America Exhausted Dr Conley FM/CFS

Discussion in 'Fibromyalgia Main Forum' started by grace54, Nov 26, 2007.

  1. grace54

    grace54 New Member

    Anyone read this book or see him. He has a free offer on the book at his site. I found it very informational. He is in Flint Michigan and has helped many.
  2. spartanjt

    spartanjt New Member

    I read the book when it first came out in the mid- 90's & was also a patient of Dr Conley's. He is very thorough & knowledgeable re CFS/FM,,,,but very pricey.
  3. grace54

    grace54 New Member

    Similar to the FFC but he has helped thousands of patients.He like most Dr's realise we are burning ourselves out and allowing all kinds of disease in.He has developed some very specialised testing for enery measurement.
  4. romalaw

    romalaw Member

    I also found him very knowledgeable and I saw him a couple of times, but I couldn't afford him, very expensive
  5. spartanjt

    spartanjt New Member

    Hi romalaw - i had posted in the Dr Lerner thread yesterday re that we had both seen Dr Conley & you had mentioned you were currently seeing Dr Ng.

    I'm also familiar w/Dr Ng & Dr Brownstein, but have been treated by a Dr Kavieff, a holistic doc in W Bloomfield, over the past couple years.

    I was curious as to what you think of Dr Ng, what he is focusing on, & what your primary health problems are. Sounds like you're from the Detroit area ,as I am,& that you've seen a few of local "experts" including Dr Lerner. Would be very interested to get your feedback re which of the docs you thought was the best for you

    For myself, I struggle w/CFS, not Fibro, & am working w/ Dr Kavieff constantly on adrenal/thyroid issues ,as well as candida overgrowth problems. I also had all of my amalgams & metal crowns replaced a few years back & that has helped also.
    [This Message was Edited on 11/27/2007]
  6. romalaw

    romalaw Member

    I've been trying to solve the mystery of what happened to that thread! I didn't see your last post, I looked for it yesterday afternoon and it was gone!

    I have had CFS for almost ten years. I like you have very limited energy and cognitive issues. I have also had (have) every wierd and strange CFS symptoms there are. But I won't get into that--unless you beg me! Mine was precipitated by a bad respiratory flu that, classically, never went away. Though in hindsight I do think the initial link in my body's cascading chain was a minor (I thought) blow to the head a year before.

    Interesting that you saw Conley also and quit. I just couldn't afford to pay that much money for treatments that aren't cures.

    Anyway about Ng. I see Dr. Brownstein whose primary focus is hormone treatment. He was one of the key factors in improving my level of functioning. One of the things I like about him is he's usually willing to prescribe treatments that I suggest. At this point, though I think he's brought me as far as he can. I think some of these doctors kinda lose interest in you when you remain "chronic." I have heard great things about Ng. I think he is truly more "holistic" in his approach--that is very much into combiining a number of traditional and alternative treatments. I can find out more specifics from friends I know who see him.

    I've not heard of your doctor. Guess I'm becoming out of touch, used to know most of them in our area.

    Earlier today I posted about Lerner. I'm having trouble with my insurance paying for the valcyte==very expensive $2,000 a month. So I'm waiting to start after I hopefully win my war with those who block access to care.

    Hope this is helpful
  7. spartanjt

    spartanjt New Member

    Thanks for the feedback.

    I have to chuckle when i hear about all of Dr Conley's ex-patients. Nearly every time folks leave him it is because he is so darn expensive. I think he's the most knowledgeable of all the docs i've seen, but its not necessary to charge several hundred $$$ per hour just to see him ?!?

    Re Dr Kavieff, he is, like Dr Brownstein very in tuned to hormone balancing & also to the candida issues. What i like about him best is that he is very informal, easy to talk to & is willing to try different treatments. I've seen him off & on for over two years & , like you said re Dr B, I've come just about as far as I can with him. But, his office visits are relatively cheap, so he's a good fall back, when i feel like i'm struggling a bit.

    For me, the best thing I did was get all that metal out of my teeth & then went through a slow & steady metals detox program. I used dmsa & chlorella primarily for the detox part. Unfortunately, there really aren't any docs around here that know all of the ins & outs of mercury checlation, so i relied upon the advice of some folks via the internet who had experience on those issues.

    Bottomline is that i'm doing better now than i was 3,5,10 + years ago. But, I'm not where i was prior to 1993, when all of this first hit me.

    The whole thing w/Dr Lerner is a bit confusing to me. Having seen docs like Conley & Kavieff, who take a broad perspective to the causes & treatments for CFS, I don't understand how the SINGLE cause could be related to a heart issue, or to a virus. Just always seemed like when you attack this on several fronts, you have a better chance for improvement.

    Anyway, nice touching base with you & keep in touch re how things go w/Dr Ng.


  8. spartanjt

    spartanjt New Member

    Hello romalaw- Its been a while since we've touched base & i have not been on this board very often lately, so wanted to see how you were doing.

    Are you still seeing Dr Brownstein &/or Dr Lerner ? How have you been doing over this past year ?

    For myself, am still seeing Dr Kavieff (W Bloomfield) & have recently upped my doseage of Armour thyroid meds. Still taking my supplements & low dose Klonopin too. Had a decent summer, but have run into ongoing sinus drainage problems over the past several weeks. This darn Michigan weather plays havoc with me there.

    When you get a chance, would love to hear what's going on with you.....Take care.

  9. romalaw

    romalaw Member

    Hello, So nice to hear from you. I have been wondering how you were doing too. I stopped seeing Dr. Lerner, I just could not tolerate the side effects of the valcyte (not to mention his autocratic style). I would say I have recovered probably 65% of my functioning over the last ten years and I couldn't stand having all of those old symptoms reappear and incapacitate me again. At 62, I don't want to waste one day being that sick again. I believe antivirals have a place in CFS treatment but I don't think enough is known yet to justify being a "case study." The high doses that Lerner and others prescribe are too strong for my body to handle.

    I am still seeing Dr. Brownstein. He ran some genetic test that showed I have a gene defect that compromises my ability to metabolize folic acid. He put me an a DMG that his office compounded that he felt would help. I was skeptical, but to my surprise I think it actually has.

    My husband retired and we have moved from our grand old house in Detroit to Pinckney. HIs retirement insurance is an hmo and I am worried about how I will be able to continue to see Brownstein.

    I was doing pretty well, but I'm in kind of a bad flare (is there any other kind!) right now. My digestive system just suddenly got out of whack and it has my system down.

    Anyway, it sounds like you are holding steady. Sorry to hear about your sinus drainage problem, you're right about this Michigan weather. Have you tried or are you thinking of trying any new treatments?

    How about those Spartans!

    [This Message was Edited on 11/02/2008]
  10. Elisa

    Elisa Member

    Hi Grace54,

    Thanks for the info of the book America Exhausted - i ordered it and am looking forward to reading it. I have heard it mentioned many times - all positive!

    Thanks again- especially for the offer info on Dr Conley's website!

    God Bless,

    [This Message was Edited on 11/02/2008]
  11. spartanjt

    spartanjt New Member

    Good to hear that you are still seeing Dr Brownstein & that he's helped you w/his treatments. As I may have told you before, I had considered going to Dr B, but there was such a long wait to get an appointment, that I went to Dr Kavieff instead.

    Re Dr Lerner, & I may be repeating myself here too. I don't get how he can focus in only on the viral aspect of CFS/FM to the exclusion of all the other symptomology & problems that is causes ? I concur that viruses are/may be contributors to the problem, but there is no doubt in my mind that this a multi-faceted disease & all facets must be dealt with.

    Re any new treatments, i've not done anything new in recent times & probably nothing new in the future. Dr Kavieff has talked to me about doing HGH treatments, but I'm very leery of that, considering the possible side effects vs what ever gains I could get. He also had suggested doing DMPS for the mercury removal, but i would never touch that stuff, based on the horror stories I've heard about it. For now , i'm working at boosting my thyroid function, w/the Armour, & my adrenal function, w/a special formula supplement that Dr K recommends.

    I know that even now, if I stick to the type of foods/diet that Dr Conley had me on back in the mid-90's that I do much better than when i get away from that. Dr Conley did some very sophisticated blood testing for allergies & found some things that were causing problems for me. Specifically, reducing the yeasts, glutens in my diet makes a big diff. Also, no milk products, less sugar, less caffiene & alcohol also helps.

    PS Re the Spartans, i was at the Wisc game on Saturday,,,,very exciting to see them come back & win the way that they did !!
    [This Message was Edited on 11/03/2008]