A good read from another board

Discussion in 'Fibromyalgia Main Forum' started by singingirl, Jul 21, 2006.

  1. singingirl

    singingirl New Member

    Hi. .
    My Name is Fibromyalgia, and I'm YOUR Invisible Chronic

    Illness. I am now velcro'ed

    to you for life. Others around you can't see me or hear me,

    but YOUR body feels me. I can attack you anywhere and

    anyhow I please. I can cause severe pain or, if I'm in a

    good mood, I can just cause you to ache all over. Remember

    when you and Energy ran around together and had fun?

    I took Energy from you, and gave you Exhaustion. Try to

    have fun now! I also took Good Sleep from you and, in its

    place, gave you Brain Fog. I can make you tremble

    internally or make you feel cold or hot when everyone else

    feels normal. Oh, yeah, I can make you feel anxious or

    depressed, too. If you have something planned, or are

    looking forward to

    a great day, I can take that away, too.

    You didn't ask for me. I chose you for various reasons:

    That virus you had that you never recovered from, or that

    car accident, or maybe it was the years of abuse and

    trauma. Well, anyway, I'm here to stay! I hear you're going

    to see a doctor who can "get rid" of me. I'm rolling on the

    floor, laughing. Just try. You will have to go to many,

    many doctors until you find one who even BELIEVES I EXIST.

    You will be put on pain pills, sleeping pills,

    energy pills, told you are suffering from anxiety or

    depression, given a TENs unit, get massaged, told if you

    just sleep and exercise more I will go away, told to think

    positive, poked, prodded, and MOST OF ALL, laughed at when

    you tell the doctor I am debilitating.

    Your family, friends and co-workers will all listen to you

    until they just get tired of hearing about how I make you

    feel, and that I'm a real disease. Some of they will say

    things like "Oh, you are just having a bad day" or "Well,

    remember, you can't do the things you use to do 20 YEARS

    ago", not hearing that you said 20 DAYS ago. Some will just

    start talking behind your back, while you slowly feel that

    you are losing your dignity trying to make them understand,

    especially when you are in the middle of a conversation

    with a "Normal" person, and can't remember what you were

    going to say next! Eventually, most of them will be like all the doctors who say "It's All In Your Head".

    In closing, (I was hoping that I kept this part a

    secret), but I guess you already found out. . . the ONLY

    place you will get any support and understanding in

    dealing with me is

    with Other People With Fibromyalgia.
  2. carebelle

    carebelle New Member

    This made me want to cry .Sounds like a stocker no matter what ,it finds you. It kills you body, mind and spirit . One at a time .Just as scary isn't it?

    Only through prayer and faith have I been putting my life back together. This boards understanding and knowing they have been threw some of the same things helps me know I am not alone.

  3. 69mach1

    69mach1 New Member

    i didn't want to cry i wanted to giggle a bit because i know the feeling...

    we all need to realize we are not the only ones on this earth w/this illness.

  4. tata1580

    tata1580 New Member

    pisses me off!!! Maybe I should read this every day..to give me fuel not to let this DD win!!!
  5. carebelle

    carebelle New Member

  6. 1975jet

    1975jet New Member

    Isn't it sad that people shun you away- friends and family and even your doctors.... I have learned to give compassion especially if you have not lived in their shoes.

    It reminds me of years ago- people who were depressed and had mental disorders were locked away and abused. People with leprosy were sent away to an island. People with epilepsy were thought to be possessed by demons and locked away in attics. Children with polio were sent to institutions and shunned and abused. The list could go on. You would think by now society had evolved but no where have I seen this happen.

    Yes, thank god there are groups like this to help and listen and that understand, otherwise we would be put away like the people of the past with disorders that they had no control over...
  7. carebelle

    carebelle New Member

    This is really touching
  8. ulala

    ulala New Member

    Maybe soon there will be more that can be written like they found a cure and the elusive FM will go running for cover like the cock roaches run from Raid!
  9. 1975jet

    1975jet New Member

    Hayley, sorry to hear that you are not well today. You know it could also be that dreadful period we are blessed with and with everything else going on in your bod-

    I had very bad periods for almost 2 years, last year it was so bad I could not bare it anymore- I lived on the toliet and went through everything when I was off- The pain in my pelvis and other areas felt like someone was stabbing me- finally broke down to see my GYN and he scheduled me for a Nova Sure ablation- which needless to say I have not had the pain there & knock on wood have not had a period since end of last July- They told me if I went any further I could have had to have blood transfusion. I was glad not to have a hysterectomy, because of the affects that alone can have- Even though I told my doctor to take it all out!!!!

    You know our age, are you beginning premenopause? I was and never want to go through that again. Of, course there are no guarantees - You take care of yourself, lady...

  10. singingirl

    singingirl New Member

    There are several people I would like to send this too also, if I had the guts!!!

[ advertisement ]