27 y.o male, lots of symptoms, please help!

Discussion in 'General Health & Wellness' started by Mrdude1234, Jan 18, 2017.

  1. Mrdude1234

    Mrdude1234 Member

    Hi all,

    Background: 27 year old male, accountant, prior to symptoms; generally fit and healthy.

    June 2015: Suddenly had tinnitus in left ear. A week later started feeling very strange. Symptoms included dizziness, fatigue, tired legs and arms, tingling hands/feet, brain fog among other things.

    I saw many doctors and had a head MRI and everything came back clear. I requested my GP test me for Epstein Barr virus and it came back positive, I think the GP said it was acute. I recall blood tests coming back normal too.

    September/October 2015: most symptoms subsided. Tinnitus was still there and I'd get random bouts of dizziness but I was mostly ok.

    December 2016: eosophogus started to feel very tight, stomach bloating after eating/drinking, lack of appetite and weight loss, sensation of burning skin on chest and arms, undigested food in stool.

    January 2017: had endoscopy that showed nothing significant (biopsy did not test for H Pylori).

    Still experiencing symptoms such as leg and arm fatigue (feels very laborious to even walk or pick up something light), general feeling of dizziness, eyes feel like they are not focusing correctly, oesophageas feels dry in mornings.

    I also get tingling sensation in hands and feet, usually when laying down or sitting. My body feels like it's not working right, like there is not enough oxygen going to my cells or something. My head and my eyes don't feel right also, hard to explain.

    As far back as I can remember I have post nasal drip, like in the mornings I hock up yellow phlegm. My ears also click when I speak.

    I also get random infrequent muscle spasms and some random dull aches. This doesn't happen very often.

    I don't know who to see anymore. I have seen countless specialists and GP's. I don't know if this is a gastro issue, or it stems from my sinus or it's some kind of bug/virus/bacteria.

    Do I have H Pylori, an EBV flare up, Lyme, CFS, Fibro? Something I haven't thought of. I'm really lost and don't know what to do or try.

    I'm trying to go gluten/dairy/sugar free at the moment also.

    Any advice or guidance is hugely appreciated.
  2. rockgor

    rockgor Well-Known Member

    Hi Mr Dude

    Welcome to the Board. Sorry you're having so many problems at such a
    young age. I have read that many diseases don't show up on the usual
    blood tests, and thus are difficult to diagnose. Hopefully some folks here
    can give you some suggestions.

    Here is some general info about the board.

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  3. Mikie

    Mikie Moderator

    Hi, Mr. Dude,

    I am so sorry for how you are feeling. I am glad that you found us here.

    Thanks, Rock, for the fine introduction to our website.

    So many people with these illnesses have chronic infections, both viral and bacterial. Chronic viral infections are often those in the Herpes family, including EBV, CMV and HHV-6. My PCP didn't bother with trying to identify the strain of what we suspected was a chronic Herpes virus. He prescribed Acyclovir. I always have it on hand because Herpes viruses never go away, they just go latent in the body and can reactive when I get run down. When my "Whatever Virus" reactivates, I take the Acyclovir. I take it about six weeks and then I stop it. This keeps the virus confused and allows my own immune system to drive it back into latency. Either starting or stopping AVs can produce a Herxheimer like reaction in which my body tries to purge the dead viruses which can go toxic in the system if not excreted. I sweat profusely and it smells awful. I have diarrhea and it also has distinctive odor of death. This is how I know there has been a big dieoff of the virus. Medicine is often practiced empirically without a lot of expensive tests which often give incorrect results. It might be worth a try in your case.

    BTW, we can also suffer from bacterial infections. In my case, it is a mycoplasma and I've had to treat it with antibiotics. So far, my docs and I seem to have been successful in driving the mycoplasma into latency. Has your doc checked for Lyme disease? Many have this without remembering being bitten by a tick or having the bullseye rash. Again, testing for Lyme may not provide accurate results. Still, it's worth pursuing. Our Nanie46 here is the local expert on Lyme and she is always providing important new info on this.

    At this point, I think you and your docs need to be open to pretty much anything and willing to try things empirically. I want to wish you the best of luck. You can read all kinds of articles and research papers on this website.

    Love, Mikie
    rockgor likes this.
  4. Mrdude1234

    Mrdude1234 Member

    Thank you Mikie. I have been tested for Lyme in Australia but I think it is not very thorough here. I am scheduled to see a Lyme doctor in about a week.

    I believe I have been tested for a Herpes simplex virus at some point and it came back negative. Only EBV came back positive for me.

    I may have to shell out the $$$ to pay for the proper test in Germany or whatever it is.

    Thank you for sharing your experience, it is very helpful.
  5. Nanie46

    Nanie46 Moderator

    Hi Mrdude!

    I replied to your post in the Lyme forum.

    I hope you will keep coming back to our forums.

    There are lots of very nice and helpful people here! :)
    rockgor likes this.
  6. Mikie

    Mikie Moderator

    Did your doc put you on an antiviral med? Since you tested pos. for EBV, I would think it wouldn't hurt. Many docs will say that, even if you were ever exposed to EBV, you will test pos. For us with these illnesses, the Herpes Viruses can continue to make us sick. Not much expense involved in trying the AVs empirically. Best of luck to you.

    Love, Mikie
  7. Mikie

    Mikie Moderator

    BTW, many of us suffer from infections, active and latent. I have always said I don't believe we can heal until we heal our infections. Pathogens are very smart and good at hiding from tests while keeping us sick. I was very lucky in that my docs have treated my bacterial and viral infections empirically because my HMO would never pay for the often expensive tests to find latent infections.

    The best thing we can do is research, research, research and work with out docs. I printed out papers and articles for my docs so that they knew I wasn't asking for something unreasonable. My first doc knew nothing about these illnesses but was happy to learn. My present doc is knowledgeable of immune and auto-immune illnesses and is willing to work with me.

    Love, hugs and prayers for everyone for healing.

    Love, Mikie