AMTRYPTILINE ANYONE?Need urgent answer.

Discussion in 'Fibromyalgia Main Forum' started by Cromwell, Mar 22, 2006.

  1. Cromwell

    Cromwell New Member

    just came back from the most horrible visit from the doctor, who first got angry with me for not having Lyme(his guess) then said well maybe you are in the early stages of FM(I have been like this for years was dxd years ago)then he started in on me saying if you won't take meds you cannot come in here asking me to fix you, especially as I cannot see there is anything really wrong.

    I had not really spoken till this point. Last(and only) time I saw this doc he was nice, seemed concerned. I explained that I was 1) wanting to get a dx as I had had so many different ones - to which he said I cannot define a dx
    2) I said I am med sensitive so have to be very careful what I take, so end up taking nothing most of the time except the stomach meds.-to which he reeled off abunch of meds that I said were ones I could not take.
    3) He then said had any pain med ever worked and not caused stomach problems(getting very irate). I said, well when I had a procedure done in hospital the other week they used fentynil and it cleared up all my pain, even a two day migraine, doesn't that come in a patch?

    He hit the roof, started accusing me of coming in JUST to obtain narcotics. I was crying and told him If I can hardly take a tylenol, why would you even think that, you would probably have to duct tape me to the bed to get me to take narcotics.

    I told him how badly I was hurting that day even though my pain had really subsided from the flare. He said, well some people think FM is neurological, tell me again why the neurologist would not see you a second time? Instead of saying well maybe because he is a complete ass....le like you, I said I had no idea. He said he saw me once for my vertigo and did not want to see me for the pains.

    Once again, he said, Well did you ask him for narcotics maybe?

    I really was upset by this time. I told him check my medical files my whole life and NO narcotic use ever. What the heck was wrong with this jerk? Was he mixing me up with someone or had someone suggested to him (another doctor) that I may be looking for narcotics. I intend to write to the BMA.

    In the end, he came over and really pressed so hard on my tender spots I yelped in pain. So he then said, well it could be the start of FM. I said well if this is the start, then the last six years of flares I must have imagined them, and if this is mild, for someone who had three totally natural childbirths, and kidney stone twice with NO meds at all, then I would say this is a 9 on a scale of 1-10 right now.

    I told him I did not refuse meds nor did I ever ask him to FIX me. I merely asked him for a dx as I have been told LUpus no Lupus etc. I told him I can tolerate pain so long as I know what it is. Therefore, was this pain anything serious like bone cancer or muscle disease or connective tissue disease, and if not fine, but if I was about to die I am the family caregiver to three disabled people, one a child, and I need to know when and how. I was sobbing by this point.

    He then asked what I had taken in the past for pain.I said once I took amtriptilene for severe unremitting headaache, 10mg, and it did not upset my stomach, nor did it affect my headache. So he scribbled out a scrip for that and was about to just leave, no goodbye or anything. I said, what dose is that and how do you think it will work on FM? He then said, I wrote it for 10mg you should take at least 20mg
    and I don't know if it will work or not. Just marched out left me there crying.

    I left the office walked past him and the swine never had the decency to even look up. I am so sorry his mother never married is all I can say.

    So I come here, to the only people who can answer this question. DOES AMTRYPYILINE WORK FOR FM?

    Thanks so much, Love Anne C
    [This Message was Edited on 03/22/2006]
  2. findmind

    findmind New Member

    can help FM very much, according to my SO. She takes it at bedtime, started at 25 mg., then went to 50 at some point.

    Helped her so much with sleep, which of course helps restore many things in body, including muscle pain.

    It's not a cure-all, Anne, but I do think you should give it a try cuz you're in so much pain!

    Go slowly, expect to be drowsy the first couple of days while you adjust, and give it a good 6-8 weeks to take full effect, ok?

    It is better than nothing, and I hope it helps relieve your pain.

    Hang in there....

    CATHYRG New Member

    hi, it is a antidepressive med. the docs believe it gets your natural endoriphens (pain killer)jump started. many years ago i took it @ a pain clinic. it worked for me but it also gave me a huge appetite. i too have a sensitivity to meds and understand where your coming from . i only use placquinal and nsaids when i am in alot of pain. i do chiropractic plus massage theraphy. also i always try to get a certain amount of exercise daily its hard when we hurt so bad before we even get started. good luck,cathy
    p.s. i would personally not continue to see that particular doc, if he can't perscribe he thinks his hands are tied.his options are many a few would be to recommend other types of treatment self hypnosis,tens unit etc. hanng in there and keep reading this board it all helps. cathy
  4. kaiasmom

    kaiasmom New Member

    I can't help you with the Amtrypyiline question, as that is actually one of the few I haven't tried, but I wanted to say how sorry I am that you were treated so poorly by your doctor.

    What a total jerk. I can only imagine - I think I would have had a few words for him - but in that state, who knows what would've come out of my mouth.

    My guess is that his ego is getting in the way. He doesn't want to hear about the problems you have that he can't fix. Probably makes him feel like he can't do his job properly. Not that that is any excuse to treat people that way!

    My previous doctor also had an ego problem, and it was a BIG problem! She insisted that since her friend with fibro could lead a normal life w/o prescription pain meds, so can I!!!! Well, last I checked, everyone is different. I think if you can get by without them, good for you! But for those of us that can't - it can be very frustrating to get a doctor that will listen, understand, and not think you are a "drug seeker".

    I have been accused on many occasions - once when I went to the ER with the worse migraine of my life. I was throwing up the whole time I was there, could hardly stand up & the doctor wanted to give me Imitrex. When I told him it wouldn't work, he immediately started ignoring me & just filled out his papers & left. Guess he doesn't like being told what helps people & what doesn't. Perhaps this is common among doctors.

    Who knows. I hope you can find a nicer doctor, who cares for your well being & wants to work with you to find some solutions to your symptoms.

    Take care,

  5. pirtpain

    pirtpain New Member

    I have been taking this for 8 years & I do know that it aids in getting the stage 4 sleep that is a huge issue with people with FM. Also, it is suppose to assist with pain and depression. I will tell you that I highly recommend it but

    it does cause some weight gain. I tried to stop taking it because of the weight gain, but it has helped me so much that I always go back to it. I would also find a different dr. I am sure you already know that. Some drs. really get

    my blood going. I would write a letter to whomever and voice your complaints. He is not fit to be a dr.& does not know anything about FM. Go to a rheumatologist. I have had the best care with mine. Any other dr. that you see for

    various things also need to be proficient in this disease. I wish you the best! GOOD LUCK!!

  6. Cromwell

    Cromwell New Member

    Pirtpain: How much do you take? I am trying to get an average.

    This WAS the rheumy. He was so cordial the first time I saw him. I could not beleive he was so callous this time. It was like, well all the bloods looked near normal if a a bit scattered this person is not really ill.

    I also never asked him to FIX me.

    How could he also accuse me of refusing all meds

    Then second wind accuse me of wanting narcotics

    I only ever take one tylenol not the two they recommend.

    Last time I took Amtryptiline I took 10mg. I see Finds SO takes 25mg. What about you? Do you all take it at bedtime too? I sometimes use 2mg valium, is there any difference?\

    Love Anne C

    I am still upset, these docs, they are so know it all. In my 27 years as a psychologist I never treated one client badly, even one who threatened me with a knife!!!!

    Love Anne C
  7. proteinlady

    proteinlady New Member

    So sorry you had to put up with such a schmuck.

    I took 10 mg of amtryptiline for 1.5 year. It got rid of a lot of pain for me. I had to stop because I developed palpitations on it.

    Let us know how you do on it.

  8. Beckula

    Beckula New Member

    I take 12.5 mg at night (half of a 25 mg) and it worked wonders for me. It helps my sleep and pain and I have not gained weight (common complaint).
  9. getfitat40

    getfitat40 New Member

    I am so sorry that you had to deal with this doctor...I do hope you report him to the agency that governs doctors. I know almost everyone here has run in to at least one bad doctor but it is like horseback riding - if you fall down, you gotta get back on the horse and find a compassniote (sp) doctor who treats FMS/CFS patients with respect and care for the patient.

    Ok - off my soapbox on doctors. I finally found a good rheumatologist that treats symptoms and is proactive with my treatments. The first change he made was adding Amtryiline to my meds. I take it every night at 7:00 pm and I can finally say that I sleep through the night more nights then I don't. I started with 10 mg and for me I found 75 mgs is my ideal.

    Side Affects - some. Unfortunatly, I was already overwieght so as much as I'd like to blame the meds I can't. I do have two side effects which are more annoying then anything else and I am not willing to give my magic pill up. I have a very dry mouth from it and at times I suffer from constipation - something I have never ever experienced...

    Man I am rambling - I feel good today for a change. The other changes he made with meds was to change when I take my Flexiril. I always took it at night to help me sleep. He told me to try and take 10 mgs in the a.m. another 10 mgs at 3:00 and one before bed - if needed. Between the elavil and the flexiril, I take nothing for pain - occasional tylenol. It is amazing...

    Good luck to you and not only report the doc but tell everyone you know around you what an awful doctor he is...if you tell one person and they tell one person, word will spread.

  10. laura81655

    laura81655 New Member

    Haven't we all seen them by now, except those new to FM/CFS?? If our tests are negative and they can't "Fix" us, they get offensive and act like we are nut cases, seeking narcotics, whatever they can use to turn you away. It's very typical with "These" kind of doctors.
    Can you possibly find someone else??

    I take 50 mg. of Amitriptaline at night to help with pain and sleep. It helps somewhat. Maybe start out with 10mg. for awhile and slowly build it up. I sure hope you get a new doctor too, so sorry this happened to you.

  11. horsegal

    horsegal New Member

    I've been coming to this board off-and-on for 3 years now or close to it. Right after I was diagnosed. Stories like this are just re-runs and it's so sad and disappointing. Seems as if nearly everyone has to be "baptized" by a jerk at least once. Sometimes many more times. Keep looking for an understanding doc. They are out there. I went thru about 5 b4 I found one.
  12. Chelz

    Chelz New Member

    So sorry to hear about your doc visit. Your post reminds me of what I went through for 15 years with FM.

    As far as Amitryptyline, goes, I was put on this med and you really have to watch for the weight gain. I am VERY drug sensitive, and when I was put on this drug it was only 10 mg. I gained about 45 pounds in 8 months.

    This drug does help sleep and some pain issues, but the side effects were way too numerous for me to continue the drug. Maybe you will have better luck. That doctor should be hung by his toes. Hugs to you, Chelz.

  13. UPK5

    UPK5 New Member

    I am so sorry that this doctor treated you so poorly.

    I have not had experience with amtrypyiline, but I have had experience with a doctor that did NOT listen to a word I said. And I felt so anxious after I left his office. He too, insisted that I kept taking TOO many NARCOTICS. He made up his own number.

    It is so frustrating to try and confide in a doctor and then have this person turn everything you have said inside out like a washrag and change all the information to their own beat.

    I hope you can get the help and respect you deserve and need.

  14. CarolK

    CarolK New Member

    ANNE... you deserve to be treated with kindness and care and respect... this is not the treatment you got nor is it the treatment you deserve!!

    DUMP THIS QUACK AND FIND ANOTHER DOCTOR!! I would go so far as to report him to whatever local agency is in your area.

    And I would try the meds to see if they help... if not discontinue and see a REAL DOCTOR!!

    Take good care of YOU!! CarolK
  15. Casamadre5

    Casamadre5 Member

    So very sorry for the insensitivity of the doc...too bad they are out there!

    I have been using 50mg amytryptyline at night & it made such a difference in my pain level and sleep. Dry mouth and the "hungries" are my effects. Those are more manageable than the pain, etc. without. You can determine if it is right for you. Best with it...Sandy
  16. smiffy79

    smiffy79 New Member

    hi anne
    yes amitriptyline works well for me. it helps me to sleep by keeping the pain low enough for me to get to sleep and more importantly to stay asleep.

    dont take the 20mg straight away build up. i am on 50 mg starting from 5mg and ive been taking it years. i really notice the difference if i dont take it!!

    do report your dr and then find another. im sorry this guy was a twat no one has the right to talk like that and all he demonstrated to you was his own incompetance!!
  17. Fudge43

    Fudge43 New Member

    Anne .. that was one of the most horrendous stories I have heard about a doctor's behavior .. do NOT go back to this jerk !

    I have been on amitriptline for 4 years .. but there have been changes .. I'm now on a scale back course that my rheumy formulated to try and kick start its affectiveness again for me ..

    I was up to 100 mgs at night and combined with zopiclone aka Lunesta things were NOT working .. had to come off zopiclone .. then during a 3 week period come down to 25 mgs of the amitriptline .. it has been ROUGH !

    The amitriptline REALLY HELPED .. so many other things I did not realize it till I had to go through this .. so yes ! It may help you VERY much !
    Nervous bladder .. nerve tingling .. back pain was so much better .. just all round it was nearly a miracle for me .. I take pain meds too though .. the combinations are adjusted but work so well for me .. now I KNOW for sure !

    I see the rheumy next week to start fresh .. I know I want to go back to 5o mgs .. I think that is the right dose for me .. everyone is different so it takes some adjusting.
    I would never have realized this though if I didn't have to go through this bit of hell .. I am very grateful to start from scratch again and realize what good it does me !

    So hang in there .. try to find another doctor if possible .. and I hope this works for you too !
    In case you might want to know .. I take a 12 hour pain killer .. oxycontin 10 mgs .. flexeril (muscle relaxant) 10 mgs .. I have flare pain relief as well .. these meds can work together so well .. but as i said .. it takes some time to get the right combination !

    I hope it works for you too !
    Good Luck ! Fudge : )
  18. matthewson

    matthewson New Member

    Hi honey. Just wanted to say, that I had problems with a jerky ER Dr. a few months ago, that basically treated me like a drug addict. And I WORK in the hospital system, am 52 years old and had not been to the ER in 2 1/2 years!

    I wrote about it in January. It was a horrible experience for me! I told my Dr. about it and he gave me a prescription for vicoden so I wouldn't have to go through that again, so I would have something stronger than the tramadol I usually take.

    He is a wonderful Dr. There are good ones out there. He trained at the U. of Mich. and they are actually doing a lot of research into FMS, so I am sure he got some training in it. He does not discount my pain. He actually said to me that I have a lot on my plate, and I thought that was nice of him to acknowledge my problems from this DD.

    So, there are good Dr.s out there. You may have to go through some bad ones first, but keep going until you find one who understands this DD!

    Take care, Sally
  19. Cromwell

    Cromwell New Member

    This support and information was wonderful-just what I expect from my friends here. Thank you all so very much.

    I WAS in a state. It was the accusations. As well as ignoring the fact I have been DX'd for several years with FM. I had also been Dx'd with Lupus, then told no, then told yes, and the heart doctor referred me to him, as she thought I may have connective tissue disease, due to abnormal heart problem(small at present) and he knew I had just had a bad bout with IC,(blood, protein and white cells) had the blood clot in my hand-why on earth was he treating me as if "it was all in my head?" You described him aptly Smiffy, he is one!

    I also felt that he jumped from telling me off for NOT wanting to use meds, to accusing me of wanting narcotics, when he has no evidence to suggest I ever used them(not that I would not have the right). I told him that my stomach is so bad I can only eat certain things, cannot even have a glass of wine, it is not JUST meds, it is most things.

    Anyway, I cried it out of my system with your help. YOU VALIDATED ME THANK YOU! DH picked up the meds but I was too het up to take them, so I will use one tonight as I really slept badly last night with stress bringing on a bad headache too.

    GUTHRIE have a medical center here and it occurred to me that none of these other docs will ever recommend Guthrie, then it dawned on me that these docs are ALL connected with the local(not too great) hospital, whereas Guthrie is a satellite office where they send people to very excellent hospitals some 50 miles away,(I wonder why???) plus they have all their own specialists and all their MD's are Internists too, all their nurses are RN's. So I am going back to them for my primary and all other care. I used them several years ago and really liked them. The satellite office is about five mninutes drive, and I would rather drive the hour-in fact I think there is even a shuttle bus, to PA.from the satellite office.

    Well I will give it a try tonight at 10mg BTW the pharm told DH that as I was on Prilosec it INCREASES the levels of Amtrpt. in the blood and 20mg would have been too high as a start in any case.

    I did use it once before about ten years ago for unremitting headaches, it did not work for the headaches but I recall I did sleep OK. I think I may have gained weight though.

    The only concern I have is palpitations as I already seem to have a bit of a racey heart presently, though that is explained by stress.

    We also bought our own BP monitor as another thing there, my BP was totally high in their office and usually it is low. He is my MIL's rheumy and she said her BP is always high there(machine wrong?)plus although he is OK with her she has two friends who cannot stand this doc and have the same opinion as I have. I think what threw me was he was so NICE the first visit, when I deliberately had not mentioned the FM. He also said, "You seem to know a lot about meds" in a sarcastic way, and I had to remind him I was a psychologist. Seems as if one has to be subservient and dumb reminds me of that joke: What is the difference between God and a Doctor? Answer: God doesn't think he's a doctor.

    Love you all, I'll put this to rest now.

    LOVE LOVE LOVE hope Finds SO is better today.

    Anne C
  20. mme_curie68

    mme_curie68 New Member

    Anne -
    I am so sorry to hear that that JERK treated you so badly. As far as I am concerned, doctors like that should be barred from practicing medicine. How dare he!!!!!!!

    I agree that you should complain to the board of medicine, BUT, if the Boston board is any comparison they will side on the side of the doctor and if anything happens at all it will just be a slap on the wrist.

    A way to get some more help is to write and call the director of the practice or hospital. THAT gets attention. I have used the power judiciously, but wow, did I get a response quickly when I felt I was handled rudely.

    As for the doc, time to shop for another rheumatologist. Ask outright if he/she is a Board Certified Member of the American College of Rheumatology. Don't see anyone who isn't. Many docs represent themselves as "board eligible" - this means the ARENT board certified.

    The American College of Rheumatology has criteria for dx of FM, it is primarily diagnosed by symptoms, tender points and other tests that rule out Lupus, Rheumatoid Arthritis, etc., that can cause similar symptoms. I know you already know this - but I really can't believe that this moron treated you that way.

    Find a doc who has experience working with and treating FM patients on an ongoing basis. Tell this doc to take his scrip and put it where the sun don't shine!

    I was given amitryptyline (sp?) when I had vulvovaginal dynia that caused bladder spasms. Before a specialist dx'd chronic yeast infection as the source of the problem, I was treated for IC pain with that drug.

    It does seem to help people BUT it is an ancient tricyclic antidepressant that has loads of side effects and interacts with other meds. Also made me gain scads of weight. Neurontin, Lyrica, Cymbalta are newer meds being used for the treatment of neuropathic pain with much better side-effect profiles than amitryptyline. However, if it works for you, take it at least until you get a different doc to transition you to someone else.

    Write him a complaint letter and send registered copies to his bosses, and the med. board. Your records will bear out that you are not a junkie.

    Madame Curie

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