Anybody sleep a lot and still feel tired?

Discussion in 'Fibromyalgia and ME & Chronic Fatigue Syndrome' started by kriket, Jan 31, 2007.

  1. kriket

    kriket New Member



    I sleep about 8-10 hours a night, most every night here lately, but when I wake up I am still soooo tired feeling wanting to sleep even more. It takes me forever to finally get out of the bed and to the bathroom and get myself dressed. Sometimes it takes me 2 hours to get dressed. I have to do a little and then rest.

    You would think that as much sleep as I'm getting that I would feel pretty good, and sometimes I do, but it does not last long. I get so tired of laying down, but so tired of my energy level bottoming out too. Anyone else??

    Kriket
  2. makezmuzic

    makezmuzic New Member

    Hi, you sound like I did before I was diagnosed with sleep apnea. I found this self assessment on line.

    Do You Have Sleep Apnea?
    If you snore excessively and have any of the additional problems listed below, you may have sleep apnea. Please consider discussing a sleep evaluation with your doctor.

    1. Do you snore loudly? Yes __ No __
    2. Does your bedroom partner complain about your snoring? Yes __ No __
    3. Does your snoring wake you up at night? Yes __ No __
    4. Do you or your bedroom partner notice that you make gasping and choking noises during sleep? Yes __ No __
    5. Do you have a dry mouth, sore throat or headache in the morning? Yes __ No __
    6. Do you often fall asleep during the daytime when you want to stay awake? Yes __ No __
    7. Are you often tired during the day? Yes __ No __
    8. Do you have high blood pressure? Yes __ No __

    The site said to talk to your MD if you answered "yes" to most of these. Especially the snoring and waking up gasping one. Good luck.

    MM
  3. kriket

    kriket New Member



    Thanks. I will have this checked out. My dad has sleep apnea and wears a c-pap machine at night. I do wake up sometimes gasping for air, but not a lot. I have not been dx with CFS, but thought it could be symptoms of this also.


    Kriket
  4. yeshuasrose32

    yeshuasrose32 New Member

    My dr has prescribed me respiridol-- I had seratonin sysndrome from using it w/ Prozac.....so here I is ,lol, typing at 435 a.m.. not even tired BUT when I do get a nap -- I wannna keep sleeping....

    I have also an rx for Ultram-- is it effective
    thanks
    Pam
  5. kriket

    kriket New Member



    You might do a search in the search box up above. Just type in Ultram and then go over to Go and click on it. There is a lot of info. on this drug there.

    Kriket


    Yes. Here I am still awake. It is 3:35am here. I am about to call it a night though.


    Kriket
  6. FlossNG8r

    FlossNG8r New Member

    I had the exact same problem. My rheumatologist prescribed Ambien CR because he felt that I wasn't getting enough of the deep/restive sleep. Let me tell you, that has made a big difference for me. I was hesitant to take it every night because I didn't want to become dependent on it, but if I don't take it...I feel more achy and tired in the morning. The rheumy told me it was o.k. to take every day, especially if it made a difference.
  7. bigmama2

    bigmama2 New Member

    ooohhh yeah. mee too. I often sleep for 12 - 18 hours and am still tired. it's ridiculous! and i'm positive it's NOT depression!!!!!

    my body goes thru phases where I sleep nonstop for DAYS, then I have severe insomnia for days. i don't think its a mood disorder like bipolar because my mood stays the same- regular-average and not depressed or manic.

    lately i have been doing better because of adrenal glandular supplements. so far they seem to be helping my sleep/insomnia and energy fatigue problems. i talk to my dr tomorrow and i have so many questions for him. he is an adrenal fatigue specialist. he is my only hope.

    take care
    bigmama2
  8. mrpain

    mrpain New Member

    I get about the same amount of sleep as you, counting getting up 2 to 4 times a night for a quick stop to the bathroom. I feel terrible when I get up in the morning. My first stop is the shower to wake up. Then to motivate me from there, I start thinking about that cup of coffee..

    After that, it's hard to move from the recliner because I feel so exhausted... I make myself run errands or do what has to be done, and then around 2pm, I start taking my daily meds, including pain pills, supplements, & vitamins.

    What a way to live from day to day... But I guess the hope that the supps. & vitamins are gonna start working and change things helps out.. Some days are worse than others and some days are better than others but the fatigue, pain, sensory overload, and brainfog are pretty constant..
  9. shrtcak81

    shrtcak81 New Member

    Same here! I always get about 8-10 hours sleep and always wake up really tired. I feel like I can sleep for another few hours, but I know that if I do, I'll wake up even worse. It takes forever to get out of bed. I try stretching for a while, but I still feel very stiff.

    Crystal
  10. cjcookie

    cjcookie New Member

    the restorative stage. I think that's true for many of us. A sleep study is a good idea. A miracle drug that gets us to go into stage four would be even better. Good luck.
  11. Daisys

    Daisys Member

    I don't have sleep apnea, but do have the alpha wave intrusion sleep disorder of CFS/FM. That means I don't get the level 4, restorative sleep.

    I used to sleep many more hours than 8-10, and wake up feeling worse than when I went to sleep. But now, I get 8 hours of sleep, wake up refreshed, and alert, and couldn't nap if I wanted to. (The doctor says that's called 'normal' because people who get enough good quality sleep don't need naps). If a person is not getting the deep wave sleep, they don't know it, because they are sleeping, even tho it's the light sleep. It takes a sleep study to find out why sleep isn't refreshing them.

    There is a 'miracle' drug and that's what I take: xyrem. It's not for everyone, but about half who try it do well on it. Since I started taking it, almost 8 months ago, all my symptoms have lessened. For those with apnea, sometimes a CPAP machine is a 'miracle' treatment.

    Anyone who wakes up unrefreshed should ask their doctor for a referral for a sleep study to determine the problem. It could be apnea, alpha wave intrusion, RLS (which I also have, and xyrem controls it), maybe something else. Deep sleep is crucial for healing. I wish I'd known to look into this years ago, it's been so beneficial for me.
  12. fungirl2100

    fungirl2100 New Member

    I have had this problem since a teen. I could sleep all day if you let me or if I don't have an RLS problem arise.

    Yes, I can relate & I have FMS & perhaps a touch of CFS. Doc is still trying to figure out the enigma which is me!!

    love your pal.
    fungirl ;)
  13. pw7575

    pw7575 New Member

    People have had some good suggestions here for a sleep study. Sounds like that has helped a lot of people.

    However you also could have CFS. That is what happens when you have CFS. NO energy and no refreshing sleep. I am always tired no matter how much I have slept and sometimes I don't even get around to getting dressed.

    Even getting dressed takes me all day to get to and after I feel worn out again. It is very frustrating! I understand what you are going through.

    One of the main symptoms of CFS is unrefreshing sleep and extreme fatigue. A lot of people with FM develope CFS and vice versa so it is possible that you have CFS too.

    Take Care,
    Pam
  14. AquariusGirl

    AquariusGirl New Member

    Found out that I do not get into the deep sleep stages 3/4 at all. Get REM though, which is strange. I ALWAYS wake up unrefreshed--even if I nap. It is so frustrating. Tried Gabitral, Ambien, Klonopin and all made me much more tired in the morning. Quit them and tried a neutroceutical (melatonin type pill) from FFC and no relief.

    Does the Xyrem give you the 'sleep hangover' that those other meds gave me?

    I WOULD GIVE ANYTHING TO WAKE UP RESTED!!! I never knew what a blessing it was before I had CFS.

    Kelli
  15. Shalala

    Shalala New Member

    I sleep a lot but never feel rested and always have trouble getting out of bed. I am groggy and dizzy and hurt so bad. I have to get up at least 2 hours before I have to go to work just so I can be stable enough to shower, dress, and take care of my kitty before I leave. My son swears I have sleep apnea and my sister and I had a huge falling out over my snoring on a trip.
  16. Slayadragon

    Slayadragon New Member

    Umm....isn't this an inherent problem in having CFS?

    I feel somewhat more refreshed when I wake when I take Klonopin though.

    Best, Lisa
  17. kriket

    kriket New Member



    I don't have CFS, so I don't know the answer to your question. I have fibro.


    Kriket
  18. momof471

    momof471 New Member

    I wake up just as exhausted as when I went to bed. My eyes hurt badly too. I have fibro. I'd like to have a sleep study, my kids laugh at me when I nap, they say I snort alot!
  19. MoibonFL

    MoibonFL New Member

    I am always tired no matter how much I sleep. Very unrestorative sleep. I take a nap in the afternoons some days and feel better than if I'd had a whole night sleep.
  20. jinlee

    jinlee Member

    I have always needed to sleep a lot. As a child, I think I was the only kid that did not beg to stay up at night and looked forward to bedtime because i have always needed 12 hours of sleep.

    I wake up just as tired as if I had not slept.
    Now the only way I can sleep is with two klonopin and three flexeril. I just plan on sleeping until 11 a.m. and that seems to work.

    You have to have the correct mattress, pillow for your sleep (for each individual), though, or you wake up in really bad shape.

    I usually fall asleep after dinner is over also.

    Once when I had a bad flare years ago, I slept for two weeks straight, only waking when my mom would wake me to drink a protein drink.