Any Runners?

Discussion in 'Fibromyalgia Main Forum' started by berrytired, Mar 21, 2006.

  1. berrytired

    berrytired New Member

    I'm curious to know if there are any runners on this board?
  2. HagerTX

    HagerTX New Member

    I started jogging in 2003 and have done it on and off since then. Currently I'm on Remeron and it makes me more tired and weak, so I basically just walk and do a few other things. If and when I can get off Remeron, I'll probably start up again.
  3. HagerTX

    HagerTX New Member

    2 hours is a long time to run, even at a slow pace. What kind of distance did you cover when you used to run?
  4. Greenbean7

    Greenbean7 New Member

    I only run if something really scarey is chasing me!!

    I do try to walk my dog a half mile a day. That is all I can handle, some times not that much.

    You guys who can run are awesome! I get winded just watching!

    Hugzz
    Greenbean

    Stop (wheeze, wheeze) and smell the puppies!
  5. springrose22

    springrose22 New Member

    I find it amazing that people can still run. I am almost bedbound some days, can barely walk. Used to run, etc. Are you sure you have any disease if you can actually run??? Marie
  6. HagerTX

    HagerTX New Member

    I've got something (health/disease wise) but doctors still don't know what. The current speculuation is Lupus or Vasculitis of the CNS (all this started with symptoms of a generalized stroke). I can get out and do stuff but it takes an abnormal toll on me. I can run sometimes but I don't have nearly the strength or energy that's considered normal. Exercising does not feel good or invigorating as it should and once did.


    ---------------------------------------------------------
    I find it amazing that people can still run. I am almost bedbound some days, can barely walk. Used to run, etc. Are you sure you have any disease if you can actually run??? Marie
  7. berrytired

    berrytired New Member

    some funny comments...well I was just curious...I'm going to get back into it but I don't have the pain that you guys are feeling so I figure I'll do as much as I can before that happens to me, should it. I do have CFS for sure and would only be able to run without a flare up.
  8. RockiAZ

    RockiAZ New Member

    I run to the bathroom usually.... couldn't resist!

    Did/do you run Berrytired? I never was a runner myself, always hurt my knees too much. I used to powerwalk - yeeeeeeeeears ago.

    Congrats to all those who can ACTUALLY run! (I'm a bit jealous)

    Live, Laugh, Love,
    Rocki
  9. berrytired

    berrytired New Member

    That was good..."run to the bathroom"...I was curious to know if runners really feel your breathing is extremely laboured? because of the respiratory problems we have. I work out despite my fatigue...if I wasn't sick I'd be the type to go probably everyday...it makes me feel good...even if I just pull out a mat (no, not a guy - comedy central) and lay down and stretch.
  10. HagerTX

    HagerTX New Member

    I got suddenly sick with my CFS/stroke whatever it was on June 21st 1998. Earlier that month I was trying to get in shape for the Air Force officer candidate school..and that's when I got a glimpse of getting ill.

    I started jogging and about 1/4-1/3 of a mile into the routine I was just dead tired. Tired in an abnormal, electrical way. Not just in a healthy yet out of shape way... Also noticed my hands and face felt strangely numb.

    I've been able to do ~3 miles on a semi regular basis but it takes forever for me to work up to that point yet it really doesn't feel all that good.

    One reason I started exercising is that some doctors felt everything was anxiety driven. They just 'knew' that if I'd only get a few minutes of brisk walking 3-5x/week, everything would be great.
  11. springrose22

    springrose22 New Member

    If you have a CNS vasculitis, and had a stroke, and have CFS, are you not putting yourself at great risk by trying to run? You said it doesn't make you feel good like it should. Your body is trying to tell you something is it not? Walk instead. Marie
  12. darude

    darude New Member

    I would not think that ANYONE could run with these dd's!!!!!!!! But good luck to ya anyway. What tests do they do for vasculitis??????????????????
  13. HagerTX

    HagerTX New Member

    It hasn't seemed to have made my neurological symptoms any worse. It may very well be risky but until they can tell for sure what exactly I have, I'll continue to do it now and then.

    The MRI's I have had show no abnormalities. an MRA that was done in 2004 showed possible abnormalities but the doctor's can't agree on it.

    The one doctor I've seen (in Atlanta) who has seen cases like mine thinks that there is inflammation in the brain, whether it's lupus and/or vasculitis etc, we are not certain. The rather sudden onset of symptoms were much like a stroke--I'd find it hard to believe if I didn't have one or if it was something vastly different
  14. greatscot123

    greatscot123 Guest

    I have had CFS for 6 or 7 years and have exercised for a long time. I still am able to get out and shuffle/jog real slow, a lot slower than I used to and for shorter distances. My CFS doctor thinks this is unusual to be able to do, but it makes me feel better afterwards. I haven't been able to notice a rebound effect after this. If I didn't have CFS, I would be running a lot faster and at least twice as much per week.
  15. kiyoka

    kiyoka New Member

    I use to run, i need to start again. I sprained my foot playing tennis and took a month and half to even help it. i use to do cardo, and run two days a week and lift weights for one day. I found that exersesing does help my fms.
  16. deedeej

    deedeej New Member

    I am trying to find a less painful exersize program that I can do at home.
    I can hardley crawl out of bed in the morning let alone run.
    I ride horses, used to go to curves and tried bike riding ect but the pain is to hard on my back and my knees are so full of arthritus that I can hardley bend them.

    If there are any good painless exersize programs out there I am eager to do something.
    The specialists all put down that I exersized at least 3 times a week and they swear that that is what I have to do to not get worse.
    I wonder if they have tried it???
    I am going for a hot tub as the heat and water do seem to help even if it is only temporray.
  17. springrose22

    springrose22 New Member

    Running every now and then is not a good idea. You are MUCH BETTER OFF TO WALK REGULARLY than to throw a run in every now and then. Please believe me when I tell you this. I want the best for you, and running is not the best for your body. Does your head feel full? Do you have hypertension? I thought I possibly had vasculitis, but the feeling went away. The tests for this Darude, are usually CRP and ESR which both test for inflammation. Cranial arteritis, or temporal arteritis, is an inflammation of the lining of the arteries usually of the head and neck.

    Enough. Walk don't run. Love, Marie
  18. HagerTX

    HagerTX New Member

    Thanks for the info. I'll keep that in mind. I wouldn't necessarily describe my symptoms as having a 'full head'.

    Basically I had lower GI trouble giving me increasing trouble as I moved from my teens into my early/mid twenties. It eventually got flared in early 1998 and never fully cleared up. Multiple workups over the years from GI doctors showed some abnormal biopsies somewhat indicative of eosinophilic gastroenteritis. Before I had a thorough workup, my GP at the time gave me Cipro and I had a psychiatric reaction to it with painful nervousness, anxiety and insomnia. I would later find out that many people have had neurological complications from Quinolones such as Cipro and Levaquin. Over the years the opinions of my stomach problems range from IBS, to Ulcerative Colitis to non-specific IBD and food allergies.

    About 6 months after my stomach had this long flare and 3 months after the bad reacion to Cipro, I woke up one day in June 1998 feeling as though I had a generalized stroke, although I only know in hindsight that what I experienced could be described as that.
    It felt as though I had 6+ drinks in my system, very tired, very weak, my skin (all of it) had lost sensation--enough to where I could slap myself fairly hard and it wouldn't hurt. I couldn't feel sunburn or feel the comb on my scalp when I combed my hair. I was weak, tired and had all sorts of cognitive and memory problems secondary to the drunk-type feeling.

    8 months passed and what the docs orignally thought was viral was not going away, although I'd seen 50-60% improvement in the neurological symptoms. (The fatigue, weakness, numbness, drunken-like state all moved in sync, if one symptom got better so did the others). Essentially I've been at this point ever since. My baseline is as if I've had 3+ drinks in my system, my skin still is numb enough i can't feel sunburn or the proper senstion for instance when I scratch my skin with fingernails, I still have a significant amount of weakness, fatigue and cognitive difficulties

    No hypertension, my BP has been normal most of the times I've had it checked. I've had multiple workups by internists, Rheumatologists, neurologists (and gastro for chronic diarrhea), and the only thing that they've found (of significance) is a high ANA. It was initially over 5000:1 in 2001, repeated tests always show it at 640 or 1280:1. Most doctors speculate that something autoimmune is going on but can't get specific. No joint pain, no high sed rate. Just the ANA, high eosinophils on my CBC and maybe one or two other blood tests which intermittently are out of range.

    In 2003 I started walking then jogging. Over months I worked up from a fraction of a mile to 2-3 miles. Not really pushing it though, my pace is usually 9-10 minutes per mile. I agree that sporadic running is probaly not good but I usually jog for weeks at a time then get out of my routine for some reason and it's on for a while, off for a while.

    Anyway, I ran across a doctor in 2003 who had seen cases like mine. He said there is inflammation in the brain and/or blood vessels in the brain. Whether he is 100% right, I'm not sure of, but I think he's probably in the ballpark, as that sort of condition seems to account for all my symptoms. He put me on Plaquenil in the fall but I've yet to see any results. I see him in May for my 3rd followup, so hopefully (if he's right), one of these meds will put things into remission.


    HagerTx - Darude 03/22/06 10:09 AM

    Running every now and then is not a good idea. You are MUCH BETTER OFF TO WALK REGULARLY than to throw a run in every now and then. Please believe me when I tell you this. I want the best for you, and running is not the best for your body. Does your head feel full? Do you have hypertension? I thought I possibly had vasculitis, but the feeling went away. The tests for this Darude, are usually CRP and ESR which both test for inflammation. Cranial arteritis, or temporal arteritis, is an inflammation of the lining of the arteries usually of the head and neck.

    Enough. Walk don't run. Love, Marie
  19. berrytired

    berrytired New Member

    Thanks everyone. Very interesting and I take it all to heart. My doctor encourages excercise and I know for my own sanity that I have to. I'm physically very strong and feel that its been a benefit I've never felt fatigued after a workout only recharged. I may be the next morning, but I figure I'm going to be fatigued regardless. Like I said earlier...I don't have pain (yet) except in my neck area. If it was in other joints I'm sure I wouldn't be able to do this...if I was going to choose a machine that didn't hurt my joints it would be something like a crosstrainer because its a gliding motion...it may hurt your back a little tho.