AN UPDATE ON MY MAJOR FMS FLARE THAT I'VE BEEN HAVING...

Discussion in 'Fibromyalgia Main Forum' started by kjfms, Dec 1, 2006.

  1. kjfms

    kjfms Member

    As some of you know I have been in a pretty bad FMS flare and for that reason have been posting as much as I usually do.

    I wanted to thank some of you for being so nice and supportive when I posted about being sick on 11/16/06.

    Eileen (CanBrit), Hayley (Hayleycole), Laura M. (aintasgoodasIoncewas), and nyrofan thanks you guys for being there for me you will never know how much it meant to me.

    I have been really sick and to have you all show me the compassion and empathy that you did on that day did so much for my spirits that thank you does not even come close to expressing my gratitude but it will have to do.

    The only black spot of that thread was of course the inappropriate force feeding (for lack of a better phrase) of the grape-seed extract by a certain person whom I will not mention.

    Laura and Hayley thank you both for your support on that subject.

    Anyway I just wanted to thank you all again :)

    I am feeling a little better today. I was sent home from work Wednesday because of extreme fatigue, confusion, and migraine.

    So just when I am starting to feel better a storm is moving in and the regular FMS pains are starting in my neck, hips, ankles, etc... well I just can't win but at least I am think a little more clear for now :)

    We did another TSH and it is still up so she [my physician] is increasing my Levoxyl again -- I hope this helps if not I am going to ask for some T3 to be added in six weeks.

    I will say one thing when my physician said that an FMS flare can mess up many things in the body including the thyroid she was not kidding.

    I had never heard of this until now -- I am so glad she has other FMS patients and very lucky indeed...

    I hope you guys stay safe in these storms.

    I am listening to the scanner because we are having some really high winds (up to 60 mph). Some power lines are going down. They are taking the oxygen and dialysis patients off and putting them on generator backup power -- say a prayer for them.

    I am going to go find the flash light, get some water, find the camp stove, etc. Just in case...

    Thanks again,

    Karen :)
  2. singingirl

    singingirl New Member

    We were suppose to get some bad weather down here Wed and Thurs, but thank God they went north of us. A tornado touched down real close to my aunt's house, but they weren't hurt.
    I know what you mean about the pain with storms. I can just about be a weatherman with the way my body hurts on cloudy days.

    I do hope you are feeling better.

    God Bless
    LaTrecia
  3. NyroFan

    NyroFan New Member

    Karen:

    You take care of yourself and try not to worry. As you know stress goes right to body system and we end up aching and hurtin.

    I have read your posts for a few years now and know you are suffering.

    Please get some quality rest. I find that if I rest for three or four days I have the energy to do a few things.

    What miserable diseases we have. I get the way you do also.
    I understand.

    Rest, rest, rest and then try to rally as long as you can.
    Of course you will know when it is time to stop and rest again.

    I was on a walker until I found my present doctor. Well, now off the walker and although my legs hurt like heck: I manage.

    You take it easy (just a suggestion, if you can).

    I wish the best for you.

    nyrofan
  4. this, and, you're quite welcome, and I completely understand about how much compassionate, empathetic, understanding posts, at those certain end-of-your-rope times, can really help, beyond words. Doesn't take away pain, but, can help the depression or tears, when we're that bad off. Kind of just screaming into cyberspace, due to lack of relief, exhaustion of the flare, etc..emotional aspect, etc.

    I wish you the best...I'm in terrible shape myself right now, and won't be on for a while, I haven't been, for many days, also,

    My pug is still* (a week later) in her 'post-seizure' (post-ictal) phase...and it's worried my husband and myself to death, and broken our hearts...My sister has been coming over each night, she finally quit seizing after having FOUR, within 10hrs, early-mid monday morning..but, has still been pacing, whimpering, she's blind in her left eye still,, but seems* to have better/worse moments, as of last night, thank GOD. She's our baby, and it's horrible, to be up all night, not knowing how to comfort her, whimpering, and being 3/4 blind, is scary to her, I think, and she's just been so confused, restless, etc.

    I wasn't getting ANY sleep--not good, I was already in poor shape, I've missed 5 doctors appts with 4 different ones. All of them needing to see me....weeks/months ago..

    Awful when we're too sick to even GET to the doctors!

    Also since my baby Pug (Abby)'s seizures, I couldn't leave her right now...She did sleep 6hrs last night. THANK GOD, finally! and we're seeing glimpses of her here and there. She's on so much phenobarbitol & potassium bromide, though, I have to watch her every moment, (potty accidents, wandering, running into things, falling off the bed, while trying to *jump* off of them...etc.)

    Goodness I AM RAMBLING...I just wanted to be sure to acknowledge your post, & say hey.

    I hope I can be back on soon, also, but not until my baby doll is better. We're waiting on X-ray's to be read by a specialist, the vet thinks her heart may be enlarged, and she also has a very narrow area in her trachea...I'm FULL of pain, insomnia, nausea, & now anxiety. I literally have prayed myself into terrible headaches, every day/night, since her first seizure Thanksgiving day.


    Anyways, I wish you well, and send you hugs...

    Hope to be back on soon..


    Laura M.
  5. kjfms

    kjfms Member

    Hi Latrecia -- So glad nobody was hurt. Yes it is amazing what the weather can do to our bodies. The storm past us by and the winds have calmed so that is good news :) I am feeling better thank you.


    Hi Prickles :) -- You are right maybe I should check into getting a TENS Unit thanks ;)


    nyrofan -- You always give such good advice and you are so right stress is so bad for us.

    I am feeling better and have been getting lots of rest and sleep (the best thing) and the storm missed us so the pain is easing thank goodness :)

    nyro I am so sorry your legs are hurting you so bad do hot baths help at all. I hope you have something to ease the pain a little.

    I will take you suggestion for the rest of the weekend the only thing I have to do is go see my mother and that is not a job it is a pleasure. I know she looks forward to my visits as I always enjoy seeing her too :)

    You take care of those legs (not a suggestion...LOL)

    Stay warm :) Karen



    Hi Laura M. -- Oh I am so sorry about your little pug I do hope she will recover very soon. How awful for you -- I understand how she is you baby. I have a Norwegian Elk-hound who will be 12-years-old on Christmas day (I have been getting her age wrong) anyway -- she is my baby and I know I would be a basket case.

    Bless you heart I bet you are worn out please try to get a little rest you do not want to make you self sick. Don not for get to drink some water :)

    I will keep your Abby in my good thoughts.

    You most certainly are not rambling your Abby is very important and close to your heart and I am very touched that you chose to share it with me. I really hope everything will be OK.

    Take care of you too,

    Karen :)
  6. CanBrit

    CanBrit Member

    Just saw your message. I'm not on the board all that often so I sometimes miss posts.

    I'm glad I could be of help through your tough flare. This fall seems to be absolutely horrible for people with FM. I never used to get headaches, have thyroid issues, nerve pain and all the other little wonders of this condition. Sometimes makes you feel like you hit a Mack truck!

    Glad to see your Dr. is upping your thryoid dosage. I had to ask my Dr. to up mine to 75 mcg's and I'm my is still high 2's. I really thing I'd do much better if I was closer to 1. To be honest, when my thyroid went south, the only symptoms I noticed was I was getting puffy, had lousy hair and trouble losing weight.

    Can't say I feel a whole lot different with treatment...just not as puffy!

    Anyway, not to ramble on. I hope your weather improves and helps make for a happy holiday season.

    All the best,

    Eileen