20 year old patient curious about what the future may bring

Discussion in 'Fibromyalgia Main Forum' started by ashleymarie, Jan 31, 2007.

  1. ashleymarie

    ashleymarie New Member

    I'm a young fibro patient (20 years old) trying to figure out how fibro will affect me down the road. My two biggest concerns are pregnancy and my future career. I'm worried about how my body will react to pregnancy with the fibro... am I going to end up on bed rest for a few months, is the pain and fatigue going to increase, will I not even notice any changes? My future career is also a major concern. I'm a forensic chemisty mahjor, which will lead to a job working in a crime lab analyzing evidence and going to testify in court. I am so incredibly scared that I will work by butt off for this degree that I'm so passionate about, only to find out that I'm not able to work for more than a few years. How has having fibro influenced or controlled your career choices? I know that everyone has a different reaction to fibro, but I'm just trying to get a feel for what other people have experienced.
  2. sophiekk

    sophiekk New Member

    ((((Ashley))))

    For pregnancy, I've found some useful info at this site:

    www.mecfsparents.org.uk

    (Many women posting seem to have fibro alone or with CFIDS). There doesn't seem to be too much research out there, but I've been encouraged to see anecdotal stories about women with CFIDS and/or FM feeling better in their pregnancies. I'm planning to gather as much support around me as possible for after my children are born, because that seems to be a dangerous time for us, but I spoke with my specialist and she said that CFIDS/FM is not considered a high-risk condition for pregnancy per se.

    I don't want to give you advice on working without knowing your level of disability, but I've been able to do a lot more than I thought I could with the help of accommodations and really careful pacing. I'm also considering purchasing an electric wheelchair, which may even mean I can return to work full-time. (I find the physical side - commuting, climbing stairs, moving files etc is more draining and aggravating to my fibro pain, and thre are ways to avoid that). Have you considered consulting a good occupational therapist also? They might be able to help you with practical strategies to manage your energy and avoid pain while at work and at home.



  3. fungirl2100

    fungirl2100 New Member

    I am in the same boat. As I mentioned to you before I am only 33 & still looking to start a family soon. Sometimes the fibro takes a vacation while you are pregnant other times not. I miscarried once already. Not sure why.

    I would say you really should talk to your doctor. I don't know where you are at with the pregnany idea, but that would be the best person to go to. I can guarantee you whatever meds you are on will pretty much stop & you will end up on Tylenol. My pain management doc already warned me. When I had my miscarry I wasn't on any meds.

    good luck

    fungirl
  4. HurtsToMove

    HurtsToMove New Member

    and I've been able, thus far, to keep working. It's a low stress job IMHO and not physically demanding. I sit, then stand, then walk, then sit again all day long. This helps my condition since being still for any amount of time makes me stiff.

    Try to get a position with whatever state you live in (or close to). State jobs are better than local. They have good benefits and pensions once you get vested. Going federal would be even better but those jobs are harder to come by.

    Don't mention your condition before being hired. What you tell your employer after that is up to you....kinda depends on the situation and what you feel comfortable with.

    I try not to think too far ahead, it just depresses me. For now why not focus on graduating and getting that dream job? Your condition may never get any worse than it is now, it may even improve. And you're young. I believe better treatments will come, maybe even a cure. We just need to be patient.

    Good luck!
  5. JaneSmith

    JaneSmith New Member

    Hi there -

    I had this condition since I was 15. I had 2 children. Had my ups and downs with it. I'm 55. I'm surviving. I feel better when I get 7-8 hrs. of sleep. It's not a walk in the park but we are still here.
  6. AllWXRider

    AllWXRider New Member

    I read that M.D. scoff at hair analysis but its used a lot in forensic science for checking for poisoning.

    I had a hair analysis done and found Lead, Cadmium & Antimony at 4X threshold levels of healthy ppl.

    Maybe you could run one in your lab there.

    If you don't have toxic metals...that's good. I would recommend a book by Dr. Jacob Teitelbaum: From Fatigued to Fantastic. The key to getting well is to not treat symptoms but find the Root Cause of your illness. Most M.D. only treat symptoms like pain.

    I thank God that I was able to find that my Root Cause was toxic metals.
  7. butterfly83

    butterfly83 New Member

    Hi Ashley - I'm an Ashley too :) I'm 23, and have had fibro since about 16. Symptoms can be very different in different patients. Some of us are able to do more physically then others. So my advice would just keep doing everything you can to maintain your health, but do as much as you are able to do within the boundaries of your health. You shouldn't derail your dreams and start studying to be a secretary because you think in the future you may be disabled. One thing I've learned about fibro patients is that we are the most zealous people you'll ever meet. We are unstoppable in our efforts to find a cure (or even a band-aid), and I think that tenancity spills over into anything else we really truly want to do. So keep going for what you want. If in the future you hit a roadblock, then at least you hit it at full speed. We'll all have setbacks in our illness, and we can never know when they will come, but we cannot live our lives waiting for the next ball to drop. We've just got to keep putting one foot in front of the other.

    With chronic illness you absolutely cannot get too ahead of yourself.

    :gentle hugs:
  8. suzannekart

    suzannekart New Member

    I am 61 yikes. I have had this since I was about 22. I always felt better when I was pregnant. I had a dr. tell me once there are two kinds of fm people. The ones who push through everything. which is not smart but its me. and those who slow down. I have just never sat down. and I know i will upset people and I really don't want to. I try to ignore as much as I can and not let it define who I am or want to be. My son who is 40 has diabetes and his dr. told me when he was 9 and came down with it, NEVER to refer to him as a diabetic but as a person with diabetes and do that only when necessary. I always remembered that. I thought it was powerful advice and I guess I just applied it to me and fm. I have had a lot of terriable stuff go on in my life and the only power I had was how I would choose to look at it and how I would allow it to define me. My choice was not to have it define me. You will do great. I have 4 great kids the oldest is 41 and the youngest is 20. I have 7 grandkids and think life is just so darn much fun and always so interesting that I always look for ways to make the most of it. Enjoy your life and you will be 61 and wonder where the heck the time went! Peace and Love, Suzanne
  9. kriket

    kriket New Member



    I am 29. I went to nail tech school and then did nails for about 9 yrs. I then opened my own nail salon, but sadly had to close it after about 2 yrs. due to the worsening of my symptoms. I think the chemicals and dealing with the public on days that I felt so bad just took its toll. Your occupation however is different. I also have social anxiety, which made things worse too.

    I have often wondered and worried the same thing that you are thinking about. These same ques. roam through my head all the time. I am engaed and am scared to death of what pregnancy and having a child will do realting to my health. Don't know if you've met Prickles yet, but she is going to school like you and deals with a lot too. I remember her mentioning this same issue in the past too, working so hard for something only to find out later that you will not be able to put to use what you have trained so hard for.

    I have been in this spot and it is hard to deal with, but hopefully you will be able to push forward and everything will turn out for the best.

    Know exactly where you are coming from.


    Kriket
  10. PVLady

    PVLady New Member

    You may find you do very well. That main thing is to learn to keep your stress down. I heard some people do very well during pregnancy.

    One thing I started recently that helps is guided meditation and hypnosis for relaxation. There is a very good book by Dr. John Sarno on the "mind body" connnection. He addresses fibromyalgia. I have several of Dr. Sarno's books - they are excellent.

  11. phoebe1

    phoebe1 New Member

    I have to agree with Suzanne, do NOT let this condition define you and take your life away.
    I am 28 and I have had FM for over 10 years, I am a pharmacist and sometimes studying was rough for me, I remember once they had to call out a doctor to the res to come give me a pethidine injection, the day before a big exam!

    Classes were from 8-5 monday to friday, when I got back from class I had to study and do assignments, in between I had supper (usually not the most nutritious), at around 10 or 11pm my social life started and a bunch of us usually went to a club or a pub (about 4-5 times a week).
    I would get back anytime between 1 and 5am, then got up at 6:30am and went to class again.
    I also went to aerobic class 4-5 times a week, weekends was party party party! My schedule was hectic!
    When I got my degree, I went on to do my masters, all through my studies I got distinctions.

    Don't ask me how I did it, I don't know, I wish I knew so I could do it again. I pushed myself very very hard, sometimes I wasn't sure that I would make it but I had the time of my life and I often think about it.
    Everybody is different and only you can decide what you are capable of.

    My job is extremely stressful and a lot of days I think about slowing down and taking it easy, but I'm too stubborn (and maybe in denial).
    My husband always says that if I were healthy I would be a machine and nobody would be able to keep up with me.

    Unfortunately I have no advice about pregnancy, I don't want children but I have heard many people say that they feel better when they are pregnant.

    Good luck with your decision!
    Phoebe