Am I Doctor Phobic???

Discussion in 'Fibromyalgia Main Forum' started by BethM, Dec 23, 2006.

  1. BethM

    BethM New Member

    I will be seeing my primary care doc in a couple weeks, for a recheck on fibro and my meds. I've only seen this doc once before, for a physical exam last July. I'll have blood drawn before the appointment, to follow up on prior labs.

    This doc referred me to a rheumatologist, who I did see once, and who basically told me I am managing the fibro well, she saw no evidence of RA, and to go back to the primary doc. Ok. That is good and bad news, I guess. I think the fibro could be managed better.

    The doc also referred me to an endocrinologist, but I haven't followed up on that. I just feel so reluctant to start with any more doctors. My experiences have been so unproductive with doctors, who generally have no clue how to manage my health needs. They usually want to prescribe more pills and tell me to lose weight. (ok, I do need to lose about 40 pounds...)

    When I think about going to a new doctor, I feel like getting into bed, putting the covers over my head and staying there.

    Am I doctor phobic? I feel stuck, unable to move forward, and I really hate talking to doctors. I am keeping my appointment in January because I really need to re-evaluate my meds and get new prescriptions from the doc. But I don't expect much from her, unless my blood work comes back with something unusual, which is not likely. (That REALLY frustrates the doctor...)

    Does anyone else feel this way? What do you do about it?

    I prefer to manage my care myself, with healthy eating and living and herbal medicine, but the doc still has a place in all this, I suppose. For my Darvocet prescription, if nothing else.

    I would love to hear from others here about this topic. I'd like to not feel so alone with this.

    Peace,
    Beth.
  2. Catseye

    Catseye Member

    I feel the same way. I have made leaps and bounds in my recovery by treating myself. All my blood work has been normal from day one, even when I go to the ER thinking I'm dying because I'm in agony. So now, I study up on tests and when I have a particular problem, I go to the doctor and tell them what test I want. They don't like that at all, but they do it.

    I just got called a hypochondriac the other day, it was in Spanish so he's lucky I didn't get all of it or I would have had to go off on him which would have been in my half-butt, broken Spanish and probably would have turned into insults when I couldn't think of what to say. I thought I was having a gallbladder attack and I went for an ultrasound. It was my pancreas that was inflamed and the enzymes for it came back normal in my blood and that's all I wanted to know; it means it's not "eating" itself so it will probably go away on its own.

    I have been using tons of supplements and finally getting better. When I went to the doc for adrenal fatigue, my cortisol levels were normal, but when I treated myself for adrenal fatigue, I was able to get rid of that problem in about 2 months.

    Even asking beforehand if the doctor has experience with cfs doesn't help. They all say yes but then they call you a hypochondriac and suggest that you go to a psychiatrist, all mostly because your blood levels of everything are "normal".

    Doctors don't understand their own profession. The medical industry, which teaches them, does not approach our health from the standpoint of trying to fix the body with whatever works. Their approach is only to use patentable, profitable methods and drugs to combat a particular complaint. Most doctors are just as ignorant about it as the general public. It isn't this way in every country, though. And they do have their place, like when a drug would work better or faster than anything else. But healthcare is not healthcare, it is a "find a patented substance for that ailment".

    I really feel sorry for bedridden people with chronic diseases like ours and AIDS and no computer, they have no clue. Being at the doctor's mercy can be complete torture, I've experienced it myself. I think the net is slowly but surely going to change the medical industry because people are starting to figure it out, finally. I wouldn't have realized it without a computer, myself. Doctors are no real geniuses like I once thought. They are just people who took the time to memorize a bunch of mostly useless information instead of studying nutrition and other things that really fix our bodies. My idiot liver doctor may be able to name all the parts of the liver but he doesn't know how to fix one; I do.

    Be careful with darvocets, they're probably half the reason I have liver problems since they're loaded with tylenol. I used to take them, I can't now.

    Merry Christmas everyone!

    karen
  3. BethM

    BethM New Member

    I enjoy reading your posts. Your proactive approach makes sense to me, and I like your straightforward style of talking.

    I am very careful with the Darvocet, take it carefully, with a watchful eye on the amount of acetaminophen I take every day. I try not to stress my liver with other toxins, keep my diet clean as I can, live where I breathe clean ocean air, clean my house with nontoxic stuff, don't buy scented anything.

    However, because of your posts I am looking at liver support. I haven't decided where to start, though, perhaps with milk thistle.

    Anyway, it helps to hear from others such as yourself who are successfully managing their illness by themselves, with researched information and thoughtful planning.

    Keep writing, ok?

    Peace and happy holidays,
    Beth.
  4. adberens

    adberens New Member

    I feel the same way about going to new doctors. I hate the way they look at you when you tell them how you feel and how sick you are and yet no test shows anything. I don't feel too good about seeing my regular doctors either.

    Although I hate to admit it, sometimes I wish a test would show something positive just so they could help fix the way I feel.

    I go in for an MRI on Tuesday. I know its not going to show anything (I've had them before) but the neuro won't go any further until I have another MRI. I have extreme pain and numbness on my left side.

    Ardy
  5. Catseye

    Catseye Member

    Since my mind is starting to come back, I feel like I have all this information I desperately need to "unload" on everybody. I've been like a health information sponge, soaking up everything I can on my illness and figuring out what to do. It's finally paid off. Although, even 2 months ago I had my doubts, I had many bouts of "feeling like I'm dying" and going to the hospital, doctors and just plain suffering in bed.

    I wonder if doctors are taught about psychosomatic illness to the point they think it's common? And I wonder how much of it is just simple malnutrition and easily corrected by supplements? So does the medical industry refer us to psychiatrists to keep us treated so we're still paying customers knowing full well that supplements are what we really need and would treat us? It makes me very angry because the first 1 1/2 years I was ill, I was suffering in horrible agony in bed, wishing Jesus would heal me or at least let me die because the feeling was so unbearable. Suicide was not an option. If somebody in charge of deciding what doctors learn knows this, then they are letting people suffer in agony because of monetary concerns. This just can't be right.

    And it turned out all I needed was a few supplements, chemicals my body needed either from food or that it would have made itself if it was in good health and able to. I kept asking my doctor, a "digestive disease specialist" about food and my liver. He told me to eat plenty of "whole grains" which I can't tolerate (I know now), and that my liver was fine. He said food couldn't be the problem.

    We really ought to start something here, I'm not sure what but I've been doing alot of thinking about it. Maybe when I get my mind back fully, I'll know what to do. There is much suffering right here with our diseases, and AIDS, too, that could be prevented by simple supplements from the health food store. But this is not made public at all. The news won't talk about it, that means companies are paying them not to say it. We need people to be aware of our particular diseases, cfs and fibro, sure, but also, we need them to be aware that supplements and nutrition will fix alot of problems and you have to start with them in any treatment program. This is why our diseases are not talked about, the secret may leak out and many people will lose their cushy jobs or at least take drastic cuts in pay.

    What we really need is an "accepted scientific body" to do "clinical trials" with supplements so there is medical evidence and then the FDA can't squash the facts. That means someone needs to start an organization that will take donations and use the funding to test supplements. Oh boy, any ideas anyone?

    merry xmas!

    karen
  6. BethM

    BethM New Member

    It helps me a lot to hear from others here who feel the same way. I don't mind being independently minded, but it helps to have the support I get here. It can be hard to stand up to doctors by myself!

    Happy Holidays!

    Beth.
  7. patches25

    patches25 New Member

    I am very phobic. Besides all the harm they have done to my family, I just don't like their attitudes. A few days ago I saw a doctor about blood pressure and she started to tell me all about CFS/FM ---nothing correct of course. Needless to say I kept my mouth shut but wouldn't want her for my doctor. When I left I felt tears welling up because I could see nothing of any help has filtered through to doctors from the CFS campaign. There are a lot of us phobic people and with very good reasons. You are not alone. Hugs to you, E.
  8. jlcrafter

    jlcrafter New Member

    Beth, I can completely understand what you mean. Let me give you an example. I've been diagnosed fm for 10 yrs, pretty sure that I've had it a lot longer. So, over time I've tried a fair amount of stuff and have finally gotten into a routine of taking care of myself. Then last year I went in for a physical.

    My bloodwork was a bit off, so repeat the tests. Still off, go see a hematologist, who sends me to an endocrinologist, pulmonologist, cardiologist, rhuematologist, and I send myself to a hematology specialist at the University. Everyone of them agreed, I have fibro, and something else. But in the past year the only thing that they have all decided on is that my platelet count is high because I have iron deficient anemia. It's very bad. So I now take lots of iron.

    And I still have incredible pain, trying new meds, and now, it's time for another physical. I told my husband, they take my blood every 2 weeks, x-rays or ct scans, every 3 months or so. I'm pretty sure I don't need a physical!

    I'm so tired of doctors. They don't have a clue so they just keep sending me to more 'ologists'. So far they haven't done a brain scan, and I'm afraid to let them for fear they'll find something missing!! I'm diagnosing myself with cfs. I have every single symptom. I firmly believe with all the research we do that we are more knowledgeable than many drs.

    Hang in there!

    jl
  9. BethM

    BethM New Member

    ...at the depth of feeling in your responses.

    It's truly a shame that so many of us have bad experiences with doctors. I know some folks have had good experiences, but they are in the minority.

    I'm not sure what to do about this problem. Education, I suppose.

    Banding together as we do here helps too!!!

    Peace,
    Beth.
  10. PVLady

    PVLady New Member

    I think many of us feel the same way. Sometimes I think doctors feel they have to do write a prescription every time you come in. I can't even say how many times I have filled prescriptions and never taken the pills.

    Kind of stupid, I should not even fill them. After reading side effects etc. I usually decide to pass - or if I take it and have side effects I stop.

    If you are not careful you can wind up on 12 different medications!! I know many medications are necessary, like if you are diabetic, or have high blood pressure - but there are so many new drugs out now and doctors are anxious to prescribe them.

    We just have to use our common sense. I take as few meds as possible.
  11. momof471

    momof471 New Member

    I get really frustrated when I hear the same old thing when I go back, but what can they tell me there have been no remarkable break throughs for these illnesses. I have lost 40 lbs since the end of March. My doctor is happy, I'm still in pain, however I do have a sense of control over my own well being. There are still things I can do and have control over in spite of dealing with daily pain and fatigue. I have a lot of weight left to lose and I'm doing it slowly, but I'll get there even if I can't do an excercise program beyond the stretches. Plus I have the knowledge that I'm preventing myself from developing type 2 diabetes and cholesterol issues that are weight related. I'm a control freak, there is so much now that I have no control over but I can control my weight and other issues. I do like to see my doc and confirm I'm doing the right things and get help as needed with areas I'm having lots of problems in. In these illness, so much self care and knowledge is essential for proper management. This is what I've discovered for myself.