90% bedridden anyone overcome this?

Discussion in 'Fibromyalgia Main Forum' started by nleer, Oct 10, 2012.

  1. nleer

    nleer Member

    Has anyone been bedridden and have overcome this?
    Please tell us how you overcame being bedridden and did anyone have someone to help them take care of themselves while bedridden. I am in bed all day and I don't have anyone to take care of me and will go without something to eat all day and I can't function enough to take care of the little things in my life. Can someone help me or tell me what you did to help yourself.
  2. mbofov

    mbofov Active Member

    Have you had your adrenals checked? Weak adrenals can cause severe fatigue which can leave you bedridden.

    Some months ago another poster wrote about fatigue, she had been bedridden for many years, but when she described her symptoms, it sounded like her adrenals could be involved. She'd never really been tested.

    I was helped a lot by a chiropractor who does muscle testing. he first diagnosed weak adrenals in the mid-1990's and gave me an adrenal glandular product which helped enormously. I had been feeling weak as a kitten. No doctor had picked this up.

    So my recommendation is to find either a naturopath or integrative medicine doctor, or a chiropractor who does muscle testing - somebody besides traditional doctors who generally know very little about chronic fatigue syndrome and related illnesses. If it's your adrenals, they should be able to figure it out and help you. and if not, they can look into alternatives.

    A good website to find an integrative medicine doctor is acam.org - if you scroll over "health resources" at the top of the page, you'll see a link you can click on to find practitioners in your area.

    A good way to find a chiropractor who does muscle testing is to call Standard Process (find them on-line) customer service. Standard Process makes supplements used by many chiros, and they will give you the names of practitioners in your area who use their products.

    I do believe that without my chiro, I could very well have ended up bedridden. He also helped me with numerous digestive issues and I credit him with saving my gallbladder.

    Best wishes,

  3. MicheleK

    MicheleK Member


    So sorry to hear you are and have been bed bound. I lived like that totally flat on my back in the dark for a couple of years. It was so very hard. Anyone can put up with something for a short time, but when you have to live like that for a long time, it can be quite discouraging.

    You asked if someone bed bound has ever gotten better. The answer is yes! Many have. You can just one day wake up and be at a higher level of functioning and may not ever be able to figure out why it changed. The illness is so unpredictable, and usually that comes with a bad connotation, but it can also be a positive when you wake up improved.

    I did not live alone when I was in that state. I couldn't do anything at all. I lived for a time in a friend's bedroom when our house was found to have mold. That is what put me in that bed bound state, the mold.

    It's 2 years later and I have times like now, where I spend a lot of time in bed, but then I will get times where I can go out, drive and see my family. So hold on. Things can change in a blink. I hope they will change for you soon.

    I agree with Leah. If there are people who would help you, you could use the help. Sometimes we hate asking but if it means we might get a bit stronger due to the help, then that is the wise course of action. Tough on the pride, good for the body. Of course I don't know your situation or if there is anyone to help you. I hope there is. Hugs, MicheleK
  4. nleer

    nleer Member

    Yes I do have adrenal problems. I have taken prednisone for 45 years. A doctor let my pneumonia go when I was 13 so it cause irreversible damage. My adrenal cortex is not functioning any more so I don't know what can be done. I will as my integrative specialist. My sleep patterns are way off. I am up at night and fast asleep all day. My thyroid is low. I find that when I take higher doses of thyroid my respiratory problems are much better. It all seems to be hormone related. I also have hypopituitarism from the prednisone. I was wondering if stem cell therapy would help. But I don't know if I would have to take steriods for my COPD. I know how day to day this can change. WOW. I don't understand it. One day I'll be in bed all day and the next I can be up for maybe 3 hours then must rest. I have seemed to go from adrenal insufficiency to cushings syndrome. I need to have adrenals retested. I think when I changed my thyroid amount, my adrenals changed. Thank you all so very much for replying; you have given me hope which I haven't had in a long time. I will keep you posted.
  5. MicheleK

    MicheleK Member

    Wow! You have been on pregnisone that long eh? That's a very long time. Sounds like your entire hormone system is so out of whack. It's when everything like that goes haywire that we really realize that we are all just one big chemical soup, and if some things are left out of there is not enough of it, it throws so many other areas off. The hormone system especially. So sorry for all your suffering.

    Cushing Syndrom is tough, but with a good doctor and the exact right dose of cortosteroid, you can feel much better. Hugs, Michele
  6. Your post brought tears to my eyes... my heart goes out to you. I too have had days when I couldn't move (let alone, get out of bed) and I was all alone because my son was at school and my husband at work. As the hours ticked by and I had nothing to drink or eat and my bladder was about to pop, it was very scary and difficult beyond description. At those times, all I could do was pray and ask the Lord to give me strength to at least get to the bathroom. And every time, by some miracle, I would be able to get to the toilet which is only a few steps from my bed. But I would get dehydrated and my stomach would hurt from lack of food... so I can relate somewhat. Thankfully, I've never stayed in that state for weeks or months at a time. But I know that what Michele and Leah have said is true... it can change in an instant... so don't give up hope!

    You've already gotten some great advice here from these wonderful folks on this board. I like the idea of keeping water bottles and snacks by your bed, if you have enough strength to move your arms and manipulate things with your hands. And I do hope you have someone who can help get you to the doctor to get all your hormone levels checked.

    I sometimes wonder if home healthcare nurses could be available to us if we're incapacitated like you... couldn't hurt to ask the doc about it and explain your situation. Also, I don't know if you belong to a church, but sometimes churches will step in and help folks out (if they have a ministry for shut-ins). Just something to think about...

    Wish I had more help to offer... just know that others, like me, care... and that it CAN and DOES get better. We all have our highs and lows... Just so sorry you're having to go through a "low" right now. I will be praying for you... let us know how you're doing... God bless you!

    Blessings and Gentle Hugs,
  7. nleer

    nleer Member

    Thank you so much for your reply. God gives us the strength to get through anything! It is hard sometimes; but I hope my integrative doctors can help me. It will take time. I am so glad to have met everyone on this message board. I have no support and this makes me feel that I can get better too.
    God Bless and I hope you continue to have good days!!

  8. mujuer

    mujuer New Member

    I have been bedridden for 8 years now but only in the fall, winter and spring. My fibro is weather related. I also have Ankylosing Spondylitis. The inflammation we experience causes the heavy fatigue. The adrenal problems don't help either. I have had adrenal exhaustion twice and took supplement for many months and it got better but still I am always down for the count with the inflammation from these beasts.

    I looked into a caretaker. My insurance would cover it and someone to drive me to appt.s but I live too far out in the country. If you have coverage, just call them and ask. Hope this helps.
  9. tamsyn

    tamsyn Member

    I was bed ridden on and off over a period of several years. It was extremely lonely and depressing. But you must keep eating, drinking, and trying to find supplements or medications that help. Don't give up! It is now 14 months and counting since I was last stuck in bed so I know some level of recovery is possible. Please take care of yourself and also keep searching for supportive medical help! If possible, find reading material that is nurturing for you to have in bed, and use the time for writing journals too. This can be very therapeutic when you are stuck there. Mindfulness meditation is another positive way to pass time in bed. Warm wishes!
  10. zenouchy

    zenouchy Member

    First of all, just sending you lots of gentle hugs. I started doing the Guaifensin Protocal, and it's the only thing that did the trick to get me out of bed to start being able to eat healthy and then exercise. Definitely get that necessary bloodwork done and all things that you find comforting to you soul---mediation, books, music, plants, for example. Wayne Dyer helps me in terms of meditation, but there are many different kinds. Sending up a special prayer for you for much improved health. Soft hugs, Erika