A poem called 'A day in the life of....'

Discussion in 'Fibromyalgia Main Forum' started by SusieQ13, May 24, 2006.

  1. SusieQ13

    SusieQ13 New Member

    Hi everyone. I like writing poetry and for some reason, I felt compelled to write one about my illness and I wanted to share it with like-minded people out there. Hope you like it. It's fairly long but stick with it.


    Life’s a real b**ch
    When you constantly twitch
    Please let my muscles be still
    A good day? A bad day?
    Well what can I say
    I don’t want to be chronically ill

    A concoction of meds
    Helps me out of my bed
    But I know I will suffer each day
    A brave face put on
    So nothing looks wrong
    Who am I kidding anyway?

    Good morning Mum
    Says my 6 year old son
    How are you feeling today?
    I’m fine sweetheart
    And I lie from the start
    of another CFS day

    So I get up out bed
    With a really bad head
    And the usual aches and pains
    I’m dizzy and shaky
    Which is getting worse lately
    Especially when it rains!

    After I’ve showered
    Breakfast devoured
    We walk to school really slow
    Other mothers I meet
    Should be more discreet
    I can hear what you’re saying you know!

    Then reality kicks in
    Like a boot in the shin
    As my legs start to shake as I walk
    The stroll back from school
    Makes me look like a fool
    I puff and I pant as I talk

    So I crash on the couch
    And try not to slouch
    To recover from what I’ve just done
    I watch daytime tele
    whilst feeding my belly
    CFS is pain in the bum

    Fatigue Rating eight
    Is so hard to take
    So what’s my game plan today?
    What’s next on the list?
    Is there something I’ve missed?
    Is it time to work, rest or play?

    Where does the time go?
    Why can’t it go slow?
    It’s time to pick up my son
    So there’s no rest for me
    As it’s quarter past three
    One more thing that’s just gotta be done!

    The children stream out
    While the teacher then shouts
    ‘No pushing - please take your time’
    So I pick up my nipper
    And he’s sporting a sticker
    For writing a really cool rhyme

    He reads it out loud
    All proper and proud
    And a tear wells up in my eye
    ‘cause it’s all about me
    And my illness you see
    It’s really hard not to cry

    So from somewhere within
    I find strength to begin
    the walk back home once again
    We reach the front door
    I can’t take this no more
    Is this ever going to end?

    My son understands
    I do what I can
    But today I have to lie down
    I watch as he plays
    And hear what he says
    whilst my head frantically pounds

    Wheels on the drive
    Means help has arrived
    And Hubby can lighten my load
    As he cooks our tea
    he listens to me
    As I tell him my worries and woes

    Well it’s time for bed
    So rest your head
    And remember to switch off the light
    Sweet dreams abound
    Safe and sound
    And don’t let the bed bugs bite!

    Ahhh - peace at last
    Time goes so fast
    But it’s Mummy and Daddy’s time now
    An hour or so
    When we’re not on the go
    To relax and settle ourselves down

    Now my bed is calling
    and I feel myself falling
    Into a relaxed state of mind
    So I get into bed
    No thoughts in head
    A way to sleep I MUST find

    So I lay and I lay
    ‘til night turns to day
    Insomnia’s no friend of mine
    So I toss and I turn
    And I’m starting to learn
    That it’s going to take a long time

    Be patient they say
    It will go away
    But you’re in this for the long haul
    So stick to your plan
    You know that you can
    And smash your way through that wall


    A poem by SusieQ - dedicated to everyone who faces a daily struggle to overcome any disabling illness




  2. skyeone

    skyeone New Member

    That sums it up to perfection. Congradulations on your poem and thank you so much for posting it!!

    Skye

    Just so you know, I run a blog on another site, I'm going to copy this and post it there with all due credit going to you of course!

    very very gentle HUGS

    Skye
  3. dellalvn

    dellalvn New Member

    You are very artistic. I will be sharing your poem with everyone. Thanx so much.
    Della
  4. rockgor

    rockgor Well-Known Member



    Your rhyme scheme was cute.
    Your verse was a hoot.
    I read all the way to the end.

    You brightened my day.
    What more can I say?
    Best regards from Rockgor who's your friend.
  5. Shannonsparkles

    Shannonsparkles New Member

    It was sad about how you have to lie to get through a day because no one can handle this. You are being so strong though, and helping us too. Thanks for sharing!
    (( )) Shannon