Anybody had this Ciguatera Poisoning testing done?

Discussion in 'Fibromyalgia Main Forum' started by elliespad, Dec 28, 2008.

  1. elliespad

    elliespad Member
    Medical professor receives national award for chronic fatigue research
    University of Hawaii at Manoa
    Contact: Gregg Takayama, (808) 382-3212
    John A. Burns School of Medicine, UH Manoa
    Posted: June 27, 2007

    HONOLULU - Pathology Professor Yoshitsugi Hokama, Ph.D., at the John A. Burns School of Medicine, has received a national award for his research linking ciguatera poisoning to chronic fatigue and immune dysfunction syndrome (CFIDS).

    The National CFIDS Foundation awarded Dr. Hokama its “2007 Outstanding Researcher Award” for his research, which was the first to discover ciguatoxin, a potent neurotoxin, in the blood of Chronic Fatigue Syndrome patients.

    Since the announcement of his discovery at a 2002 medical conference in Japan, Dr. Hokama has secured an international blood permit so that millions of patients worldwide, who suffered with the disease, would have access to testing offered by the medical school. The test identified ciguatera toxin reactivity in the blood of over 95% of all those afflicted with CFIDS.

    “Our Medical School is pleased to support Dr. Hokama’s pioneering research, which has the potential to help millions suffering from the crippling effects of Chronic Fatigue Syndrome,” said interim JABSOM Dean Gary Ostrander.

    Dr. Hokama is a world expert in the area of fish toxins with hundreds of peer reviewed publications to his credit. Ciguatoxins are recognized as some of the most potent biological toxins known. The National CFIDS Foundation, Inc. was founded a decade ago with the primary goal of funding medical research to find a cause, expedite treatments and eventually a cure for the disease.
  2. Forebearance

    Forebearance Member

    Hi elliespad,

    I haven't had this test done, but I think it's a good idea for any of us who have eaten the types of fish that can carry ciguatera toxin.

    I know, it sounds hard to remember one's fish-eating history!

    It is known that some people with CFS have a genetic foible that prevents them from eliminating ciguatera toxin once they have ingested it. So it circulates around and around in their bodies, continually poisoning them.

    Dr. Shoemaker explains it all in his book "Mold Warriors". (It's not just about mold.)

  3. simonedb

    simonedb Member

    Anesthesia has adversely affected patients with CFIDS (also known as chronic fatigue syndrome and myalgic encephalomyelitis). The reason for this has been found. Recent research* funded by the National CFIDS Foundation, Inc. found that a substance, much like ciguatera toxin, is being produced in the body by a disease process in those with CFIDS/ME/CFS. Dubbed the "ciguatera epitope," this research explains the danger of using any anesthesia that uses the sodium channel at the cellular level. Some anesthesiologists have had success blocking the sodium channel during anesthesia for CFIDS/ME/CFS patients.

    *J Clin Lab Anal, 6/2003, Hokama et al, J Toxicology, 12/2003, Hokama et al.