All with FM or CFS please do this SYMPTOM CHECKLIST!

Discussion in 'Fibromyalgia Main Forum' started by Nanie46, Jan 24, 2009.

  1. Nanie46

    Nanie46 Moderator

    Hi,

    I have had FM for 21 years.....very classic, by-the-book symptoms.

    I have 19 of the symptoms on this checklist......try it, you may be astounded!!!

    Go to:

    http://www.publichealthalert.org/pdf/LYMDXRX%202008-October.pdf

    then go to pages 9-11 of this document...the symptom checklist. If you can, print it out and fill it out...if not, just count your symptoms as you read down through.

    If you are curious for more information, especially if you have numerous symptoms on the list, then start reading pages 3-11 of this same paper.

    This information has changed my life. I became educated, persisted, and insisted on an Igenex western blot. I learned how to read a western blot, which is how I knew I have lyme. 3 doctors told me I did not have lyme.

    I called a lyme literate MD, read my Igenex results and they agreed I have lyme. I have a 4 hour consult in early Feb, and will begin treatment. I have great hope of recovery.

    PLEASE, do this checklist......you may be very surprised.....and it may change your life too.

    If you want to share your results, it would be interesting.
    [This Message was Edited on 01/25/2009]
    [This Message was Edited on 01/25/2009]
  2. Nanie46

    Nanie46 Moderator

    bump to help others...
  3. Nanie46

    Nanie46 Moderator

    bump to help others...
  4. Nanie46

    Nanie46 Moderator

    bumping to help others...
  5. Nanie46

    Nanie46 Moderator

    bumping to help others
  6. Nanie46

    Nanie46 Moderator

    Hi,

    Thanks for your advice and good wishes. I am very excited to start treatment.

    I am ecstatic that my LLMD, who I will see for the first time on Feb 8, is a former ILADS director! I know he will give me great care, especially since he, his wife and children all have lyme.

    I will definitely keep you all posted with my progress. It seems like a dream that I could be pain (and symptom) free in 6 months.

    So glad you are doing well. What a blessing!!! Thanks again!
  7. Nanie46

    Nanie46 Moderator

    bumping to help others...
  8. quanked

    quanked Member

  9. Nanie46

    Nanie46 Moderator

    bumping to help others...
  10. kat0465

    kat0465 New Member

    Nanie,
    i have just found an llmd in louisiana, hes only about 60 miles from me!!! do you think it would be worth making an appt?? my fibro doc has never tested me for lyme, but i know if i ask her she will do it. but what im wondering is if i should just go right to the specialist?? i can remember getting bit by ticks as a child.have been sick most of my life, and 5 years ago, was on vacation and got bit again :( but with me being so sick,and being diagnosed with fibro & cfs i guess cause i live on the coast in southeast Tx and never thought about Lyme.never remember the bullseye rash either, but i know that sometimes a rash never appears.
    do you know what the Protocol is for treating Lyme?? thanks, Kat
  11. Nanie46

    Nanie46 Moderator

    Hi,

    Because you are sick, with no known cause, and have a history of tick bites, I really do think that you should investigate lyme. I cannot guarantee you that you have it, but it would be a travesty if you do and you missed your chance to get better.

    I bet you have alot of the symtpoms on the list that I directed you to in my post.

    Alot of LLMD's don't take insurance, so you should ask questions when you call his office, so you are prepared. If there is a wait to get an appt, maybe you could get your fibro Dr to order a western blot from Igenex now. You can go to their website and print out the 2 page test request form and get his signature and information that is required on the form.

    The least expensive lyme panel is the basic lyme panel, which includes a lyme screen and a western blot IgG and IgM for $260, according to my paper dated Oct 2008.

    You can call or email Igenex....go to www.igenex.com....to request a test kit. It comes with a prepaid fedex mailer.

    Antibiotics are used for treating lyme because it is a bacterial illness. People with lyme also require testing for coinfections, which are common. Babesia, Bartonella and Ehrlichia are other illnesses that the ticks can carry, plus others.

    Each of these illnesses has a different treatment; some use malaria drugs, etc.

    Many people with lyme are prescribed oral antibiotics. Some people require intramuscular injections or IV antibiotics.

    You are fortunate to have an LLMD so close to you. I wish you well, and hope that you find the answers that you need to enjoy better health.

  12. Nanie46

    Nanie46 Moderator

    bumping for kat0465....
  13. Nanie46

    Nanie46 Moderator

    bump to help others...