Any one else ever have this happen to them, voicebox...

Discussion in 'Fibromyalgia Main Forum' started by texasratgirl, Feb 23, 2007.

  1. texasratgirl

    texasratgirl New Member

    Any one else ever have this happen to them.

    Ok, let me set the stage. Sorta long (sorry).

    Christmas, got a sore throat, really hurt to swollow. The right side hurt the most. Hurt so, much that it would wake me up when I was sleeping. Was told I was even wimpering in my sleep, I guess from the pain.

    That pain subsided, but throat still hurt and felt really run down.

    Could not even hardly make it to the kitchen.

    Fiance had to leave country on business, the first week of January. Home alone.

    By the 23rd, sounded so bad, couldn't get more than 3-4 words out without gasping for air. Still hoarse and very bad dry cough.

    Dear honey, jumped a plane back home to make sure I was ok, and help take care of me. :} (he is really a great guy)

    Go to doctor for the 3rd time upon his arrival.

    No asthma, broncitis (?), Phenmonya (?). Allergist said he thought it was due to stress.

    Yesterday doctor (ENT) said it was a sinus infection.

    At this point, I have been on 3 rounds of steroids, 3 rounds of antibotics, still not better.

    Today went to s different ENT, NO SINUS INFECTION!!!

    Still very very hoarse.

    He put a scope in my nose, to look in my throat.

    Found a very swollen voice box. And that my Vocal cords (larynex) is not doing what it is suppose to do when I talk or try and make sounds.

    OF course I can't remember what he called it, and with my dear honey out of the country again, walked out very confused.

    He thinks it might be a neurologial issue and maybe a lung infection.

    Sent me for lots of bloos work, chest & throat x-rays, and wants to get an MRI of my throat next week.

    Not quite sure what to think now. And with my honey gone, tired to talk to him on the phone, but too hard. He told me not to talk, so I don't make what ever is wrong worse.

    He thinks I sound like the people that have to use that machine placed on their throat that enables them to talk. I guess he think he is a comedian. :}

    Anyway he is coming home for my next appt. in two weeks.

    Has anyone ever had anything like this or similar happen.

    And any clue as to my voicebox and hoarseness being part of this condition/nerologic.

    Please any input would be great. Sorry for the length of detail.

    TRG




  2. mrpain

    mrpain New Member

    Knew a lady who had a similar problem that went to an ear, nose, throat doctor....It's a long story and I'm not good about getting into all the details, but the bottom line for her was that she had to rest and not talk at all for a period of time. It was a hard thing for her to do, but it made a hugh difference and she recovered from it.

    She does however, has a tendency of having it re-occur due to her job which has her talking a lot in her job. For her, she has to over use her voice on a daily basis.
  3. doxygirl

    doxygirl New Member

    "WOW" you rstory sounds like I could have wrote it!

    This past September I came down with what I thought was a cold/sore throat.

    I got laryngitis, sinus pain , sore throat, ear pain, etc, etc, the problem is that this went on for almost four months!

    I was devastated! BUT.....what I found out was that my workplace was infested with MOLD!

    "YES" MOLD! MY Dr finally had a special blood test called an IEG done on me and it came back positive for mold!

    In addition to the above symptoms , I also lost weight, had stomach pain, that was increasingly getting worse to the point it was hard for me to eat and,.... anything I did eat hurt my tummy, I had wheezing in my lungs, chest pain, and discomfort, plus more but I can't remember all right now.

    Is there any possibility that you are being exposed to mold?

    I have been out of the work building for over three weeks now and some of my symptoms are improving, the wheezing is subsiding, the stomach is feeling better, and I don't feel so "alzheimery" ( I couldn't think straight)!

    I do however have an uti ( urinary tract infection which I attribute to the mold as well, and if you do a search on toxic mold exposure you won't believe what it can do to us humans!

    Iam so curious if you indeed are being exposed to mold since your symptoms sound so familiar????

    PLEASE let me know if you think you are being exposed to mold, this has my curiosity aroused!


    Hugs
    Doxy
    [This Message was Edited on 02/23/2007]
  4. AllWXRider

    AllWXRider New Member

    Doctors are use to treating normal ppl.

    For decades, I realized that I would catch every thing that came along. It was my doctor, a D.O. that called it CFS and tested me for chronic viruses.

    Further research suggested toxic metals and so I got a hair analysis just to check. Sure enough, I have 4X the threshold of Lead, Cadmium and Antimony of healthy ppl.

    Lead & Mercury weaken the immune system.

    Ask if you can be tested for Epstein-Barr virus and Cytomegalo virus.

    Olive Leaf Extract is a great broad spectrum antiviral, antibiotic. Tumeric inhibits the growth of Epstein-Barr.

    If you know what viruses you have, you can try targeted Transfer Factors. The ProHealth Immune C is a wide spectrum TF but its expensive.

    Lastly, try some of the Systemic Enzymes. "Forbearance" has had great success with Virastop. Dr. William Wong N.D. recommends Vitalzym. Enzymes reduce inflammation, cleanse the blood, dissolve fibrin blockages and dissolve the isoprin bond of certain viruses.
  5. texasratgirl

    texasratgirl New Member

    mr. pain- ne ever callstried the no talk thing since the start of January- no one ever calls but dear honey when he is out of the country. And then we only talk once a day for the most of 20-30 mins. And when he came home, he was such a Hitler nurse. NO TALKING< WRITE IT DOWN IF YOU NEED TO TELL ME SOMETHING> So thus far not talking hasn't seemed to help.

    doxy-no mold that I am aware of. Mainly just stay at home and go to the grocery.

    allwxrider- I do know that I have test positive for EBV.
    But what is Cytomegalo virus. I have never heard of this???
    Also, how do you get tested for toxic metals?? Is it a blood test? Who would order it. Where do the metals come from??? I am going to see a nutritionist and I know that he'll run a bunch of blood work, would he run this kind of test too???

    TRG
  6. doxygirl

    doxygirl New Member

    Hi,
    Do you think it would hurt to have your Dr at least check for mold? It is called an IEG test,................. when they did my blood work they did this test.

    You might not even be aware of the fact of its presence...I recently watched a show o HGTV (home and garden tv) these people were having their home (which was near the beach) re-decorated.......when they pulled up the carpet there was MOLD everywhere............

    These people had NO idea it was even there.........I believe that you must have an allergy, compromised immune system, etc to get sick from mold ( I may be wrong)

    My intent is only to help you figure this out.........

    Let me know how your doing and if you get any answers

    Hugs
    Doxy
    [This Message was Edited on 02/23/2007]
  7. MsOnlyMe123

    MsOnlyMe123 New Member

    I have been cursed with Spasmodic Dysphonia also known as Laryngeal Dystonia. I came down with pnemonia (sp?) the winter of 2005 along with soar throat and everything else. My voice, till this day, has never been the same. Went to Primary doctor - sent me to ENT doctor and did the scope up my nose and down the throat and diagnosed me. Then went to hospital, not all hospitals do the following, another test with voice. Diagnosed!!

    I should have gone, and still should go, for speach therapy per doctors. If that doesn't work, the doctors suggest I go through the Botox injections in my vocal cords. (NO WAY)!! (This is a very intense procedure and only very specialized doctors are trained to do this) I never feel well enough to make the ride 3 times a week to the Hospital for therapy. I'm not able to find a therapist to come to my home, and the doctors office workers suck and one of them said to me "I don't have time to find you a therapist" and hung-up. Called the doctor on his cell phone (I don't even remember how I got the number) but he said it would do me good to get out of the house and get to voice therapy. He does know my illnesses, he pissed me off so I asked him if he would drive me to my therapy.

    Anyway,...

    Have been suffering horrifying pain of Fibro. (I do take pain medication, etc.. etc.. otherwise I am not able to move or walk) Many other illness such P.T.S.D. anxiety and depression.. blah, blah, blah. Also, I'm trying to deal with my feet, ankles and legs so swollen, that I can barley walk. They look like elephant legs and if I stuck a pin in that water could come pouring out. So, I am a mess and unfortunately by myself and no one to help me get around.

    I AM NOT A DOCTOR AND I AM NOT TRYING TO DIAGNOSE YOU!!!
    Your voice problem sounds just like what I am going through, so I am just trying to help you. I could be totally wrong, so you can't sue me.

    I wish I had someone to help me.

    I went on the Internet and searched Spasmodic Dysphonia and copied the following for you. Believe me, I know, when your not feeling well and no one to help you, it extremely hard to do anything by yourself.

    If you want to ask me any questions how I live with it daily for so long, I will certainley try to answer you. Well, my hands feel like they are going to fall off and in pain, (have cuppel tunnel in both), so I wish you the best.

    Eileen

    _________________________________________________________

    HomeHealth InfoVoice, Speech and LangageSpasmodic Dysphonia

    Spasmodic Dysphonia
    On this page:

    What is spasmodic dysphonia?
    What are the types of spasmodic dysphonia?
    What are the features of spasmodic dysphonia?
    Who is affected by spasmodic dysphonia?
    What causes spasmodic dysphonia?
    How is spasmodic dysphonia diagnosed?
    What treatment is available for spasmodic dysphonia?
    Where can I get additional information?
    What is spasmodic dysphonia?
    Spasmodic dysphonia (or laryngeal dystonia) is a voice disorder caused by involuntary movements of one or more muscles of the larynx or voice box. Individuals who have spasmodic dysphonia may have occasional difficulty saying a word or two or they may experience sufficient difficulty to interfere with communication. Spasmodic dysphonia causes the voice to break or to have a tight, strained or strangled quality. There are three different types of spasmodic dysphonia.

    Top


    What are the types of spasmodic dysphonia?
    The three types of spasmodic dysphonia are adductor spasmodic dysphonia, abductor spasmodic dysphonia and mixed spasmodic dysphonia.

    Top

    What are the features of spasmodic dysphonia?
    In adductor spasmodic dysphonia, sudden involuntary muscle movements or spasms cause the vocal folds (or vocal cords) to slam together and stiffen. These spasms make it difficult for the vocal folds to vibrate and produce voice. Words are often cut off or difficult to start because of the muscle spasms. Therefore, speech may be choppy and sound similar to stuttering. The voice of an individual with adductor spasmodic dysphonia is commonly described as strained or strangled and full of effort. Surprisingly, the spasms are usually absent while whispering, laughing, singing, speaking at a high pitch or speaking while breathing in. Stress, however, often makes the muscle spasms more severe.

    In abductor spasmodic dysphonia, sudden involuntary muscle movements or spasms cause the vocal folds to open. The vocal folds can not vibrate when they are open. The open position of the vocal folds also allows air to escape from the lungs during speech. As a result, the voices of these individuals often sound weak, quiet and breathy or whispery. As with adductor spasmodic dysphonia, the spasms are often absent during activities such as laughing or singing.

    Mixed spasmodic dysphonia involves muscles that open the vocal folds as well as muscles that close the vocal folds and therefore has features of both adductor and abductor spasmodic dysphonia.

    Top


    Who is affected by spasmodic dysphonia?
    Spasmodic dysphonia can affect anyone. The first signs of this disorder are found most often in individuals between 30 and 50 years of age. More women appear to be affected by spasmodic dysphonia than are men.

    Top


    What causes spasmodic dysphonia?
    The cause of spasmodic dysphonia is unknown. Because the voice can sound normal or near normal at times, spasmodic dysphonia was once thought to be psychogenic, that is, originating in the affected personĀ¹s mind rather than from a physical cause. While psychogenic forms of spasmodic dysphonia exist, research has revealed increasing evidence that most cases of spasmodic dysphonia are in fact neurogenic or having to do with the nervous system (brain and nerves). Spasmodic dysphonia may co-occur with other movement disorders such as blepharospasm (excessive eye blinking and involuntary forced eye closure), tardive dyskinesia (involuntary and repetitious movement of muscles of the face, body, arms and legs), oromandibular dystonia (involuntary movements of the jaw muscles, lips and tongue), torticollis (involuntary movements of the neck muscles), or tremor (rhythmic, quivering muscle movements).

    In some cases, spasmodic dysphonia may run in families and is thought to be inherited. Research has identified a possible gene on chromosome 9 that may contribute to the spasmodic dysphonia that is common to certain families. In some individuals the voice symptoms begin following an upper respiratory infection, injury to the larynx, a long period of voice use, or stress.

    Top


    How is spasmodic dysphonia diagnosed?
    The diagnosis of spasmodic dysphonia is usually made based on identifying the way the symptoms developed as well as by careful examination of the individual. Most people are evaluated by a team that usually includes an otolaryngologist (a physician who specializes in ear, nose and throat disorders), a speech-language pathologist (a professional trained to diagnose and treat speech, language and voice disorders) and a neurologist (a physician who specializes in nervous system disorders). The otolaryngologist examines the vocal folds to look for other possible causes for the voice disorder. Fiberoptic nasolaryngoscopy, a method whereby a small lighted tube is passed through the nose and into the throat, is a helpful tool that allows the otolaryngologist to evaluate vocal cord movement during speech. The speech-language pathologist evaluates the patient's voice and voice quality. The neurologist evaluates the patient for signs of other muscle movement disorders.

    Top


    What treatment is available for spasmodic dysphonia?
    There is presently no cure for spasmodic dysphonia. Current treatments only help reduce the symptoms of this voice disorder. Voice therapy may reduce some symptoms, especially in mild cases. An operation that cuts one of the nerves of the vocal folds (the recurrent laryngeal nerve) has improved the voice of many for several months to several years but the improvement is often temporary. Others may benefit from psychological counseling to help them to accept and live with their voice problem. Still others may benefit from job counseling that will help them select a line of work more compatible with their speaking limitations.

    Currently the most promising treatment for reducing the symptoms of spasmodic dysphonia is injections of very small amounts of botulinum toxin (botox) directly into the affected muscles of the larynx. Botulinum toxin is produced by the Clostridium botulinum bacteria. This is the bacterium that occurs in improperly canned foods and honey. The toxin weakens muscles by blocking the nerve impulse to the muscle. The botox injections generally improve the voice for a period of three to four months after which the voice symptoms gradually return. Reinjections are necessary to maintain a good speaking voice. Initial side effects that usually subside after a few days to a few weeks may include a temporary weak, breathy voice or occasional swallowing difficulties. Botox may relieve the symptoms of both adductor and abductor spasmodic dysphonia.

    Top

    Where can I get additional information?
    American Academy of Otolaryngology-Head and Neck Surgery (AAO-HNS)
    One Prince Street
    Alexandria, VA 22314-3357
    Voice: (703) 836-4444
    TTY: (703) 519-1585
    Fax: (703) 683-5100
    E-mail: webmaster@entnet.org
    Internet: www.entnet.org

    American Speech-Language-Hearing Association (ASHA)
    10801 Rockville Pike
    Rockville, MD 20852
    Voice: (301) 897-5700
    Toll-free Voice: (800) 638-8255
    TTY: (301) 897-0157
    Fax: (301) 571-0457
    E-mail: actioncenter@asha.org
    Internet: www.asha.org

    National Spasmodic Dysphonia Association, Inc. (NSDA)
    300 Park Boulevard, Suite 350
    Itasca, IL 60143
    Toll-free Voice: (800) 795-NSDA (6732)
    Fax: (630) 250-4505
    E-mail: NSDA@dysphonia.org
    Internet: www.dysphonia.org

    NIH Publication No. 97-4214
    Contact information updated February 2002

    For more information, contact the NIDCD Information Clearinghouse.

    Top


    [This Message was Edited on 02/23/2007]
  8. texasratgirl

    texasratgirl New Member

    I will see if they will do the mold test.

    Don't worry about a thing, I know that you are only trying to help, we are all good. :}

    I'll let you know what happens.

    thanks again, for your suggestion.
    TRG
  9. BEARANDBUGSMOM

    BEARANDBUGSMOM New Member

    going thru a problem with my throat, it seems to be hot and irritated all the time and I now have a sore lump that just pooped out a few weeks ago and it feels like someone is tightening cords in my neck, I have trouble moving my head without the lump hurting and it also affects my voice it's horse and sometimes I can't talk at all.

    I haven't been to the doctor yet I'm kinda scared and discouraged because they don't ever seem to want to get to the real heart of the matter, always seem to just quickly right it off....

    Good luck, hope some of this helps,
    Kelly
  10. sascha

    sascha Member

    spasmodic dysphonia and essential tremor- it's a neurological condition- a focalized version of dystonia that settles around the throat and larynx. i've had it for years. it could be that what you have is temporary, but get it diagnosed by a specialist.

    it is difficult for me to talk - the SD affects my voice and articulation.

    anyway- best of luck to you- don't worry- if it is a condition affecting your speech, you can learn to adapt and work around it. it's hard at times, but you'll be ok. there are lots of support groups out there for it, and an online board as well.

    Best wishes from Sascha
  11. sascha

    sascha Member

    if it does turn out that you have a form of Spasmodic Dysphonia, the most common form of it, adductor SD is very treatable with Botox injections. mine wasn't as treatable as mine was more abductor type. Sascha again
  12. sascha

    sascha Member

    i just wanted to add one more thing. i had botox injections for abductor SD, and it was not bad, but not all that effective. for adductor SD the injections are much easier (different locations) and usually quite effective in restoring speech.

    but you don't even know yet for sure about your diagnosis, so i'll shut up! and good luck!!

    Sascha
  13. ksl25

    ksl25 New Member


    This past Dec/Jan I came down with what I thought was a cold/sore throat.

    I got laryngitis, sinus pain , sore throat, ear pain, etc.
    It started with post nasal drip.

    drinking lots of water helps. warm tea helps loosen the sinuses.
    and GARGLE with warm salt water. this is one of those annoying but REALLY does work treatments. I should do it now. I wake up with a dry throat sometimes. i have chronic post nasal drip. Oh, buy NAC at the vitamin store it thins the mucus membrames. i take it 2-3 times a day now.
    good luck and rest, drink water and don't talk until you're stronger.
  14. MsOnlyMe123

    MsOnlyMe123 New Member

    You had Botox injections? Did it hurt? Did you get put to sleep? Please tell me all for I may consider this if speach therapy does not work. What is abductor type?

    Thanks,

    Eileen


  15. munch1958

    munch1958 Member

    Has anyone checked your thyroid? A low thyroid can cause your voice box to be swollen. I have hypothryoidism and it's been an ongoing battle for me to keep from sounding like Natasha in Bullwinkle cartoons.

    For more info on the rest of the signs go to:
    http://thyroid.about.com/cs/basics_starthere/a/10signs.htm
  16. AllWXRider

    AllWXRider New Member

    Most metals get absorbed into the organs. A hair analysis is ~$60 and is always a good first start. Mercury doesn't show up well on a hair analysis but it does skew the good minerals, so there is a "signature" to it.

    More expensive tests are called "challenge tests" since a chelation doctor administers a higher level of a chelation drug. Urine and/or stool sample is taken and tested. The higher level of chelation drug hits some ppl real bad, IF they are REAL toxic.

    That's why its safest to start with a hair analysis. I ordered mine from 1to1vitamins.

    Ask your nutritionalist regarding toxic metals. Maybe they can look at your symptoms and figure it out. Lead & Mercury weaken the immune system. Cadmium interferes with the T4->T3 thyroid hormone converstion.

    Enzymes are made up of amino acids with a metal ion. Enzymes are biological catalysts that make or breakdown lots of things. The human body has over 3,000 enzymes are 2000 of them are made by the liver. Toxic metals attach to these amino acids to make up bad enzymes. The enzymes make wrong reactions. Lots of them.
  17. sascha

    sascha Member

    abductor Spasmodic Dysphonia (SD) is where the vocal cords pull apart during speech, so your voice goes out- there is no phonation. adductor SD is where vocal cords are forced together producing a strangled kind of voice & speech.

    botox is much more effective for adductor kind of SD. it restores fairly normal speech for many people.

    i had a number of Botox injections at Colombia Presbyterian Hospital in NYC. it's harder for abductor SD because they put the needle in back of can't think of what to call it--they have to hold and turn structure in throat a bit to find spot that might be effective for the shot. honestly, it was ok getting this treatment. i really wanted help for my voice. but i discontinued as it wasn't all that effective for my type of SD, plus i had to spend time and money on transportation to get to NYC (i was in Vermont at the time).

    but for adductor SD, the injection sites are much easier to get to, and the effectiveness of the shots much much higher.

    but of course, by now, maybe they have more effective treatment for abductor type as well.

    of course, first step is correct diagnosis before considering any type of treatment.

    i just live with my SD condition now- and it is difficult at times- no question about it. best of luck- Sascha
  18. sascha

    sascha Member

    i overlooked a couple of your questions... sorry-

    the botox injections did hurt a little, but surprisingly less than i anticipated. and this is for the AB SD. less so for AD SD from what people i know tell me.

    i was not put out and had no anaesthesia. i lived to tell the tale and went back for many more treatments. i met very interesting people there, too. Sascha

    i would say this treatment is well worth exploring if you have SD- especially the AD kind.