any supps or meds to help reduce post exertional malaise?

Discussion in 'Fibromyalgia Main Forum' started by bigmama2, Sep 5, 2009.

  1. bigmama2

    bigmama2 New Member

    i have been doing better overall. less brain fog, less hungover feeling, more functional, etc. but the PEM hit me bad today. so frustrating. I NEED to exercise in order to lose weight and get in shape. I am good at pacing the exercise- just 20 mins of moderate gentle exercise.

    has anyone had PEM from CFS/ME and found any supps or meds to prevent or reduce it?

    long time ago before cfs i used to exercise A LOT, and i never had PEM.


  2. TeaBisqit

    TeaBisqit Member

    You can try upping your Vitamin D intake, that gives alittle more energy. And one of the specialists I saw told me that we should be taking NSAIDs for at least three days after exercising because it reduces all the inflammation. Supposed to help. I would say, try a good multivitamin/mineral/amino acid powder from the healthfoodstore. Get something with lots of stuff in it.
  3. mbofov

    mbofov Active Member

    I used to exercise a lot too - I loved to walk, could do it for hours. Now I ration myself very carefully in what I do to avoid crashing.

    Here are some things that helped me with PEM. Unfortunately, they all only helped temporarily - it was so nice while it lasted though. Maybe they will help you more:

    Malic acid and magesium

    NADH - 20 mg. a day on empty stomach - after about a week of taking it, I noticed a marked increase in energy which lasted about 10 days. And then it stopped.

    l-carnitine - 3,000 mg. a day - gave me a very nice boost for about a week and now doesn't

    calcium pyruvate - made me feel good for about 3 days

    Also, I've been doing the methylation protocol on and off for about 2 years. Yeah, that's a long time, but I've been sick a lot longer. ANyways, my crashes are not as bad as they used to be. Unfortunately, I still crash quite easily - my stamina has not improved, but when I do crash (PEM), I get over it in 1-1/2 to 2 days, as opposed to 3 to 4 days. So I'm hoping if I stick with it, I'll keep improving.

    I had to stop the meth. protocol for most of last year because I was sick most of the time so could not handle the detoxing that went along with it. I've boosted my immune system now with a thymus gland extract, so get sick less, so have restarted the protocol and plan to keep plugging away at it. It keeps making me detox but I figure there's got to be an end in sight somewhere! Anyways, I think I am making (very) slow progress, but at least it is progress, which is more than I was doing before I started the protocol.

  4. TeaBisqit

    TeaBisqit Member

    I agree about the NSAIDs, it's just what a CFS specialist told me to take. But, I, too, have stomach problems and have to watch taking them. The only one that ever really helped me was Aleeve/Naproxen. But it's murder on the stomach, even if you eat with it. I still end up with bad heartburn for days if I dare take it.

  5. karynwolfe

    karynwolfe New Member

    Glad to hear you've been doing better!

    I take a L-carnitine/Co-Q-10/Vitamin E supplement, and it really~ helped the PEM symptom. It doesn't lessen the severity of it whenever it occurs, so it still feels the same, but it doesn't take me as long to recover, which is a VERY big deal. =)

    Crazy expensive, though. sigh.