Any Fibro Specialists In Memphis

Discussion in 'Fibromyalgia Main Forum' started by Meghanne, Feb 25, 2006.

  1. Meghanne

    Meghanne New Member

    Ok, having a hard time finding a doc to let me try Xyrem. Current docs haven't completely ruled it out yet, BUT..

    I really need a good FIBRO savy doc here in Memphis. I'd love to go to the FFC in Atlanta, but at 6 hours away that would mean two days off of work for each appointment for me and my fiance'.

    Trish
  2. kdeenak

    kdeenak New Member

    I do live in Arkansas and I have seen a Dr. in Little Rock who I could recommend to you. I know it is a couple of hours away for you, but just in case:

    Bruce Safman, M.D.
    600 S. McKinley, Ste. 308
    Little Rock, AR 72205
    Tel: (501) 666-2824

    He is on the fibro-friendly doctor board here. He is a pain doctor who really understands fibromyalgia. He is a good, understanding doctor.

    Hugs,

    Deena
  3. lakeredy

    lakeredy New Member

    I live in Arkansas too. In Trumann. Its in between Jonesboro and Marked Tree. I have a summer place in Heber Springs so I go to alot of dr's in Little Rock. Do you like this dr you are seeing there? Does he give you your pain meds without any trouble? I've had 4 back surgeries and have had FM for about 10 years so I need pain med, sleep meds, Zannax.

    Thanks,
    Karen
  4. Meghanne

    Meghanne New Member

    Right now I'm just seeing my internist, James Boone, through Healing Arts Medical Group, which is great, because he does holistic as well, and has an accupuncturist that cofounded this multi-speciality practice with him.

    I'm going to the Methodist Sleep Center, see Karen Berry as my psychiatrist, and was diagnosed by Cathy Chapman (Rheumy). The rheumy I went to after her retired, so I haven't gone back to a rheumy. They don't seem to offer much help anyway. :( I saw Autry Parker (wonderful) as a pain specialist.

    I know the Sleep Clinic at Baptist is using Xyrem, but I'm on a Methodist insurance plan.

    Trish
  5. elsa

    elsa New Member

    Have you had your sleep study done yet? A friend of mine had hers done at Collierville Baptist ... Her Doctor ... Group the runs the sleep center ... was very willing to rx xyrem for fibro induced non deep wave sleep. She didn't go for it as lunesta was working for her ....

    I'll ask her what his name is if you'd like or ask you can ask your doc for a specific referral to Collierville Baptist ....

    Elsa
    PS .... Dallas is just a shade less distance from Memphis then Atlanta is, but the drive is very, very easy ... Go to Little Rock and kinda turn to the left ... Will land in Big D ... LOL ... Sort off, lol.

    There have been a few members here that go to the Dallas FFC ... My sister sees Dr. Kippels for Hormone Replacement and really likes him.[This Message was Edited on 02/26/2006]
  6. Meghanne

    Meghanne New Member

    I've had two sleep studies. I wanted to go to Baptist because I KNEW they were using the Xyrem, but I'm on a Methodist PPO. :(

    Ugh, huh? :(

    Trish
  7. kdeenak

    kdeenak New Member

    I haven't seen him in a long time. I was in "remission" for about three years, so that was the last time I saw him. (My FM has come back, but since then I have married and moved to Hot Springs, about an hour away and don't have a way to get there--long story)

    Anyway, I saw him several times and he was very knowledgeable, sympathetic, and understanding about fibromyalgia. Really the only doctor I ever saw who WAS. I got the impression that he didn't give out a lot of narcotics to FM patients because he told me about people coming in who had been treated with them and slept 23 hours a day, were drugged up, and still in pain. He said if you were working (which i was at the time) or going to school that you just couldn't live like that. He treated me with Ambien for a while, various other medicines for sleep, worked with my GP on Topamax, gave me pain patches with Lidocaine, etc. He was always willing to try things though and willing to listen. He also did trigger point injections.

    I hope that helps you a little.

    Hugs,

    Deena
  8. Meghanne

    Meghanne New Member

    I go to church with Cathy, which is why I went to her for my initial diagnosis, but that's the only appt I ever had with her because of her "bedside" manner. I didn't like her as a doctor at all. Keep me posted on the new doc.

    You DO need your doc to refer to to Dr. Parker. It can be your rheumy or Internist. He doesn't promote narcotics for fibro either, and they are both right, narcotics typically don't help fibro, EXCEPT at high doses. I was on Oxycontin for a while, then he switched me to the Duragesic patch, but all that time he was doing trigger point injections as well. He also did Ocipital nerve blocks for my ocipital headaches, and a radiofrequency denervation (severing of the nerves to the spinal column) for a back problem.

    He prefers to go with minimally invasive procedures for pain, and also has a PhD on staff who deals with education in pain management patients.

    Trish
  9. abbylee

    abbylee New Member

    I have a list of most of the Xyrem docs in the US. Here is what I have for TN:

    Lim, Robert T. Jr. MD family practice 900 Conference Dr. #8 Goodlettsville TN 37072 615.859.8488 615.859.8696

    Haynes, J. Brerard MD sleep 4230 Harding Rd, Ste 807 Nashville TN 37205 615.385.1946 615.269.3970

    Arons, Murray M. MD sleep, pulm 3443 Dickerson Pike, Ste 680 Nashville TN 37207 615.865.3322 615.865.3167

    Phelps, Thomas F. MD family, sleep 1750 Cedar Ln, Ste 300 Tullahoma TN 37388 931.393.7941 931.455.2272

    Chandra, Anuj MD sleep 6073 E Brainerd Rd Chattanooga TN 37421 706.657.3360 706.657.4400
    Dengler, John M. MD neuro, sleep 105 Woodlawn Dr Johnson City TN 37604 423.928.6174 423.926.2258
  10. Meghanne

    Meghanne New Member

    Thanks. *sigh* They're pretty much all as far away as Atlanta would be for me. Darn this long skinny state!! :p

    At least my docs aren't ruling it out yet, and I'm printing your list in case. I know there's one at Baptist in town, and I may have to go out of network, at least I have a PPO so it would pay SOME, and I wouldn't have to travel.

    Hugs,
    Trish
  11. abbylee

    abbylee New Member

    My list is constantly being updated, so if I see a doc in your area I'll let you know. Are you close to any other state that might have a Xyrem doc?

    abbylee
  12. Meghanne

    Meghanne New Member

    Memphis is in the southwest corner of TN, so AR and MS are both close.

    Thank you so much.

    Trish
  13. lakeredy

    lakeredy New Member

    I have been looking on this site for someone that lives nearby. So you live in Jonesboro? I'm just down the road in Trumann. We will have to get together some time for lunch or something. Would love to meet you. It would be nice to talk with someone who understood what we go through. I haven't worked since 96. I was a florist but in 95 my back went crazy and have been off work ever since.

    Have you always lived in Jonesboro? I grew up in Marked Tree. Moved to Heber Springs. Now I live most of the time in Trumann but still have a place at Heber. That is where I really love to be.

    Let me know if you would like to get together.
    Karen
  14. lakeredy

    lakeredy New Member

    Thanks for the info about Dr. Safman. I need the pain meds for my back mostly. I was seeing a rumy in Jonesboro and she was real good but she moved and I'm not in love with the one who replaced her. She does give me the injections though. But she won't give me ambien everynite.

    My PCP gives me halcion, but he warns me not to take them very much. He says only take them everyonce in a while. So I may take 1 or 2 a month. So I hardly ever sleep over 3 or 4 hours a nite.

    Can you tell me where McKinley street is in Little Rock?
    Is it off of 630?
    Thanks in advance for you info,
    Karen
  15. elsa

    elsa New Member

    The doctor I mentioned is Robert W. Schriner MD with Memphis Lung Physicians Group,PC. This is a huge practice so surely they have Methodist privileges too.

    They have three offices with one being within Baptist Collerverlle ... others in Southhaven and the 6000(?) block Walnut Grove ... That last one is Dr. Schriner's phonebook address listing.

    If your sleep studies, or at least one of them, is recent, perhaps Dr. Schriner will work off of it instead of ordering a new study done.

    Don't know about the group as a whole, but Dr. Schriner is fibromyalgia savvy and one of his tech's also has fibro.. The tech's are trained to read brain wave patterns which is impressive.

    He'll look for severity of your Alpha Intrusion, number of awakening and how effected your REM sleep stage is. Where that one sits indicates various problems ... ie high REM can indicate depression.

    On the flip side, no REM Sleep Stage will prove to bone head docs who think fibro is "all in your head" that your fibro could not possible be depression related ..., lol.

    They have one of many pamphlets in their waiting room on fibromyalgia and xyrem. He has been known to point it out ... needless to say, he 1. Isn't affraid of it and 2. If a patient needs it for fibro, they'll get it.

    Just curious, but have you tried ambien and/or lunesta? Lunesta helped me greatly. My sleep is not a problem currently, but I won't hesitate to do whatever it takes to treat it again with whatever it takes in the future.

    I would seriously consider paying the out of network fee to see this Doc.. That would run ususally between 60 and 80% coverage with the rest going to you. It seems worth it to fix one of the major faults / disordered systems in fibro patients.

    Good Luck,

    Elsa

  16. Meghanne

    Meghanne New Member

    Thanks Elsa!!! If it doesn't work out at Methodist, I'll go out of network, and SOON!! I'll also ask if the docs at Methodist could consult with him. That's always possible. :)

    I'm on Ambien 20mg right now. Yea, I know my doc prescribes it at about the recommended dose because it's all that helps at all. I've been on literally everything. Tried every non-pharmaceutical approach, etc.

    They've even been talking about sending me to Stanford because it's the best sleep center. But I can't exactly afford that trip now that I'm job hunting. :(

    Trish
  17. kdeenak

    kdeenak New Member

    Yes, his office is off 6-30. I don't know if you are familiar with Little Rock much but it is off University Ave. next to Doctor's hospital and the Doctor's Building. His office is behind Sears. I honestly can't remember the name of his building though. It is a tan building, four or five stories.

    Hugs,

    Deena
  18. lakeredy

    lakeredy New Member

    Thank you. Yes I know where University Ave. is. I know the building you are referring too. My spine Dr. is in that building. Thanks alot. I will make an appointment to see him.

    Karen
  19. elsa

    elsa New Member

    You'll get it worked out. I haven't taken ambien but it's only because lunesta worked well for me. I started at 2mgs and then down to 1mg.

    I understand about trying every natural approach there is. I had a pretty good one .... l-theanine, gaba, 5-htp, melatonin, and zma. I fell asleep ok, just couldn't keep me asleep. I'm sure you understand.

    Finding my way into remission has allowed me to ease off of my lunesta. It's always there if I need it, but at the moment I'm holding my own.

    I take 1mg melatonin now .... more for the anti-oxident and "re-setting" of all the other hormones then for sleep. It does help put my in the sleep mood though.

    There have been some good studies lately about melatonin ... more is not better in this case ... can't really remember the particulars right now, but I have read it from Teitelbaum and Dr. Sears .... maybe even Life Extention ... Oh well, that's kind of off topic anyway ...

    Good luck to you ... I think I have heard of that doc in Little Rock before ... I think he's pretty good if memory serves ... Also, good luck on your job hunting .. Let us know how it goes ...

    Elsa
  20. Meghanne

    Meghanne New Member

    Thanks for the encouragement.

    Trish