1st Pain Management Appt: Suggestions?

Discussion in 'Fibromyalgia Main Forum' started by ILoveGreen, Dec 12, 2006.

  1. ILoveGreen

    ILoveGreen New Member

    On Thurs I go to my long-awaited Pain Management Program appt. scheduled six months ago. Since I moved back to WI I feel like a beach ball being volleyed from one specialist to the next without finding one who would concur with my former CFIDS Dx and/or treatment. I went from being somewhat satisfied with my level of pain, functionality, ability to predict energy levels and sleep cycles to 180 degrees away from my life as I knew it.

    Anxiety, sleepless nights, incapacitating muscular and joint pain, and migraines have become the rule rather than the exception on a daily basis. My new Rheumy seems more attentive than the other Drs along the way; she Rx'd Ambien and Darvocet, but was adamant about her stance on pain meds, stating "Darvocet is as far as I go!". I can't help but think that she saw my file and prejudged me because before I moved I had been taking Klonopin and Oxycodon to be used as needed (I barely used 30/month). Maybe I'm being pessimistic and a bit paranoid, but I can't help but feel like Elaine on Seinfeld in the episode where she is labeled a "problem patient" at every Dr. she visits...

    Suggestions please!

  2. Lynna62

    Lynna62 New Member

    I know how you feel. I go through major stress before my Dr appts too. Even when I go to the Rheumy who I have been seeing for 13 years !!! We have a pretty good relationship, he gives me the meds I need and does my disability paperwork as needed (for a fee of course). But he is annoyed with me cuz I wont pay $100 to take his 3 week course for FMS patients.. This "class" is on a Tuesday night for 3 consecutive weeks, 20 miles away, driving through major traffic. As if I haven't spent the last 14 years researching, I could probably teach them a thing or two. You'd think he would be more understanding but oh well.......

    I wish I could be more encouraging but my experience with a Pain Management Clinic was not a good one. The first thing they wanted me to do was see the Psychiatrist, then join their weekly support group. AND their intention was to get me off narcotic pain meds (the only thing that helps).

    Hopefully someone with a better experience will respond, you could also try a search under "pain management".

    In the meantime, know that you are not alone and I'll be thinking of you. Let us know how it goes.

  3. ILoveGreen

    ILoveGreen New Member

    Thank you for your input. I'm optimistic, but realistic. If I don't feel like I'm being regarded in a professional, unbiased manner, I'll definitely waste no time in seeking treatment elsewhere. Good idea to bring along all records in my possession even though they told me it wouldn't be necessary...(is that a clue already or what?!?) At least I'll have them right there so they can see my original Rheumy's narrative prior to Dx when I was working and had no intention of having to stop let alone EVER file for SSDI...Maybe that will help my credibility. Thanks for the support.
  4. RedHeadEMT

    RedHeadEMT New Member

    Hi Annie,

    I have had a wonderful experience at my pain clinic. I have been with them for over two years now and my doc is an angel; so is his Med. Ast.

    Just be honest. Tell them the impact that the pain has had on your life. I didn't beg my doc for pain meds, instead I was nonchalant and I have proven over time, to be very responsible with my meds.

    There ARE crummy pain clinics and pain docs; it's like the whole Cinderella thing...if this one doesn't fit, try another one on for size until you find the right one. Good luck!

  5. Kimba4318

    Kimba4318 New Member

    Hi Annie -please let us know... I hope it went well for you and you are getting the relief you deserve.
  6. mary124

    mary124 New Member

    6 months to get into a pain clinic-WOW. I think I only had to wait 2 weeks to get into mine. I go to one in South Austin. (He was in North Austin but he moved- its a long trip for me, especially since I live almost in Georgetown)
    but he is a great doctor (only seen him once or twice I usually see the nurse pract.) They treat me for my IC pain. I have been going to them now for almost 2 years now.

    I also heard like someone else mentioned that yes, there are good and bad pain mgmt doctors, but then again, there are good and bad doctors every where. If you don't like them you can find another one.

    Let us know how your appointment went.

    Joyfully-- where do you go for your pain mgmt?
  7. mary124

    mary124 New Member

    I go and see Dr. McCarty. Actually, I see his PA, Sandra.
    Like I said, they use to be North but now they are south, which is too far for me if I go from home, but if I leave from work, its not too bad. I've been seeing this group for about 2 years. They really can't do too much for me pain wise except medication due to my heart valve as I would have to get off my coumadin and can't be on any other meds for blood thinners as my cardio won't allow it, now I know he (Dr. McCarty did check with another cardio doctor but I told them I have to go along with my doctor and what he says and if thats not ok with you well then I will have to find me another clinic. Apparently, it was as I'm still with them.
  8. ILoveGreen

    ILoveGreen New Member

    Bottom line: My first appt went well. I was sent home with a Rx for a month's worth of lidocaine patches and an order for a full spinal MRI. Treatment plan to be determined pending MRI results.

    Narrative: After a lengthy health/medical history review and brief physical exam, it was determined that my pain is due to multiple (auto accident) traumas to the cervical spine, and that the nerves on the right side of my spine are being pinched below my occiput (the same area I've been seeing chiros about for 20 years). The Dr. mentioned that "old pain" can be difficult to treat (I understood this to mean fewer alternatives available; pain meds being a last resort). I explained to him that I never wanted to be on pain meds until the pain became debilitating and had such a negative effect on my demeanor. He acknowledged my attempts to manage my pain with alternative modalities, and seemed to show some respect for my efforts. He went on to discuss possible treatments such as pain blocks, TENS unit, nerve severance, among others.

    I have come this far with regard to remaining open-minded to my WI Dr's treatment plan, so I suppose I'd better hang in there a bit longer and give it my best shot. Meanwhile, I'll keep up my daily yoga, PT exercises, walking as tolerated, etc. and hope for the best. It sure does get hard to keep on keepin' on sometimes, but having this board available for a place to vent, give and receive support is a real help.

    Thanks again for all of your support.

  9. RedHeadEMT

    RedHeadEMT New Member

    I am happy to hear that your appointment went well, however, I am kind of concerned that you doc seems to think that other more invasive procedure should come before seeing if pain meds could manage the pain.

    Something like nerve severence is pretty serious; in my opinion, WAY more serious than pain meds, in my opinion.

    I just hope that you research everything before you just do what your doctor says. I only want the best for you. Please arm yourself with much knowledge before going forth with anything ok?

    Take care,


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