Discussion in 'Fibromyalgia Main Forum' started by Solaris_Starr, Dec 21, 2005.

  1. Solaris_Starr

    Solaris_Starr New Member

    Hi everyone, I from Montreal, Quebec.
    I was just wondering if there were any fellow Canuks on the board. If so, how are you getting on with are wonderful medical system? What have your experiences been as a Canadian with CFIDS/FMS ?

  2. poodlemommy

    poodlemommy New Member

    I am Canadian. Keswick Ontario. Ah yes ,our medical system. I guess were lucky we dont have to pay for it like the U.S. I wouldnt give you 2 cents for the hospital system. As for family doctor and fibro specialist Im blessed. Great doctors and very caring. No complaints there. I hate our emergency rooms at the hospital and dont care for the waits with specialists. Merry Christmas.
    hugs poodlemum
  3. Pianowoman

    Pianowoman New Member

    Hi. I'm in Toronto. I'm lucky too with good FD support and a good FM/CFS Specialist. I was diagnosed just under 15 yrs ago but it took a while to find someone who knew how to really help me. I am making progress now but it's slow probably because I have been sick so long.

  4. pepper

    pepper New Member

    Quite frankly I am not impressed with our "universal health care". I have been sick for 13 yrs and have spent almost $100,000 on uncovered treatments to try and regain my health.

    Finally, after all these years, I am starting to find some improvement thanks to going outside the medical establishment and using alternative health care - which is not covered of course.

    It's nice to meet you, Sandy.
  5. Gly

    Gly New Member

    I'm in BC. I've been treated quite well so far except for one trip to the ER. My GP asked me to go there during a flare, for blood tests. Even though I explained what I was there for, the nurse took my blood pressure and was very rough with me. I was in agony and was pale and shaking. She assumed I was there for drugs and I kept telling her I just needed a blood test. Somehow it finally sank into her brain that I didn't want drugs. After my blood was taken at the lab I had to leave through the ER door. The same nurse was SO apologetic. I think she was really embarrassed at treating me that way.

    I decided after that not to say that I have FMS. I just say I have chronic pain. If further info is needed, I say I have "symptoms of fibromyalgia". It's sad but there's such a stigma still with a lot of people if you mention fibromyalgia.
    [This Message was Edited on 12/21/2005]
  6. sdown

    sdown New Member

    Well I used to live in Ottawa 20 years ago now Im stuck in Klein's world, lol. If you don't like cowboy boots and country music you'd better turn the old truck around and head for the hills, lol. Ive had CFS for 5 years. The first year sucked as no one in this frigging city could help me. The first doctor said you have CFS but no follow up and nothing suggested and no tests done. Second doctor suggested an Acupuncturist. Neurologist was useless, etc. etc. I went to Kansas City, Missouri where a wonderful Dr. Carol Ann Ryser did all the proper tests and gave me the answers. She said you have pernicious anemia, the HHV6 virus, poor circulation (bad sed rate), Addison's disease (adrenal gland exhaustion) and mercury poisoning. So $10,000 later I got my answers. In Calgary I see a regular doctor if its minor stuff and the more complicated stuff I go to a private clinic which costs $80.00 for 15 minutes with the doctor. Pretty insane. It seems no matter who you vote for they all do a terrible job on health care. Our emergency wait times are pathetic just like you guys out east. Its very bad. One lady told me she waited 12 hours. I didnt have to wait recently as I was having convulsions. But there are times the ambulances are backed up outside maybe 5 - 12 of them waiting to get into the hospital. Very scary.
  7. Solaris_Starr

    Solaris_Starr New Member

    I so happy to meet all of my fellow Canadians! Are there any more of us on this board?

    I guess we have all experienced the nightmare which is are medical system! Some times I'm just embarrassed! Seriously, you'd think we were living in a third world country, and I question most of our doctors credentials!!! Never mind their bedside manners! Well the Government is so busy spending money to cover up scandals, that there is none left for important things like, "HEALTH CARE"! If it keeps going the way it is,everyone will end up dying off and there won't be anyone left to vote these retards in!

    But that's only my opinion, of course.

    Hugs to all my Canadian CFIDS/FMS Suffering Sisters & Brothers!

  8. zoya19

    zoya19 Guest

    Hi fellow Canadian's,

    I live in Kingston, Ontario.

    I feel the medical system is not the best. I find there are not enough doctors to serve the needs of the people. Also, I have very little trust due to some medical/surgical mistakes in the passed. Also, not enough doctors believe fibro. is a real thing. The only thing I am glad about is we don't have to pay to see a doctor.

    Happy Holidays everyone!

  9. Solaris_Starr

    Solaris_Starr New Member

    Well you get what you pay for!

  10. Redwillow

    Redwillow New Member

    Hi Sandy, I am from Ontario.
    it took almost 30 year for my FM to be diagnosed. I have had more luck with alternative medicine than MD's. I am currently seeing a Naturopath and doctor who specializing in FM/CFS in the Toronto area that I hope to have more luck with. It is a 2 hour drive for me to see them though!

    hugs Marion
  11. razorqueen

    razorqueen Member

    and thankful that I don't have to pay for dr visits and tests. Don't care for the waiting time to see my dr and to get tests done, but it could be much much worse.
    nice to meet you,
  12. darude

    darude New Member

    Ya another ALbertan here although originally from London, England. Experiences have NOT been good. Especially going to ER!!! They thought I was having a heart attack and I was unconsious! STILL had a 12 hour wait and Doctor said was probably menopause!!! YA REALLY. Last few years we have lost two kids with appendicitus, two given wrong medication and numerous others that were misdiagnosed. SCAREY isn't it. Oh and I DON't mention fms if I go to ER.
  13. pepper

    pepper New Member

    I too have learned to never mention CFS or FM at the ER. Usually they don't even write it down, hold the pen over the form waiting for me to give them some "real" problem that I might have.

    Except for sleeping meds and BP meds for now, I have shifted to alternative health care. And for the first time in 13 yrs I feel that there is hope of improving my health.

    Like you, ruthless, I have decided to get better and make it my calling to help others who are battling the medical establishment and the insurance companies. I can't wait to help others who end up in our shoes! And hopefully they won't have to put up with what we have had to endure.

  14. Fudge43

    Fudge43 New Member

    Sandy ! Zoya19 ... and all the rest of my fellow Canucks !

    I guess I made mistakes saying what I was diagnosed when in ER .. BUT ... I have been in for chest pain which they don't fool around with ( trying to make myself finally submit to that angiogram is driving me crazy .. still CHICKEN ) .. my doctor is getting discourage by our medical system too .. she compares Canada to "No Frills" to "Loblaws" for the Americans .. I think you guys get the picture with that one ? haha ... Sometimes you just have to laugh.
    I work very hard trying to do good things for myself .. supplements and nutrition etc .. yoga .. treadmill ( back into it after the holidays .. sigh ) ..
    You have to work foryourself and be strong when you need to be listened to .. stubborn in a good way .. still working at that.
    With the election coming up heaven knows what crap will be promised and then suddenly amnesia will set in for who ever is elected .. better the devil we know because we sure don't have options for decent PM here !
    In any case .. I wanted to say hi to the rest of the canuck crowd here !
    Good Luck to us ALL !
    Fudge : )
  15. toronto133

    toronto133 New Member

    I mistakenly thought we had a good health system here until I needed to use it!

    The only treatment that I have received for the FMS in Canada was being told by my doctor to exercise! This year I made 6 trip to the US to seek medical help due to pure desperation.

    I agree that we need other solutions and a complete overhaul of the existing ineffecient and backward system here.

    Trying to explain to the US doctors this year that tests that are routine in the US are unheard of here was hard. The FFC kindly tried to save me some money by having my some of the basic tests run in Canada. My Toronto doctor's response was that the tests were "a waste of the Canadian Taxpayers money".

  16. pepper

    pepper New Member

    a small part of my experience with the Canadian medical system. My GP diagnosed me immediately with CFS because I brought him a list of my symptoms which to my mind at the time seemed totally unrelated. I am very grateful that I did not get the runaround that so many have had to get a diagnosis.

    However, he was at a loss as to what to do for me and referred to to the CFS specialist in the city (also famous throughout the country and the world at the time). I couldn't get in to see him for 6 months!

    So I had a diagnosis but no one willing to do anything for me for 6 months! At the time I thought the delay was because he was so busy. But it was due to the fact that he wanted to make sure that the fatigue and other symptoms lasted for 6 months or longer before I saw him. In other words, he only wanted to see me if I was really sick.

    I saw this "specialist" who confirmed my GP's diagnosis (Duh!) and whose treatment consisted of sleeping meds (which was a good thing since I really wasn't sleeping more than a few minutes a night), anti-depressants (which messed up my system for years and caused a huge weight gain) and advice to start preparing for a divorce since most marriages cannot survive these DD's.

    I saw this guy off and on for a few years before I realized that he wasn't helping at all. In fact he was hurting my recovery because he was so very negative about my prognosis and my life.

    I have gradually turned to alternative medicine over the years because that is the only place where I get any relief and hope.

    I am seeing a wonderful naturopath who is helping my symptoms.

    My friend with severe CFS/FM is seeing a doctor friend in the U.S. and she has had her first relief in 15 yrs.

  17. Solaris_Starr

    Solaris_Starr New Member

    My fellow Canadians, I feel your pains and suffer them on a daily basis. Warm, soft, Christmas Hugs to you all! United we stand, Divided we fall! Hang in there......something has got to give. Lets keep each other informed on a Canadian front. If one of use gets some good info post it up for the rest of us Canuks.

    Lets go to Arizona, it's warm,it's dry, it's always sunny...warm dry heat is great for pain! I need a spa!!!!!

    Merry Chistmas

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