Alternatives to Levine and Enlander

Discussion in 'Fibromyalgia Main Forum' started by gettingwell, May 30, 2008.

  1. gettingwell

    gettingwell New Member

    I live in New York City and am wondering if there are other CFIDS specialists in the area to see besides Enlander and Levine. I am willing to travel as far as Philadelphia or Connecticut.

  2. marti_zavala

    marti_zavala Member

    Sorry, I am pretty ignorant if this isn't within the zone you identified. I have been to Philly but not further.

    He was well worth my trip from Texas

  3. gettingwell

    gettingwell New Member

    Thanks so much for your reply. Can you tell me about this Dr's approach? Does he treat with antivirals? How are you being treated and how do you continue with treatment long distance from Texas?
  4. gapsych

    gapsych New Member

    Is this the same doctor who is doing the Georgetown studies.

    If he is does your insurance pay for seeing him?

    Thanks, GA
  5. purrs1971

    purrs1971 New Member

    Have you tried Dr. Roger Mazlen in Long Island? He is not that far out in LI. Wasnt too crazy about him (alot more out of pocket, than Levine) but maybe you'll like him. Takes most insurance for the exam though.
  6. marti_zavala

    marti_zavala Member

    Please search my posts and find a report I did around May 19th or so, regarding my visit/participation with Dr. Baraniuk.

    I am going to try to see him once a year. My insurance would mark his as out of network unless I can get a referral from my primary.

    I can get a flight to D.C. for $200 so if you add up all the copays from doctors here that are not helping me, then it's a wash.

    He was wonderful and I am utilizing some of what I learned and functioning much better already.

    I am able to clean house a few hours about twice a week which is an improvement.

    My participation in the study was equivalent to several appointments. Just the history was three hours long.

    [This Message was Edited on 05/30/2008]
  7. ladybugmandy

    ladybugmandy Member

    hello. dr. leo galland is in manhattan. he will treat with antivirals.

    he is somewhat expensive and does not take insurance but seems very thorough in his testing.

    good luck