After a night in the ER

Discussion in 'Fibromyalgia Main Forum' started by lisadot, Oct 3, 2005.

  1. lisadot

    lisadot New Member

    I'm so fricken tired. I didn't sleep a wink last night. My stomach has been on fire. My lab results from the doctor's visit were totally normal, but then what I had done last night proved they're not normal.

    I was dying in pain. Smack in the middle, right below my chest and going to the right . I figured another bought of gastritis, but my doc says it looks like I have gallstones or something similar. I drank this nasty cocktail with xylocaine in it. Funny, it didn't help much, if at all. Just tasted gross. Mayber it's because I have stones in there.

    I was to have my ultrasounds tomorrow morning, but now I learn I need this MRCP test. Anyone else have it done? Looks like a 10 minute special MRI for my gallbladder, liver, and pancreas. Oh joy.

    My arm looks like I was beaten where this guy drew the blood last night. Totally nasty, and I swear it almost looks like I'm getting an infection.

    My eyes are so heavy as I type this. I guess it's the tramadol. Maybe I'll sleep tonight.

    On the bright side, the new asst I hired seems pretty sharp. Good, she may need to be. I don't want to have to go under the knife.

    I'm almost too tired to be scared right now.


    I'm heading home from work. I have to rearrange this stuff with the hospital.

    lisadot
  2. Leenerbups

    Leenerbups New Member

    Oh my gosh, I'm going through the same thing. Only my ER visit was over a month ago. I was in for 3 days. They said it was pancreatitis, and removed my gallbladder.

    However, the pain is still there. I am going to a specialist to see if it is chronic pancreatitis.

    I have since learned that autoimmune diseases can cause this HORRIBLE disease.

    I had a MRCP just a few weeks ago, it's just like an MRI.

  3. lisadot

    lisadot New Member

    Sorry to hear you've had abdominal pain as well. It sucks. Never mind all the other junk we have to deal with. I'm going to read up about the auto immune factor. Honestly, there is so much controversy with this FM diagnosis.

    Did you have the MRCP with contrast? Last time I had contrast I was sick as a dog. I pray this isn't the same. I'm going to have to go back to work after all these tests. My new asst. just started today, and I had to forewarn her I was sick. Not fun. Last night I ate a really rich chocolate cake, and the time last week, I'd eaten some enchilladas. I was blaming the cucumbers. Hmmm...

    The ER was pretty worthless. I asked for copies of my labs, and faxed them to my doc. He ordered the Ultrasound last Friday, but after seeing my recent labs he ordered the MCRP. He was surprised the hospital didn't do any tests.

    It's so weird. My test results were totally normal Friday, and by last night I had a much different picture. He thinks it's a gallbladder issue, but also mentioned pancreas. Here I am a nurse, and really have to relook at Anatomy.I know the gallbladder can house nasty stones, and they hurt to pass through the bile ducts, but honestly I can't recall exactly how the pancreas is involved. Kinda ashamed to admit it, but that's the truth.

    I'm sorry you aren't feeling better after your operation. I know sometimes they can miss stones. I hope the other doc you are going to see can help.

    I was just reading one of your other posts - about sleep problems. I do hope you are sleeping better. I used to wake up at night with panic attacks (or at least a racing heart), and I couldn't fall back asleep. A shrink I see about it put me on Trazadone. It helps to keep me asleep - unless of course my DH has a bad night with his PLMS.Some people can have bad reactions to Klonopin.

    Take care,

    lisadot
  4. JLH

    JLH New Member

    I'm sorry, lisadot, to hear that you had to spend time in the ER.

    I had gallstones years ago and had to have my gallbladder out. It was done the "old fashioned" way - with the 12" long incision up my right side! My daughter had hers out a couple years ago and it was done laproscopically and she got along great! She came home to 3 and 4 year olds and managed--so that tells you how well you get along--after a couple days!!

    I had an ultrasound for diagnosis, but I'm not familiar with the other test you mentioned.

    It looks like you hired your new assistant just in time!! LOL

    Well, hope you got some sleep or at least a little rest!

    Hugs,
    Janet
  5. Mikie

    Mikie Moderator

    My prayers are with you; I hope you can get this straightened out.

    Love, Mikie
  6. rileyearl

    rileyearl New Member

    Doesn't it just feel like "what next?" I'm so sorry you feel so bad and had to experience the ER first hand. Being a nurse there, I hope you get extra special treatment.

    I wish you warm days on a beach with no pain--only sunrises and sunsets to interrupt the day.

    Take care,

    Francie
  7. Rosiebud

    Rosiebud New Member

    that you've had such a bad time.

    I had many really bad gallbladder attacks before getting it out a year ago and problems continued for months afterwards.

    I still have to be careful of what I eat, cheese, fatty foods all bring it on. I had to wait 9 months on the op (waiting lists in UK) and gallbladder was in a pretty bad way. Maybe if I'd had op sooner, I wouldnt have ongoing problems.

    The operation itself wasnt bad, I suffered from the aneasthetic more.

    I hope it goes well for you.

    love
    Rosie


    [This Message was Edited on 10/04/2005]
  8. Leenerbups

    Leenerbups New Member

    It really is scary, if it is the pancreas. I am on another forum , a yahoo group, so if is your pancreas, let me know,. They have helped me a lot.

    The problem is, not many doctors or GI's are specialized with the pancreas, it is relatively rare for it to go bad. So many people remain undiagnosed with it for years and years.

    I first had the cat scan with contrast, and like you, was so sick I thought I was going to die.I never reacted that way to dyes and they think it was because of the pancreas.

    So I begged not to have the contrast drink with my MRCP. The MRCP came up normal except for a small cyst in the pancreas. On the other board I am on, they say it is very common for those tests to come up normal for those who have pancreatitis caused by virus, auto immune, etc. My labwork even comes out normal.

    I have extreme fatigue too, which they say is always a problem with CP. You can become anemic with it. I learned all of this on that other site, because the doctors don't know jack.


    MY ER visit was pretty worthless too. My GI was also surprised of what they DID'NT do for me.

    Come to the forum I am on and/or begin to look for a GI who specailizes in the pancreas. They are hard to find and the wait is long,many people fly to other states to see one, so if you start now, it would be for the best. And if it turns out not to be the pancreas, you can count your blessings and cancel the appointment.

    It is really important to eat low/non fat wit this and avoid caffiene.

    Take care


    [This Message was Edited on 10/04/2005]
    [This Message was Edited on 10/04/2005]
  9. lisadot

    lisadot New Member

    I am at work, for about 30 minutes, when I have to go right back to the hospital. I have a horrible headache - out of anxiety and no food.

    I am so scared it might be my pancreas. My grandmother died of pancreatic cancer when I was a teen. Sh*t! I'm scared I even put that in writing.

    I saw my abdominal ultrasound on the screen and didn't see any stones - neither did the tech, but maybe she's no expert either. I have total fear of fear. I want to cry, but I'm at work.

    I have to have the MRCP in less than an hour. The doctor's office told them I was allergic to the dye. Please God, let me get through this test alright, and find out it's only my gallbladder, and nothing more serious. I don't know how I will wait for the results. My stomach is already on fire.

    lisadot

  10. Leenerbups

    Leenerbups New Member

    My heart goes out to you hon, I've been right were you are in the fear and anxiety department for 2 months and still in it.

    I 'm pulling for you. Keep us updated.
  11. razorqueen

    razorqueen Member

    for u too, lisadot!
    Raz
  12. heavenlyanimals

    heavenlyanimals New Member

    I WILL PRAY FOR YOU BECAUSE I AM TERRIFIED OF THE HOSPITALS BECAUSE LIKE YOU TO I AM ALLERGIC TO THE DYE AND MOST MEDICATIONS. SO I GET SCARED WHEN I GET SO BAD SICK ,THINKING I AM GOING TO HAVE TO GO TO THE HOSPITAL AND HAVE TO TAKE MEDS.SO MOST OF THE TIME I SUFFER WITH THE PAIN. BUT I GOT SO BAD A FEW MONTHS AGO THAT I THOUGHT I WAS HAVING A HEARTATTACK AND WENT TO THE ER AND THEY DID A HEART CATH . THEY USED SOME SPECIAL DYE THAT I DID NOT HAVE A REACTION TO BUT DID GET A LITTLE NAUSEA. MY HEART WAS FINE . BUT AFTER THEY GAVE ME THREE NITROS FOR THE PAIN IN THE ER IT GOT BETTER. I WAS TOLD FROM THE GASTRO DOC THAT IT WAS THE FIBRO CAUSING THE PAIN. THAT IT WAS AFFECTING THE MUSCLE IN THE CHEST. I AM HAVING A FLARE UP OF IT NOW. I GOT ON TO WRITE AND SEE WHAT ANYONE ELSE WITH THIS PAIN DOES FOR IT . MINE IS RIGHT IN THE MIDDLE OF MY CHEST AT THE TOP OF THE STOMACH. I HAVE TO CUT ALL MY SPORT BRAS BECAUSE I CAN NOT STAND ANYTHING TOUCHING THAT AREA WHEN IT IS FLARED UP. THE PAIN IS AWFUL. I WOULD HAVE RATHER HURT ANYWHERE THAN THERE. I SURE WILL BE PRAYING FOR YOU MY THOUGHT S ARE WITH YOU YOU BECAUSE JUST LIKE I SAID I KNOW HOW SCARED YOU ARE .LET US KNOW HOW YOU ARE
  13. lisadot

    lisadot New Member

    Well, I had the MRCP, and it was easy. They used no dye. It was more like being in this close tunnel and asked to hold my breath numerous times, while these noises went off and on. No pain, or anything, thank goodness.

    When I was leaving the radiology dept, my mother showed up. I was surprised. I'm glad to know she cares.

    I left my gastro doc's office a message during lunch. I told them I was done with the tests, and rapidly becoming a basketcase waiting for the results. I asked them to please have the doc call me as soon as he knows anything.

    I think this part is the worst. And right now I am thinking about all those times, due to depression, I didn't want to be of this earth anymore. What an idiot I was. I want to live! I don't want to be sick. Please Lord, let pancreatitis be due to gallstones, and nothing more.

    lisadot
  14. Leenerbups

    Leenerbups New Member

    I could sign my name to your posts! I also blame myself for this getting so bad. I gave up, and went into a depression and really negative thinking. I stopped taking care of myself and taking things to keep the FMS/CFS not only from getting worse, but getting better. They also said stress affects the pancreas and for several years (and still) I had terrible anxiety and phobias and I let them take over and wreck havok.

    Now, this has happened and like you, I am frantic and scared because I want to live too! There is so much I want to do and see and be!!

  15. lisadot

    lisadot New Member

    We can hug and cry together. I just faxed my gastro doc something. In between freaking out, I looked online, and checked out a med I'm taking for high cholesterol (which I'm convinced is due to stress!) and what is so weird is that this medication ZETIA, has been implicated in pancreatic problems!!!! I'm not saying for sure this caused whatever the hell I have, but I can't HELP but wonder if it has done something to me.

    I guess because I'm a clinical research nurse, I have to be a detective. If I'm correct, I am stopping this pill IMMEDIATELY!

    I know I am too uptight. I know I am too much a perfectionist. It's a curse to be a Virgo sometimes! And I know I'm still trying to get over my abusive past, all while trying to learn how to be a step-mom to two of the most dysfuctional teenagers I've ever seen! My kids aren't easy either. I've told my therapist, if only she could hypnotize me. I'd ask her to make me a duck, so everything would just flow over my back - no big deal.

    I'm leaving my office soon. I've hardly been able to function today. Wanna meet later? In the chatroom or something? I don't know what the policy is with phoning listmembers. And I do see you're in the east while I'm on the west.

    I'll check when I get home around 5:30 my time.

    lisadot
  16. Leenerbups

    Leenerbups New Member

    Cripes Lisa, I'm a Virgo too!!

    There are medications that can cause pancreatitis, and also high triglicerides (sp?) can cause it too. Make sure they check.

    I hope that if you stop the med, your pancreas will return to normal. No such hope for me it seems, but lets hope for you.

    I have to go out later. See you soon, I hope. In the meantime go here:
    http://health.groups.yahoo.com/group/pancreatitis/

    lots of information and support.
    There are antioxidants you can take that seem to help. I just started taking them. You'll find that info on this other forum.

    We can definetly be here for each other through this!

    **HUGS***
    [This Message was Edited on 10/04/2005]
  17. JLH

    JLH New Member

    I'm praying for you that your test results turn out OK -- hopefully it's just the gallstones.

    Waiting on test results can be soooo stressful.

    Try to get some rest.

    (((Hugs)))
    Janet