deemed not a vitamin or a mineral, and is not covered by the Directive. Natural sources, such as the use of cod liver oil as a sosurce of vitamin A, will not be affected.

    The close of these minutes read as follows: "Mr Brady: On a point of order, Mr Griffiths. It is clear that we have no way of amending the regulations and that changes on the Government side may mean that they go through, even though not a single memeber of the Committee has spoken in their favour. Do we have the option to vote to adjourn consideration and to return to the matter on another occasion so that the Minister can come to us with some arguments? The Chairman: The answer is no."

    The Committe was divided 8 Ayes to 6 Noes.

    So there we have it.

    Best wishes
    nickname

  12. tansy

    tansy New Member

    and thanks for posting their replies. Mine were briefer but similar, so that opens the door for further explanations such as my need for higher doses of threatened supps and how dropping them down to so called safe levels just meant me going back downhill again.

    I can't beleive how few people in the UK are trying to do something about this. Where I live they have become too complacent about not just this but just about everything these days. They seem to think the govt just goes ahead regardless of what the majority of the population want, they are right but through not continuing to challenge these actions they condone them.

    It's great isn't it when people in office reply to your letters and requests for suppport. When I first started doing that many many years ago I was amazed at how much positive suport I got. Once politicians, and others, got to know me, and what I was aiming for, a real rapport developed and a lot of people benefitted. No one should feel powerless, we can make a difference.

    Love

    Tansy
  13. nickname

    nickname New Member

    .....for all those who were not on the board this weekend so's you can see.
  14. angeldust

    angeldust New Member

    A number of on-line uk vitamin suppliers are sending out postcards to customers to sign and post to Westminster campaigning against the ban. If you see one fill it in and post it!
  15. pixipip

    pixipip New Member