a question relating to tender points

Discussion in 'Fibromyalgia Main Forum' started by kirsty28, Sep 1, 2005.

  1. kirsty28

    kirsty28 New Member

    hello,
    i am 30 yrs old and been told i have fibro as they can't find anything else wrong..I have been suffering for 4 years with this puzzling condition altho i am still not convinced...it started in neck and as the years have gone by goes to different places all over. generally one place at a time thank god but so painful and raw...i can then (just when i think i can take no more)seem to improve and feel much better for no real reason...this is bliss but it can come back whenever it feels like it and knocK me for 6 again. I don't take anything as nothing helps but have to wait till it goes but this can be days/weeks.
    when i sleep i'm painfree but when i get up the pain kicks in where it is at that particular time.
    My QUESTION IS DOES THIS SOUND FAMILIAR OF FIBRO AND CAN YOU HAVE TENDER SPOTS THAT FEEL LIKE YOU ARE BRUISED IN OTHER PLACES NOT ON THE TENDER POINTS CHART? I HAVE THEM BUT WHEN I CHECK THE CHART THEY ARE NOT IN THE PLACES SHOWN.(RIGHT NOW FRONT OF CALF..) i AM TRYING TO ACCEPT FIBRO ,I HAVE SEEN S9O MANY DOCS BUT WHEN I READ UP ALOT DOES NOT APPLY...THE PAIN CAN REALLY BE BAD AND GO ON FOR AGES. THANKS IF YOU CAN READ THIS AND SHED SOME LIGHT.KIRSTY U.K
  2. quigmoore

    quigmoore New Member

    Kirsty,

    Yes, I have experienced the fibropain moving into different places on my body. The trigger points are always painful. The other pain can involve muscle groups (sometimes where I've had a previous injury) and other times goes to places simply out of the blue. Example, for about 1-1/2 years I had one finger that was so sore that I couldn't stand to touch it, then one day it was gone. I often have pain in muscle groups on my back, hips, hands etc.

    Over time, a person gets so that they don't notice the pain unless it causes muscles to seize up. I am never pain free and simply can't allow myself to dwell on it. Yet, a person needs to be sensitive to it if it can be treated. Sometimes I use Advil for my muscles. It helps quite a bit. I have slept on a heating pad for years because the pain will keep you awake. I hate taking medications, so sometimes the heating pad takes enough of the edge off to allow sleep to come.

    I don't mean to discourage you, but pain is part of the fibromyalgia. I feel blessed to not be incapacitated by it. I've seen people who can't walk or work because of it.

    Quigmoore
  3. 123sandra

    123sandra New Member

    Yes it's real. How long before you were told?
    8yrs for me. Had it 10yrs poss 15yrs. I get loads of pain in my head, neck, shoulders, back and arms. Legs bother me if I walk a lot so I try not to which is hard because I don't drive, mind you, that's a good thing really because I'm not safe pushing the baby in the pram!

    Do you feel bruised even though there's no bruise there?
    Can you sleep at night then wake up shattered and ready for bed again within an hour!!
    Do you feel angry that you've been told you've got something that's an invisible disease and perhaps not cureable? Have you irritable bowels?
    There are many other symtoms too numerous to mention.
    You are not abnormal! You are like almost everyone on this board. You are a fibromyalgia sufferer. My specialist broke it down for me; FIBRO= fibrus, MY= muscle, ALGIA=Pain
    You are normal on this site! You now have to accept it. That's the hard part especially if like me you were once a fit person. Hope I've not depressed you anymore than you probably were. You will have a lot of support here.
    LOL Sandra( England)
  4. qnjamie

    qnjamie New Member

    Tenderpoint are telling of FM, but triggerpoints are telling of Chronic Myofascia Pain Syn.
    They are often overlapped or confused.
    There is a book that is very telling of the difference.
    "Fibromyalgia and Chronic Myofascia Pain- The Survivors Manual" by Devin Starlanyl

    The reason I tell you this is because triggerpoints can create satellite triggerpoints which would not be in a normal tenderpoint spot.
  5. kirsty28

    kirsty28 New Member

    i can always rely on someone to answer on here...thanks for all your replies...love k xx
  6. Jo29

    Jo29 New Member

    I am going to try to learn something here along with you. I thought tender points and trigger points were the same thing.

    So (let me get this straight) trigger points are the ones on the chart and tender points can be anywhere?

    I love this board. I learn something everyday.

    If I have this wrong, please let me know. Thanks

    Jo
  7. Rose_Red

    Rose_Red New Member

    It sure sounds like fibro and myofascial pain syndrome. I just about panicked the first time I felt traveling pain. It didn't make sense. If you touched near my knee - my lower calf would hurt terribly. The myofascia is the connective tissue, ligaments, tendons, the 'skin' that wraps the muscle tissue, if you will. If you touch one end of the myofascia it can travel the legnth and width of it to the other end.

    FMS has been called the irritable everything disorder. One of it's more frustating aspects is that it changes on a consistant basis.

    There are medications that can help. You need an Rx for most of them tho. I'm not familiar with the health care system in the UK.

    I wish you he best,

    -Michele