A good DR. in Toronto

Discussion in 'Fibromyalgia Main Forum' started by CdnGirl, Jul 20, 2003.

  1. CdnGirl

    CdnGirl New Member

    My second referral was to Dr. Reynolds who works out of Toronto Western. The first Rhuemy specialist, I was referred to, was not educated enough and he was young. Dr. Reynold's is near retirement but very up to date in the medical world of FM.

    Hope this helps my fellow Torontonians and residents of Ontario.
  2. Jen F

    Jen F New Member

    I think I saw Dr. REynolds once and remember him being very nice, but since I had CFS and not FM he couldn't do much for me.

    Whereabouts in T.O. do you live? I'm near Duff & Eg.

    Have you ever seen Dr. Saul?

    I'm in the market for a good CFS GP.

    I don't prefer Dr. Kerr's office and Dr. Bested has a long waiting list I'm told and her office is very far for me anyways and I don't have car. Dr. Sherkey is off right now, and I see Dr. Stuart occasionally, but he also isn't close by nor up on the alternative treatments.

    Any suggestions?

    thanks, Cdngirl.

    Jen F
  3. CdnGirl

    CdnGirl New Member

    Personally I do not know of any special DR's for CFS. My GP I absolutely love. He is very knowledgeable (I say knowledgeable because he was 99% sure I had FM 3 years ago but knew that there wasn't a lot of DR's out there with tons of knowledge, so he was vigilant in sending me for test after test and keeping me sane until Dr. Reynold's finally confirmed what he thought.) I am due to see him on July 22nd, so I will ask him if he knows of one GOOD CFS in your area, or if he is familiar with Dr. Saul.

    I am in the Rouge Valley area, just on the Pickering side.

    Ciao for now,

    Kelly
    [This Message was Edited on 07/20/2003]
  4. Jen F

    Jen F New Member

    I'd appreciate you asking.

    Aren't you glad it's not 42 C out anymore?!!!

    I sure am.

    take care,

    T.O. Jen
  5. lucky

    lucky New Member

    If any of you find a good doctor treating CFS/FMS in Toronto or surrounding areas, I wish you luck, but may be one of you will be more successful than I have been over the past 20 yrs. and pls. let me know the name if you find one.
    Jen, I have seen Dr. Sherkey as I mentioned to you, but I don't know if I benefitted greatly from my visits, except the Ritalin (which I try to take in moderation and with my GP's supervision).
    There is a great need for doctors to treat us with these illnesses and may be we all should write to our Health Minister Clemens in Ontario.
    I have written to Anne McLellan and have been told that my complaint was being directed to her. Well, I wonder, but will remind them shortly.
    Take care, and Jen, I am sorry to read that you are going through such a rough time right now, I know how it feels and hope that you get through this difficult time.
    Sincerely, Lucky

    [This Message was Edited on 07/21/2003]
  6. tes

    tes New Member

    It's so nice to see so many torontians here on this board. I am from Toronto(North York area), and I was supposed to see Dr. Reynolds and with all the SARS scares going around, I decided to stay away from hospitals. I will be seeing a specialist by the name of Dr. Acker. He is in the Midland/Finch area. I have heard good things about Dr. Reynolds. I wish I had kept my appointment but I would probably have to wait another 6 months to see him. I am 32 and a mother of a 3 year old and a soon to be 5 year old. It is tough alot of days, but they keep me so busy, I try not to think of the pain. My GP stongly suspects that I have FM. I have been ill since 1994. Lots of pain and fatigue. Do you work, or stay home with your kids? Have you seen Dr. Reynolds yet or will it be your first appointment. What symptoms do you suffer with? Anyhow, keep me posted.

    Take care
  7. Jen F

    Jen F New Member

    what kind of specialist is he supposed to be?

    He's not a psychiatrist is he?

    I think I have heard of him, but can't place who has told me about him. Hopefully the bad association that immediately comes to mind is a different Acker or my mind completely misaligning info.

    Lucky - thanks for the good wishes. That really is nice to hear people care, esp when my parents don't seem to, or perhaps just can't handle it. I was talking to my Great Aunt today [funny, I'll be seeing the same neuro that she saw...for her facial pain] and she has a brother in a bad way in a home and she can't go visit him. She just can't take it, so I guess it's a human shortcoming, and my parents are displaying it. Anyhow, I just got off the phone with someone who will also be helping me in my search for more answers and help healing/with the pain. Gosh, this is a full time job! My apt is more of a disaster than usual...Don't know what the heck I will eat for breakie tomorrow, think I am out of healthy food. But, at least some groceries supposed to arrive around 8 pm from Grocery Gateway. Ever used them? ARe we supposed to tip the delivery people?

    Oh, wait...I think I have a pear and some quinoa. sounds like a meal to me :)

    J.
  8. CdnGirl

    CdnGirl New Member

    Hi there. I am in the Rouge Valley area and also a mother of a 3 1/2 and 5 year old. It took 2 1/2 years to diagnose this dd. Lucky forme my GP was 99.9% certain that I had FM so after I saw the first rhuemy that wasn't convinced that I had FM (because my lower extremeties didn't hurt) my GP thought he was full of s*** and send me to Dr. Reynold's. Dr. Reynold's was the answer. He explained FM to me after he diagnosed me. It all made sense.

    My symptons...hmmmm...where do I begin.

    - crepitis - aka "crunchy muscles" in my shoulders and neck. This causes me so much pain. My RMT has been trying since last Dec. to give me relieve and nothing has changed.
    - headaches/migraines
    - constant nausea
    - problems with heat
    - vertigo
    - itchy rashes
    - weight gain (in the past year 15 lbs, while working out 5 to 6 days per week)
    - more pain all over

    There is probably more, I just can't think of them right now.

    What are you suffering from?

  9. lucky

    lucky New Member

    would also be interested to know who Dr. Acker is. Luckily, I was diagnosed properly and never had to go and see a psychiatrist because one thought it was all in my head or I was a hypochondriac. Although some people would benefit to see somebody if the burden of coping with these illnesses are too great.
    I hope you are not starving and somebody brings you food. Yes, I have followed your stories with interest and can understand your feelings all too well. I am still running against the wall with even my own family at times with one difference, I learned over the years that some people are just not able to cope with all of my symptoms at times find it easier to just say nothing. However, since I have accepted this, I no longer get angry. But, if I really feel injustice, I certainly do not keep quiet. This is very hard to understand and takes time. However, since I am a parent and would do anything for my children, it is very difficult to understand why parents just stay away. This is what is hurting you the most and is not helping your healing process, the stress is just too great. I really hope it changes and somebody will understand that you are really ill and crying for HELP.
    I am not as sick as you are and my pain is secondary and I am able to get out every day and enjoy some of the nicer things in life luckily. But it was not always like this in previous years.
    If I would live closer, I would be able to give you a hand with shopping etc. I have heard about the grocery store on the web, hopefully they are not too expensive.
    And, as pointed out again, we all should get together and bombard our various Governments with e-mails regarding the poor quality of care all of us are getting.
    Take care, Jen, and hope you feel better, Lucky
    [This Message was Edited on 07/22/2003]
    [This Message was Edited on 07/22/2003]
  10. trixiedaisie

    trixiedaisie New Member

    You seemed very knowledgeable about docs in the gta area ... I was wondering if you knew any in the Mississauga area?

    I just moved here in February and have no family doc and am pretty positive I have cfs but the walk in clinic docs are looking at me like I'm faking and that is just adding to the stress of the situation. I'm tired of no one listening to me and just came across this site today.

    Thanks,
    trish - trixie3333@hotmail.com for anyone that has any information that might help me in my quest to find a doctor that will atleast consider cfs exists!
  11. Jen F

    Jen F New Member

    Lucky, thanks for your kind words. i'm slow getting going today so am sitting here at the computer when I should be s showering eating etc to get out to this Chinese acu guy...

    Trixie, no, don't know doc in mississauga, you could try asking M.e. Ontario if they know of one, but if you have $500 or some medical coverage I would suggest, since you truly believe you have CFS, to see if you can get in to see Dr. K. Kerr who is an MD who has a special interest in CFS,FM, MCS and she only takes those patients now, but you still have to have your own GP.

    When I saw her several years ago, I had to get a bunch of lab tests done not covered by OHIP, and that's still probably the case, hence the $500.

    She is near Yonge and St. Clair

    Don't know if she is taking any new p's and you probably will have to wait a month or two if so.

    If you go to her office, do not wear perfume, expect to possibly wait up to an hour, and she has been known to multitask - she is usually signing cheques, filing her nails, or eating her lunch when I see her, which hasn't been for some time.

    She has more of a natural approach so if you need drugs, you'd probably need to see someone else.

    Oh, and there are several forms and questionnaires for your first visit which maybe they could fax to you or mail to you ahead of time. Candida questionnaire, food diary type of stuff.

    let me know how it goes.

    jen F
  12. lucky

    lucky New Member

    I live in Mississauga (Port Credit) and know that there is no CFS doctor in this area. I am fortunate that my GP is educated enough to be able to treat me for the past 16 yrs., however, he is not a CFS/FMS specialist.
    There is a new doctor on Hurontario Street, (you can find her name on the website of the Ontario Medical Association, I believe) who is taking new patients. I have talked to her, and I know that she knows that CFS does exist. May be it is a good start, and also to get a lot of tests done which are necessary to rule out other illnesses.
    Hope this helps a little, sincerely, Lucky
  13. lucky

    lucky New Member

    I have heard about Dr. Kerr. But there is a similar doctor in Mississauga by the name of Dr. Zuzula who I have seen years ago who is treating environmental illnesses. Unfortunately, these doctors sometimes are not the greatest to treat CFS/FMS which I only learned after I got sicker and sicker and since that time I have lost all my trust in any alternative doctors.
    How is your pain and how are you doing with your reduced meds now? Hopefully you will be able to go out a little, because it would be so good for you.
    Take care and talk to you soon, Lucky
  14. CdnGirl

    CdnGirl New Member

    Hey there,

    I saw my GP and asked him if he had heard of a Dr. Saul. Yes he has but is none too thrilled with him. He said he would never refer patients to him (he wouldn't need to because he is a very caring, knowledgeable GP). Dr. Saul positions himself as a "pain specialist". Apparently he puts some "packages" together for his patients and these cost money. Anyhow, wish I could have given you better news but I really trust my GP and if he thinks Dr. Saul is doing lousy things to patients, I'd stay away.

    Also, I asked of any good CFS Dr.'s. My GP says that there is no "renowned" CFS dr's that he is aware of. No one specializes in just "CFS". You would have to just luck out and find a great GP that recognizes these conditions (or diseases).

    Sorry I couldn't be more helpful 8(

    Hope you got yourself some groceries and that you have had a better day today.

    Kelly
  15. Jen F

    Jen F New Member

    ...and he's diggin his claws into my shoulder and arm, the little b______.

    Acu today helped some, but the trip home carrying too much stuff and getting soaked and cold didn't. so, I'm back close to square one with my pain.

    I sort of look forward to boiling up the disgusting herbal concoction tomorrow and hope I can stomach it. If any of you have ever made yourself Chinese herbal tea you'll know what I'm talkin about. It's been a long time for me, so hopefully this mix won't be too gross. Supposedly will help with my pain, so....

    Grocery Gateway delivered my groceries this eve on time. They were very friendly on the phone and in person. 2 items were missing, so they have been credited to my account. I got a free paper. Woohoo, more paper to pile up, but the thought was nice. But, i still don't know...WAS THE POSTAL STRIKE AVERTED OR NOT??? WILL SOMEBODY PLEASE TELL ME? I DIDN'T CATCH THE NEWS. I asked 3 people on the street on my way home, and the grocery guy and nobody knew. I have to send in my VISA payment lickety split, but not if there's a postal strike...

    I do recommend G.G. but beware that if an item is not in stock, it won't come...which can be rather a bad surprise if you were planning to cook with it, and also check your order carefully for mistakes, like the 2 missing items I was charged for. I got a couple of small freebies which I gather they do sometimes.

    Why, oh, why can I not just take some Tylenol 3...like other people....I'm tired of all of God's "special plans" for me. "I'm not worthy" [think mike myers]. Really.

    somewhat tongue in cheek,

    jen
  16. trixiedaisie

    trixiedaisie New Member

    thanks a bunch for the info ... i've had a tough time getting any information until i found this site and this message board.

    thanks,
    trixie
  17. aching

    aching New Member

    ....I just heard.I'm west of Mississauga and it's slim pickins for good Dr.s here also.
    Piper
  18. lucky

    lucky New Member

    I don't know if you are interested in the GP on Hurontario Street (Highway 10 South) in Mississauga.
    Her name is: Dr. P. Lorraine Cytowski
    Family Physician
    1471 Hurontario Street
    Mississauga, ON L5G 3H5
    Tel. (905) 274-1475.
    Not knowing where you live in Mississauga, I don't know if this will be helpful.
    But as mentioned, there are no known specialists in the GTA. I was diagnosed by a great one who had the illness herself 15 yrs. ago, and she had to close her office because of her illness.
    However, there is an environmental health clinic at Women's College Hospital who will be of some help. They will give you a very thorough examinition with all kinds of blood tests and probably and if nothing else can give you a proper diagnosis and some advice.
    Take care, and if I can be of any help, pls. let me know, Lucky


    [This Message was Edited on 07/25/2003]
  19. MissRachel

    MissRachel New Member

    Hi,

    I just found a great DR in Ottawa. He is a FM specialist. Not only does he treat it, he has FM too. He is close to retirement so I will be look for a new FM DR in the near future.

    Glad you gals are well taken care of in Toronto.

    Rachel