Almost Constant Heart Jumps And Out-Of-Whack Heart Beating?

Discussion in 'Fibromyalgia Main Forum' started by joeb7th, Jul 26, 2009.

  1. joeb7th

    joeb7th New Member

    I know my heart. Recently I was hospitalized with atrial fibrillation to 180 beats a minute for two hours before they got it back down.

    Had a few less severe episodes since with them both calming down without medicine after a few hours.

    4 heart tests in those two days at the hopsital for the AFibs ( 2 X-Rays, Stress tests and echo tests all said things somehwat okay)

    Now on aspirin and beta blockers ( these just slow the heart beat ).

    However, in the last two weeks it seems my heart is jumping and beating irregularly ( just out-of-whack) almost constantly. Even as I type this.

    It is not painful nor as powerful as those initial atrial fibrillation episodes, but I feel it and it makes me feel stressed in the upper chest area and over-all uncomfortable and anxious while it is happening.

    I feel these on up into the lower neck.

    It just won't go away now.

    I take my pulse by wrist and neck compression but it always comes out 60 TO 70 beats a minute on average.

    But I know how it feels to have an out-of-whack beating of the heart. aND THIS IS DEFINITELY OUT-OF-WHACK. The strongest periods leave me the weakest. Sometime scarily so.

    I see a new cardiologist tomorrow. He had an echo ultra sound test done on me last Thursday.

    The tech couldn't answer any of my questions but I got the impression he felt things looked okay.

    But, what I want to tell this new doc is that it feels out-of-whack in my heart area all the time. Jumps, jumps and more jumps. And this leaves me weak and anxious...and weirdly my eyes are always tired when this is happening.

    But, can you have an almost constant irregular beating heart without it beating simply fast and beong in atrial fibrillation?

    I just want this to go away. I cannot distract myself from it all the time. It makes me stay home all the time. I just cannot carry on a conversation while stopping and gasping with halted breaths when the heart jumps. Also, this leaves me too weak and anxious to do anything physical.

  2. richvank

    richvank New Member

    Hi, joeb7th.

    That must be just maddening! I'm sorry you're having to go through that.

    No doubt this has been considered by your doctors, but the two essential minerals that are important in control of the heartbeat are potassium and magnesium. Potassium is measured routinely in blood chemistry panels, but magnesium often isn't. Also, the correlation between the magnesium level in the heart muscle and that measured in the blood (even in the red blood cells) is not always so good, so magnesium could be low, even if a blood test says it's O.K.

    I can't give individual treatment advice unless a physician is involved to review my suggestions, but if I had arrhythmia, one thing I would do would be to consider whether I had enough magnesium.

    Best regards,

  3. richvank

    richvank New Member

    Hi, joeb7th.

    Here are a couple of other things that might be helpful. Please view them as information, not medical advice, and be sure to coordinate whatever you do with your doctor.

    The first is the abstract of a paper in the journal Medical Hypotheses discussing use of taurine and arginine:

    Med Hypotheses. 2006;67(5):1200-4. Epub 2006 Jun 23.

    Elimination of cardiac arrhythmias using oral taurine with l-arginine with case histories: Hypothesis for nitric oxide stabilization of the sinus node.

    Eby G, Halcomb WW.

    George Eby Research, 14909-C Fitzhugh Road, Austin, TX 78736, USA.

    We searched for nutrient deficiencies that could cause cardiac arrhythmias [premature atrial contractions (PACs), premature ventricular contractions (PVCs), atrial fibrillation, and related sinus pauses], and found literature support for deficiencies of taurine and l-arginine. Case histories of people with very frequent arrhythmias are presented showing 10-20g taurine per day reduced PACs by 50% and prevented all PVCs but did not prevent pauses. Adding 4-6g of l-arginine immediately terminated essentially all remaining pauses and PACs, maintaining normal cardiac rhythm with continued treatment. Effects of taurine useful in preventing arrhythmias include regulating potassium, calcium and sodium levels in the blood and tissues, regulating excitability of the myocardium, and protecting against free radicals damage. Taurine restored energy and endurance in one of the cases from a debilitated status to normal. Arrhythmias may also respond to taurine because it dampens activity of the sympathetic nervous system and dampens epinephrine release. l-arginine may have anti-arrhythmic properties resulting from its role as a nitric oxide (NO) precursor and from its ability to restore sinus rhythm spontaneously. Endogenous production of taurine and l-arginine may decline in aging perturbing cardiac rhythm, and these "conditional" essential nutrients therefore become "essential" and require supplementation to prevent morbidity and mortality. l-arginine is hypothesized to prevent cardiac arrhythmias by NO stabilization of the sinus node. Cardiac arrhythmias having no known cause in otherwise healthy people are hypothesized to be symptoms of deficiencies of taurine and arginine.

    The other thing is that in the book "The Sinatra Solution--Metabolic Cardiology," the cardiologist Stephen Sinatra, M.D., writes the following on page 120: "My typical 'cocktail' for suppressing PACs and PVCs includes a combination of L-carnitine, coenzyme Q10, D-ribose and magnesium. I call these nutrients the 'Awesome Foursome.' "

  4. pam_d

    pam_d New Member

    Joe, I've been reading your posts for years. I'm sorry in all this time and seeing various specialists, you haven't found some more concrete information to help you feel better.

    I've had acute leukemia twice, an allogenaeic bone marrow transplant, more chemotherapy than anyone should have to deal with, and three years of coping with this on and off have left our family financially drained. I have about a 30-40% chance of being alive in 5 years. Still, I'm realizing how easy I have it, I guess.

    I hope Rich gave you some good suggestions---I've read his posts, too, and know he is a smart guy. Let's hope some relief comes for you soon.
  5. cordy250

    cordy250 Member

    I had severe SVT's that caused extreme weakness. They got worse as I got older and meds didn't help. I finally had a low level radio frequency ablation. It left me with a residual condition called wenkebach, which basically sounds like what you are talking about. I skip beats periodically. The pulse rate comes out okay but you can feel these skipped beats and you question whether your heart will actually pick up the next beat!!! It can be quite unnerving.

    None of this may apply to you as SVT is different from AF in its origins and treatment. I just wanted you to know that there is something that causes an irregular heartbeat as you describe.

    You will probably need an event monitor for a while to catch it as it never seems to be happening when they hook up the EKG in the doctor's office.

    If you can find a good cardiologist, you should be able to get a handle on the situation. Sometimes just knowing what it is makes it easier to deal with, but they also have lots of different things that they can do and are always developing new treatments and making older treatments safer.
  6. jasminetee

    jasminetee Member

    Hi Joe,

    Are you by chance on any medication? I can't take meds as they cause me major heart probs like you describe. Also, you may want to make sure you're not ingesting any caffeine, likewise with sugar.

    I get heart pounding and heart palp from time to time. This is a normal symptom for both CFS and FMS but it seems like it's excessively happening for you. I hope you can find something that remedies it. I know it's a very scary feeling but I think you'll be ok.

    Also, Cheney has some interesting articles about the heart in CFS.

    Pam, so sorry for all you've been going through.