A Newbie's Intro and other *Stuff* + Questions.....LOTS!

Discussion in 'Fibromyalgia Main Forum' started by RhainyC, Aug 4, 2003.

  1. RhainyC

    RhainyC New Member

    Greetings All,

    I am brand new here, but did some reading of other posts to kind of get a feel for the boards.

    We live in a tiny rural area of the Northwestern most point in Washington State, a little hamlet called Blaine. I am 42 y/o Mom with a wonderful loving and supportive husband, and a 10 y/o son. I have all of the standard symptoms of FMS, but have not had the Tender Point Exam yet...I am trying to find a doc within a few hours drive.

    I few years ago, I was Dx'd with Severe Degenerative spinal problems. I also was DX'd within the last 4 years with Major Depression, Sleep Apnea and Irritable Bowel Syndrome. I have a couple of pretty strong and 1 DEADLY allergies. I am deathly allergic to Bee stings. (yes I carry an Epi-pen with me 24/7)

    I began working with a Therapist who's specialty is to work with people who have Chronic Illness/Diseases for my depression, mainly because of the pain my back causes me. I felt it would be a good thing to have a therapist who would understand my *Bad Back Days*.

    She was going through a quite thorough intake with me, and we were discussing all of my symptoms. She asked extensively about the apnea. Then she said she had been thinking my fatigue might be CFS, but that because of the apnea, she said that could not be the DX. We went over more things and she asked me more questions about physical symptoms...and in the end told me *I am pretty certain you have FMS* But she told me I should get the DX confirmed by a specialist who does the Tender Point Exams.

    Now comes all the questions... ;-)

    What kind of doctors should I begin trying to find one who does the TPE? (Neurologists, Rheumatologists, ???)

    How can I help myself in the mean time to be more comfortable with the physical pain in the meantime?
    (massage, heat, ice, OTC meds/supplements?)


    Anyone have anything they think I should know in order to help me deal with this DX?

    Ok..this was long enough LOL I tend to get wordy when nervious...even in R/L

    I am glad to be here and hope to be active, though admittedly I do not post anything close to a lot...it is just my nature. :)

    Thanks for any and all input!

    Blessings,
    RhainyC
  2. EZBRUZR

    EZBRUZR New Member

    Hello Rhainy,I'm lisa.You have landed at an excellent source of information! I have worked with both DRs.I have been w/Ner.since 99/he NOW wants me 2 C Rheumy.Osteopath,as well as Chrios,sumthin else too,but it's in fog rite now,also con treat.I benefit GREATLY from heat,massage pressure points,stress reduction helps my pain as well.I stretch ALOT,it hurts,i get dizzy,but I do find a tad more comfort.We R all Different,many different treatments,all sorts of combos.Many people here will help you discover what is best for you! Cool HuH? Much of this site increases knowledge empowerment.That's all i kin think of,hope you find many suggestions! Peace,lisa :)
  3. EZBRUZR

    EZBRUZR New Member

    BUMPING!!!!
  4. sumbuni

    sumbuni New Member

    just a jot to say hello, and welcome aboard. I'm new too, cfids is my dx and sleep is a problem for me....i can sleep 24 hrs and wake up feeling just as pooped as when i went to sleep...bed covers are a know, which i don't remember doing, but obviously i do sleep awfully restlessly...too many symps to talk about, just wanted to say heloo, and hang in there. Your're about to meet some wonderful caring sensive and compasionate people here. They are aces in my book, and must be one of those Blessings God sends us when we need someone.

    Sumbuni
  5. Shirl

    Shirl New Member

    Hi Rhainy, welcome to our world. Just stopped to welcome you this evening, am suffering big time right now with lower back pain (think I pulled a muscle) its not FM pain, that I have been getting for over twenty years and can distinguish between what pain is what these days!

    Again,welcome to the board, and you will meet some great, helpful people here.

    Shalom, Shirl
  6. RhainyC

    RhainyC New Member

    Thanks to everyone for hte welcome. I will mainly be reading and asking hte odd question here and there until, I have done my research on FMS itself. I have found many very informative sites, mostly medical as well as a feew *foundations or organization* and am buried in text and pictures at the moment.

    As my knowledge base grows, so will the questions....just a fair warning! :)

    Thanks for making be feel welcome.

    Blessings,
    RhainyC
  7. BILLCAMO

    BILLCAMO New Member

    FROM ANOTHER WA. ST. RESIDENT....... YOU HAVE FOUND THE BEST SITE I HAVE EVER FOUND RE: THESE DD'S.!!!!!!!!!!! IT IS MY OPINION THAT SLEEP APNEA IS CAUSED BY THESE DD'S. UNFORTUNATELY , MOST DRS. IN THIS STATE ARE UNINFORMED & TEND TO BELIEVE THE REVERSE IS TRUE........ ANYWAY, WELCOME !!!!! BILLCAMO.
  8. RhainyC

    RhainyC New Member

    I am WAaaaaaaaY up in Blaine....where are you?

    I am presently seeking a medical Doc to DX my Fibro. My Therapist has already said she is almost 100% sure that is what is causing many of my problems.

    Glad to see another Washingtonian!

    Blessings,
    RhainyC