Also seeing Dr. Powell

Discussion in 'Fibromyalgia Main Forum' started by Lolo500, Aug 20, 2005.

  1. Lolo500

    Lolo500 New Member

    I have recently started Dr. Powell's program in Sacramento. I would be interested in hearing from those involved how long it took your system to normanlize after starting the Nystatin and Diflucan protocol. I have been on them for over two weeks now and would like to know when I might expect things to level off as far as green tinted bowel movements, that sick feeling you get with frequent bathroom visits and general exhaustion (more so than usual.) I will be getting the T3 regimen on board sometime this week. I realize we all react differently and the response will vary. Just curious how it went for you.
  2. LittleBluestem

    LittleBluestem New Member

    for anyone who has anything to add.
  3. blizzybear

    blizzybear New Member

    I SAW HIM FOR 4 MONTHS AND ALL HIS TREATMENTS MADE ME WORSE. BUT I DID MEET SEVERAL OF HIS PATIENTS WHO WERE RAVING OVER FEELING BETTER. HE SAID SOME PEOPLE IT JUST DID NOT WORK FOR. I SPENT OVER $3000. MY DR. REALLY LIKES HIM. I WORKED IN THE MEDICAL FIELD 10 YRS. MY OPINON IS I FEEL I SAW PATIENTS WHOM WITHIN A MONTH OR TWO REALLY FELT BETTER, BUT HE DOES WORK IN A BOX, HE SEEMS TO LOOK AT ALL THE PATIENTS LIKE THEY ALL HAVE TO HAVE MENTAL PROBLEMS, CANDIDA, NEED T3 REGIM ETC, JUST BECAREFUL TO MAKE SURE HE REALISES YOU ARE NOT A BOX. ALSO THE ONE THING THAT DID BOTHER ME A LITTLE WAS ALL THE PATIENTS IN THE SUPPORT GROUP WHO SAID THEY WERE SO MUCH BETTER WERE ON DISIABLILTY. THAT MADE ME WONDER HOW MUCH BETTER THEY REALLY FELT. THE PATIENTS I KNOW MY DR. SENT THERE ARE ALSO FILING OR ON DISABILITY, SO ALL I CAN SAY IS TRY IT AND SEE HOW YOU FEEL BUT IF AFTER 3 OR 4 MONTHS GO BY AND YOU ARE NOT FEELING BETTER I WOULD LOOK SOMEWHERE ELSE.
  4. urge2soar

    urge2soar New Member

    Bumping for Dr. Powell in Sacramento's patients.
  5. Wasabi

    Wasabi New Member

    I think it's important to look at the big picture.

    First of all, Dr. Powell tells you at the start that it's a long recovery process--usually one year. During that year, the general trend is improvement, but at times, you'll feel worse, because of die-off. It's to be expected, and he makes that clear. I think it's often a matter of sticking it out. He has told me that there are some people for whom his treatment doesn't work, but most often it's because they gave up too soon.

    His treatment protocol is pretty standard for FM specialists--including Dr. Teitelbaum, and from what I've read, the FFC.

    To be sure, the treatment program is aggressive toward untreated chronic infections, hormonal imbalances, and other issues common to FM patients. Naturally, this can also be hard on the body, because you are trying to jump-start it back onto a path of healing. That said, if you have to go through a year of treatment that's hard in order to feel better for the rest of your life, I think it's worth it.

    I haven't met anyone who is on disability after seeing Dr. Powell, so I can't say whether or not that's true. He doesn't assist patients with getting on permanent disability--he states this clearly on his web site. If necessary, he helps patients with temporary disability in the early stages of treatment. If all of these people in the support group are on permanent disability, then they must be under the care of another doctor in addition to Dr. Powell--or they have stopped seeing him and are seeing another doctor.

    In any case, my experience with Dr. Powell has been very different from Blizzybear's. I know three other people who are going to him, and we are all on different combinations of medications and supplements. He does check you for several standard imbalances, such as thyroid, candida, chlamydia pneumoniae, etc., but he doesn't treat everyone for all of those without determining which treatments you need.

    He's catered the program to my specific medication sensitivities, preferences (I'm vegetarian and won't do supplements made from animal products), and level of comfort (I declined sleeping medication).

    Nor does he use pre-printed prescriptions. All of the prescriptions I've received from him have been hand-written. He does have pre-printed papers on various aspects of his protocol, which explain the research behind the treatment and list the typical treatment standards for those specific issues. It's to help the patient gain knowledge about the treatment, and I don't see how that's a bad thing.

    Also, it's important to follow all of his instructions--doing only part of his program can actually make you feel worse. For example, if he is treating you for chlamydia pneumoniae, he usually puts you on antibiotics (different ones depending on your case), as well as supplements and activated charcoal to keep the die-off within safe limits.

    Leaving out even one of those elements has its effects. I know one person who was doing the antibiotics and supplements but wasn't doing the charcoal, and she felt worse. I can feel the difference when I skip a day of the charcoal or miss some supplements.

    He has never suggested that I have mental problems or treated me like I do. As standard protocol, he asks if you have any history of emotional trauma, because if it remains an unresolved source of emotional stress, it will hinder your healing process. I said that I did not have such a history, and he moved right on.

    Dr. Powell keeps up on current research, is open to articles or information you might bring with you, and has always treated me with respect. He's probably the only FM specialist in the Sacramento Valley area, and so many of his patients are relieved to find him after years of discouraging experiences with other doctors. (You can read previous messages I've posted about Dr. Powell for more information about my treatment and experiences.)

    In the end, it's really up to each person to decide whether or not a treatment is worth it. Blizzybear decided it wasn't; for me, so far, it has been well worth it, and I'm willing to stick it out for the full year. After a year, I'll assess my situation, and if I haven't improved significantly, I'll try something else. In any case, I wish you the best of luck figuring out if it's right for you. Take care.
    [This Message was Edited on 08/21/2005]