Ahhh, to dream

Discussion in 'Fibromyalgia Main Forum' started by Betsy2, Aug 30, 2002.

  1. Betsy2

    Betsy2 New Member

    Hi! I am new to the boards. I recently had a sleep study done in the hospital and they discovered I had severe sleep apnea. This doesn't surprise me being that I have Fibro and never go into REM sleep. They have me on a machine at night now that reminds my brain to breathe. Last night, for the first time in such a long time, I had a dream and I remembered it when I woke up!!!! I am so excited!!! They tell me that this CPAP machine will help me with my fatigue and the Fibro pain.
  2. Betsy2

    Betsy2 New Member

    Hi! I am new to the boards. I recently had a sleep study done in the hospital and they discovered I had severe sleep apnea. This doesn't surprise me being that I have Fibro and never go into REM sleep. They have me on a machine at night now that reminds my brain to breathe. Last night, for the first time in such a long time, I had a dream and I remembered it when I woke up!!!! I am so excited!!! They tell me that this CPAP machine will help me with my fatigue and the Fibro pain.
  3. MicheleF

    MicheleF New Member

    So glad you got a good night's sleep. Maybe your experience with encourage others to go get a sleep study done.

    Welcome to the boards, you've found a site with lots of info and caring, informative members.

    Best wishes. Michele
  4. Betsy2

    Betsy2 New Member

    Thank you for the kind welcome, Michele. This is the best Fibro/CFS site I have found yet. Lots of info and many kind and caring people
  5. kitkat623

    kitkat623 New Member

    This is a great board with lots of kind and caring people. Please don't be upset if replies to your posts are a little slow on a major holiday weekend. I'm sure you'll be hearing from others in a couple of days. Please check out the super site library. Lots of great information here. I've visited many sites and I find this to be very much the best one. I'm glad to read that you have found a treatment that works for you. Welcome to the board, and happy posting! Kathy
  6. loonie

    loonie New Member

    Hi Betsy2:

    Welcome to the board-lots of good people and good info here.

    I would like to ask you a ? about your sleep test. Did they put you on the cpap while you were taking the sleep test-probably after you had slept a while? The tech for my study said he would come in and put the cpap on if I had any sleep apneas, but he never put it on for me. My results said NO sleep apneas, but my DR put me on cpap anyway, and diagnosed me with moderate to severe obstructive apnea. This made no sense to me, as I had NO sleep apneas during the test. However, for some reason my oxygen level was dropping seriously low at night, though normal in the daytime.

    I decided that I would use the cpap even though it had done absolutely nothing for my fm symptoms, because the lack of O2 at nite was dangerous for my heart health. I have always dreamed like crazy and remembered mmost of them in vivid detail-so in that we are very different. However the study did show a large lack of stage 4 sleep-which is where rest and healing are supposed to occur.

    My theory for my problem is that I have some kind of neurological or other problem that makes me breathe shallowly and not get into the delta sleep I so desparately need. Got a pretty good doc who has FM and CFS too, so things are looking up!!

    Looking forward to exchanging cpap stories with you (LOL)

    Loonie, aka Kathe
  7. Betsy2

    Betsy2 New Member

    Kathe,

    I don't believe I had any obstructions either or at least they did not inform me of any. They put me on the CPAP half way through the night because I lacked way too much oxygen. They told me out of 740 episodes I lacked oxygen 84 percent of the time. Which is why I was told I had severe sleep apnea. Like you, I breathe fine during the day. My brain just forgets to tell me to breath at night. I have had my CPAP for three nights and each night get better. I have found that by using a nasal saline gel at night it helps the dryness. I also found a spray to help the dryness in my mouth at night. Used both last night and last night was my best night yet. I hope to hear from you more. Let me know if you find out anything of interest in regard to sleep apnea

    Betts
  8. PMangels

    PMangels New Member

    Your post was very interesting to me. I have FM but my husband has severe sleep apnea but does not have FM. He does use a CPAP machine and has for five years. What a wonder. I hope you don't mind me sharing this. Several years prior to his getting this "wonder machine"...I noticed he would quit breathing when he was sleeping. I would nudge him and then he would take a big gasp of air and start breathing again. This is typical of people with sleep apnea. And of course with my problem I wasn't sleeping either or I may not have heard him. Our primary doctor sent him to a specialist who orderd a sleep study on him. He went to a hospital for an overnight stay and they hooked him up with electrodes on his head and chest. We made an appointment with the doctor to get the test results. The doctor said the test wasn't that bad. I was furious. You mean to tell me a person can stop breathing off and on all night and there is nothing wrong with them? The man could't even stay awake when driving. We could'nt even go to church or go visiting without him sleeping. We waited about six months and he seemed to be getting worse. With my FM I don't get into that REM sleep either so both of us were at our wits end. I told my husband their is something seriously wrong here and we are going together to our primary care physician "again" and get some answers. I was not about to let some doctor tell me again there was nothing wrong with him. I explained to the doc again how he stops breathing so many times in the night and that he can't stay awake. I let him know that I thought that first test was a "fluke". I told him that no one is going to tell me that there is nothing wrong here. To stop breathing so much is not normal for anyone. Our doctor made arrangements "again" for him to go to a different sleep specialist. This doctor put him in the hospial overnight and ran another sleep study on him. We made an appointment with the specialist to get the results. I was shocked with the results. The doctor said during the study he had stopped breathing 125 times within an eight hour period. His blood gases were no where where they were suppose to be. He diagnosed him with severe sleep apnea. The doc said the reason he was fatiqued and could not stay awake was because he was getting very little sleep at all. Betsy just like you his brain was not telling him to breath. He got a CPAP and feels much better. He takes it along if we stay overnight anywhere. There was one time he forgot to pack the cord and had to sleep without it. Needless to say neither one of us slept. He had such a headache the next morning. Anyway he has bought an extra cord and he keeps it in the suitcase so he doesn't have to go without his CPAP ever again. He even takes it to the hospital. All I can say is that that first test he had wasnt' done properly or they would have caught this the first time. It pays to tell your doctor when you believe something is wrong and stick with it until you get an answer.

    I hope this was alright to put here but thought the info might be good for anyone with this problem. I certainly can relate a little to those who have to have a CPAP. It is a lifesaver for the one who needs it and their bed partner.

    Betsy, I wish you and all who need this support system a restful night.

    Arlene
    [This Message was Edited on 08/31/2002]
    [This Message was Edited on 08/31/2002]
  9. Betsy2

    Betsy2 New Member

    I was told the evening I had my sleep study done that it sometimes takes two sleep studies to produce the correct results. So understandable why it took another sleep study to get the right results. Thanks for your support, Arlene
    [This Message was Edited on 08/31/2002]
  10. Coping

    Coping New Member

    I had sleep apnea. I would wake up several times during the night gasping for air. It is a horrible feeling. My friends and hubby use to make fun of me snoring when I didn't even think I was sleeping.

    One time while we were camping my husband said people were yelling "Somebody shut HIM up!" from across the lake...LOL

    Anyway I had the sleep study and had a uvulapalotalpharyngoplasty....They remove my uvual and soft palet. It was a miracle. I felt like a hiway of air was getting in to my lungs. Now they do the surgery with laser and it is not as painful as the type of surgery I had.

    I was going to post a question asking how many CFS/FMS sufferers have sleep apnea. Wondering if one has anything to do with the other.

    Sleep Well,
    Tricia
  11. Shirl

    Shirl New Member

    Hello Betsy, welcome to the board. Glad you found us.

    I am so glad to hear you have found some help with your sleep problem. Thats wonderful.

    Keep up the good work, getting good sleep is a big part of helping ourselves with the Fibro.

    Take care, and again welcome to the group!


    Shalom, Shirl
  12. Betsy2

    Betsy2 New Member

    Thanks Shirl! I appreciate this website and all the positive feedback I have gotten from each and everyone who has replied to my post.

    Betts
  13. loonie

    loonie New Member

    Hi, Betsy2;

    I am really glad your cpap helped you . It works for many, I guess especially if you do have obstructive sleep apnea. Although my sleep doctor said I have OSA, the cpap has not helped me and I have been on it since about January 1 of this year. I continue to use it because it does keep my O2 levels up.

    I personally think I have some sort of neurological reason for my sleep problem. If it was just OSD, it would seem to me that the cpap would have helped at least some of my FMS symptoms, but it has not. If you have already seen some improvement, you will probably continue to improve.

    My greatest fun with the cpap is my cats. I have four of them that like to sleep above my head, and we all keep getting tangled up with the hose!!(LOL). One of them even put a hole in my hose-guess it is better than the holes they put in my waterbed!!!!

    I use the cool humidifier and it helps. I could have had the heated one, but I am extremely sensitive to heat, and couldn't bear the thought of warm air all night long.

    Keep us posted on your improvement.

    Loonie
  14. Betsy2

    Betsy2 New Member

    Well, the CPAP has not worked for a full night for me yet. My pressure was lowered from 15cm to 10cm. Now, I am struggling with dryness and coughing. I have worn it for an hour and a half at the longest. I borrowed an humidifier from the hospital and that did not help. I am growing weary and I plan to turn the machine back in. I have ordered a Sleep Angel online from an individaul in Florida and that may be another non-evasive way to help with the OSA. If that doesn't work, I will talk to my family doc and see about getting a referral to the pulmonary doctor at the sleep center. The hospital has been wonderful about working with me. The tech suggested that I even come into the hospitals for naps with the CPAP on. He called this some sort of conditioning so that they can see what is happening when I sleep with it on. It may just be a matter of changing from Sinamet to something else I am not certain. The CPAP prescription just happened to coincide with my rheaumy prescribing Sinamet. I will keep you all posted in case there are any ideas I come across that could be of help to any of you. I wish you all restful nights and the ability to dream

    Betts
  15. karen2002

    karen2002 New Member

    I have read this as I too have sleep apnea. It is not the dream stage or the REM stage that we need, though----We need Delta or Stage 4, to not be sleep deprived, and to decrease our fibro symptoms.
    REM stage or Rapid Eye Movement--is the time of dreaming and increased brain activity.
    Stage 4 or deep sleep is where the healing takes place.
    I have copied the following from a website, and if you are interested you can find it by typing sleepdoctor, and its a dot com.
    Karen

    Stage 3 and 4 or Delta sleep: Stage 2 sleep evolves into "Delta" sleep or "slow wave" sleep in approximately 10-20 minutes and may last 15-30 minutes. It is called "slow wave" sleep because brain activity slows down dramatically from the "theta" rhythm of Stage 2 to a much slower rhythm of 1 to 2 cycles per second called "delta" and the height or amplitude of the waves increases dramatically. In most adults these two stages are completed within the first two 90 minute sleep cycles or within the first three hours of sleep. Contrary to popular belief, it is delta sleep that is the "deepest" stage of sleep (not REM) and the most restorative. It is delta sleep that a sleep-deprived person's brain craves the first and foremost. In children, delta sleep can occupy up to 40% of all sleep time and this is what makes children unwakeable or "dead asleep" during most of the night.

    ยท Stage 5: REM (Rapid Eye Movement Sleep): This is a very active stage of sleep. Composes 20-25 % of a normal nights sleep. Breathing, heart rate and brain wave activity quicken. Vivid Dreams can occur. Sleep Specialists call this 5th stage of sleep "REM" rapid eye movement sleep because if one is to watch a person in this stage, their eyes are moving rapidly about. After REM stage, the body usually returns to Stage 2 sleep.