25 and under crowd?

Discussion in 'Fibromyalgia Main Forum' started by butterfly83, Jul 15, 2006.

  1. butterfly83

    butterfly83 New Member

    Just wondering how many young people we have here who are dealing with this illness. It can be kind of a different thing to have to deal with it when you're young and supposed to be in the most energetic portion of your life.

    I'm 23. I've been dealing with CFS since about 15, and Fibro symptoms since about 17.
  2. KMD90603

    KMD90603 New Member

    I'm 24 and have mostly CFIDS. My fibro symptoms have gone into remission over the last year and a half or so. I've been sick since I was 15; my symptoms began after having mono. I was diagnosed with fibro in october 2003. Then, I was diagnosed with CFIDS in June of 2004, after running chronic low-grade fevers.

    It's definitely difficult being so young and not having any energy. There's so much I feel like I should be doing at my age. I mean, my mother has more energy than I do. I have a 5-year old son, and it's extremely difficult for me to keep up with him. I'm also in nursing school (on summer break now), and I often wonder if I'll be able to make it as a nurse with this disease.

    Gentle hugs,
  3. dani78xo

    dani78xo New Member

    i'm sixteen.
    and i've had FM since around october of 2005.

    it's definitely awful to have this when you're young.
    i hate being stuck in the house all the time,
    when all i used to do is go out with friends.

    funny thing is, though, i can't remember what it felt like to not feel sick.
  4. IntuneJune

    IntuneJune New Member

    Just wanted to say what a lovely name you chose!


  5. valleyann

    valleyann New Member


    I've been having problems since I was about 16 years old and was just recently diagnosed this year with Fibro.

    I'm also undergoing some tests for liver disease, as the doctors noticed some irregularities after my first Rheummy appointment. Truth being I've had the same "irregularities" for over 2 years now, but it took the specialist to light a fire under my family doctors butt before I was referred to a liver specialist.

    Anyways...I got a little off topic there. But what I was wanting to say is that there are alot of people out there our age and younger dealing with alot of different problems. We need to hold our heads high and think of how many people out there are going through worse things...that way we wont feel so depressed and alone.

    I can hardly remember what it felt like to be pain free... but you never know one day they may find some sort of cure that will help us all. We have to keep positive! :)

    [This Message was Edited on 07/15/2006]
  6. place

    place New Member

    I think I have had this my whole life but it got serious around 22.

    I was really angry, that I was losing so muc precious time. But looking back on it, the thirties are good too!

    But also, I think that within 5 years or so, they are going to make some serious progress with this DD.

    So you have youth and a good chance of finding a cure or a treatment in your lifetime, maybe before your 30, when life really gets good!

    My advice to my yonger self... don't be passive.. take charge of your health.. make it your number one priority...don't take no from a doctor...

    just becuase a doc has the MD or he is an older adult, does not make him right or more knowlegable about you and your condition (you know the most about yourself)

    if the doc does is not willing to listen to you and work with you, find one that will.

    Good luck!
  7. StephieBee

    StephieBee New Member

    I am 25 and was dx'd with FM, RLS and a whole slew of other things when I was 20. I had symptoms since I was 18 though. I hate it because I feel like Im 90. I also have do not remember what it was like to be pain free. I was very vocal about my pain in the early stages but I try not to be so much now so others dont have to listen to me over and over again. I was very angry to get this DD at such an early age, but I try to remember that there are many others that are alot worse off than us. That keeps me somewhat humble.

    [This Message was Edited on 07/17/2006]
  8. TraderTif

    TraderTif New Member

    I'm 24, and I've had this since I was 8.

    I guess I just do the best I can. I've had it so long, I think I'm used to it.

    I don't like it.....but I'm used to it.

    Tif =:cool:
  9. butterfly83

    butterfly83 New Member

    Thanks intunejune :) i like butterflies, and my mom once told me that butterflies keep trying to fly even when they've lost 80% of their wings. i related ;)