2 questions on painful/tender lymph nodes

Discussion in 'Fibromyalgia Main Forum' started by joe_, Apr 13, 2003.

  1. joe_

    joe_ New Member

    hi,

    on my left and right arms, on my neck and below my sternum i have some swolen nodes. some of them are diagnosed as swolen *lymph* nodes, others are indeterminated yet. The nodes are pretty hard, the docs say it is "scarred tissue". They reckon that i had a bad infection in the past which destroyed these nodes and they will remain scarred forever. (indeed i was sick one year ago and since then i noticed these nodes)

    the doctors are not concerned now by the lymph node swelling, because i was monitored over nearly 1 year and the nodes did not get bigger and i do not have any systemic symptoms (sweats or fever). Therefore they conclude it's no sign of lymphoma or another malignance.

    i also tested conclusively negative on infectious diseases like HIV-1,2 and hepatitis-b,c which could also lead to swolen nodes.


    i have two questions:
    =========================

    1. should i ask for more in-depth evaluation of the nodes? Would you recommend a lymph node biopsy? My doc says i will most likely get an "unspecific" result, hence it will be unncessesary surgery which he would like to avoid. However, has anybody some experience with that? What exactly does a biopsy tell me?

    2. what can i do to reduce that tenderness/pain? what can i do to reduce the swelling? (1-2 centimeters). I am a 26 year old man and i cannot do sports etc. as i used to do because of the painful nodes. I feel a bit disabled. Sure the pain/achiness is absolutely bearable, but it is just very ANNOYING.

    This is why i am looking for help - i would like to get rid of this problem, or at least alleviate the symptoms (which are swolen tender nodes)

    does anybody have some advise / ideas for me?

    best regasrds,
    joe
  2. Bellesmom

    Bellesmom New Member

  3. joe_

    joe_ New Member

    sorry for the ignorance, i am no native english speaker...

    what do you mean by "bumping"? do you mean "pumping" (i.e. weightlifting)?

    thanks,
    joe
  4. joe_

    joe_ New Member

    thanks!
  5. srollins

    srollins New Member

    I'm looking for some feedback on the swollen gland thing as well.
    I have looked like a squirrel since third grade when I had Mumps. It's as if I never got over them. When I get up first thing in the morning it is especially bad.


    By the way, Welcome!


    {{{}}}, Shirley
  6. srollins

    srollins New Member

  7. Dara

    Dara New Member

    I am no expert but if it were me I would be going to a specialist who deals in the lymphatic system. I would think an oncologist, such as a hematologist, would be the one to go to. I can't imagine why he wouldn't want to do a biopsy just to set your mind at rest. It's my understanding that the lymph nodes filter out the poisons or toxins in your body, I would want to know where that was coming from. I had a really bad case of staph infection which caused my lymph glands to swell and become extremely sore. This is just my advice on the subject.

    Dara
  8. joe_

    joe_ New Member

    hi Dara,

    thanks for your advise. i just called a specialist for hematology and immunology and i will hopefully get an appointment within the next few weeks

    btw. i have already seen an oncologist last year, she even ordered a CT scan, but the head of department (my doc) overruled her and cancelled it - he said it's not necessary, etc etc. .. o well...

    however, now i'll take a second attempt to get an in-depth analysis of the problem

    thanks to all,
    joe
  9. OHELPME

    OHELPME New Member

    HEY JOE,
    I PRETTY NEW HERE AND HAVE ONLY POSTED A FEW TIMES,BUT I HAD TO LET YOU KNOW I HAVE HAD SWOLEN LYMPH NODES FOR SERVERAL YEARS WITHOUT PAIN THEY WOULD COME AND GO THEN A FEW YEARS AGO A COUPLE ON MY LEFT SIDE OF MY NECK POPPED OUT AND THEY WERE VERY PAINFUL YOU COULD SEE THEM IT LOOKED LIKE I HAVE SWALLOWED A BIG GUM BALL AND IT GOT STUCK.ANYWAY MY DR. KEPT AN EYE ON IT FOR A COUUPLE OF MONTHS AND THEN DECIDED TO GO AHEAD AND REMOVE THEM AND BIOPSY.IT ALL CAME BACK NORMAL BUT TO ME AND MY FAMILY THE SMALL SCARE WHICH HAPPENS TO BE ON ONE OF MY NECK CREASES WAS WELL WORTH PUTING ALL OF OUR MINDS AT EASE.ITS A SIMPLE PROCEDURE (DAY SURGERY).I HOPE THIS HAS GIVEN YOU SOME INFO.THE MAIN REASON I DID IT WAS BECAUSE THEY WERE SO PAINFUL,SO IF IT BOTHERING YOU IN THAT WAY AND YOUR DR. IS WILLING ,GIVE IT SOME THOUGHT.REMEMBER THIS IS JUST MY EXPERIENCE.TAKE CARE & GOOD LUCK! STASHA

    I'M NOT SURE WHAT ALL THE BIOSPY WOULD SHOW BUT IF THERE WAS SOMETHING BAD IT SURLEY WOULD!AND AS FAR AS THE PAIN I STILL GET SWOLLEN GLANS AND YES THERE TENDER BUT NOT AS PAINFUL AS THE ONES I HAD REMOVED.SO IT DEPENDS ON IF ALL OF YOUR ARE PAINFUL OR JUST THE ONES YOUR THINKING ABOUT HAVING REMOVED?
  10. Misdiagnosed

    Misdiagnosed New Member

    Hi there

    At the onset of my FM I was severel constipated and developed pressure in my neck, shoulder and base of skull. It felt like an engorged blood vessel coursing up the side of my neck - didn't know it was a lymph trajectory at the time.

    2 years laters my neck lymph nodes (where the original pressure was) have swollen like grapes - my doctor took this very seriously and sent me to a surgeon who biopsied them last week as well as removed a smalll strange lesion (like a crusty mole) that had developed in my scalp, which was just up from the lumps.

    Don't know the outcome yet but will let you know. My doctor said no matter what's going on glandualr lumps in your neck is not normal. I suggest you do get them biopsied for peace of mind, if nothing else.

    Regards
    Gill