Discussion in 'Fibromyalgia Main Forum' started by Betty50victor, Mar 21, 2006.

  1. Betty50victor

    Betty50victor New Member

    I have problems (fibro pretty bad) with hips and legs. Sometimes legs and top and sides of knees ache BUT Nothing Like Tonite! I went and layed down and they really started hurting real bad. Have never had pain like that before. Got up about 20min. later and it eased a little. Am just scared to try to lay down again. I have noticed, now that I think about it, my legs aching when I layed down but no where near as bad as tonite.
    Anyone here have anything like this happen? Think it's just the fibro? I hate to go to doc and have him just say "Well it's just another fibro thing". I get tired of hearing that. Not to offend anyone, but, that's Kaiser Docs. for ya.
    I'm appreciate any response from you and even from a doctor if there's one who reads this.
    Thank You, Betty/Army Mom
  2. PVLady

    PVLady New Member

    If you have a doctor who always says "it is just another fibro thing", you need to change doctors. Really....

    Do you have arthritis in your knees? Could you have a circulation problem in you legs?

    Any doctor needs to rule out other illnesses before telling you it is "another fibro thing".

    Meaning lab work etc. Maybe you need to see a Rheumatologist. Only you can stand up for yourself and if this doctor doesn't see you as anything other than "another fibro patient", you are wasting your time and money with him.

    If there were something life threatening wrong with you, this is not the type of doctor you want.

  3. ckzim

    ckzim New Member

    pvlady is have to stand up for yourself.

    My doctor wanted to blame everything on Fibro...until I started asking about an x-ray for this?, or maybe a mri for that? he would agree. (In your case ask about knee x-ray or maybe the lowers back or hips.
    I explained to him, that I wanted to elimiate some things to see just how much of my pain was actually Fibro.

    A year later, I'm still in the I'm getting there.

    I have the same burning as you do in the knees and legs, and it gets really bad when I lay down.

    I just got the written report back and I was amazed at the damage I have...I have DDD (degenerative Disc Disease) C2/3 C 3/4 C4/5 C 5/6 C 6/7 and T1 that's not Fibro.

    He said my neck look like that of an 80 year old woman...I feel like it I'm 47. I finally had a neck fusion and shoulder replacement...but the leg pain is still there, so now I'm waiting on even more x ray results..

    What ever you not settle for it's just Fibro...he has no way of knowing that.

    Hoping the best for you.
  4. Cromwell

    Cromwell New Member

    WHEN I am in a bad flare every time I lay down, my legs start burning and aching so badly I think I must have polio! Just to be on the safe side, ask for a doppler scan of your legs to check for deep vein stuff. I had this done to rule out. Fortunately, the worse of my last flare seems over and I am back to "just" regular, irritating pain and stiffness now.

    I know how scary and awful this feels. Go and have it checked and insist on the Doppler.

    Love Anne C
  5. mme_curie68

    mme_curie68 New Member

    I found my rheumatologist to be helpful because he is a specialist in big-picture evaluation of many symptoms. He was the final link in the chain that put a name to the madness - FM and osteoarthritis.

    I referred myself to him, which I am fortunate enough to be able to do in my healthcare system. God only knows when anybody else would have thought of it. Everyone was too busy trying to rule out localized problems.

    My internal medicine doctor is an okay referee but so many docs out there are specialized to one area that they have tunnel vision. I found this extremely frustrating.

    Unfortunately we live in a society where WE have to be our own best medical advocate when something isn't right.

    I get "the burn" in my shoulders and upper back. Since my most recent flare (brought on by all the stress with these doctors) I have had it every day. I find that moist heat with this really cool rice/lavender/flax seed heating pad in the microwave helps as does the Flexeral I take before bed.

    Leg pain can be from many things, some of them are:
    Deep Vein Thrombosis - blood clots in the legs, diagnosed by ultrasound
    Sciatic nerve compression - xray/MRI for dx
    Calcium deficiency - muscle cramps
    Gout - build up of uric acid crystals in the feet/legs

    in addition to fibro.

    The most serious is DVT - because if a clot dislodges and travels in your vascular system it can cause heart attack/respiratory arrest.

    Hope this helps.
    Madame Curie
  6. Betty50victor

    Betty50victor New Member

    I thank you all for responding to my message/problem.
    Gotta get some coffee going. I'll come back later and respond to your messages. Geeez... What would we all do without each other?... Gentle hugs:} Betty

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