Anybody stumbling/falling b/c they feel off balance/equillibrium

Discussion in 'Fibromyalgia Main Forum' started by kriket, Nov 8, 2006.

  1. kriket

    kriket New Member

    Just wondering if anybody else stumbles or falls into things all of a sudden. For me it's like it happens all at once, nearly like I'm pulled into a cartain direction. Usualy something will break my fall, but sometimes not.
    Anybody else experience this?

  2. TXFMmom

    TXFMmom New Member

    I had experienced that and suffered some bad falls.

    In the last year, however, I had begun to experience dizziness and a sensation of the walls moving, like I was on a boat rocking.

    We just uncovered in the last weeks that I was in adrenal insufficiency, very severe insufficiency, secondary to pituitary malfunction.

    The CDC found those genetic malformations, five of them, on three different genes on individuals diagnosed with CFS, although my diagnosis is technically FM, and those genes control the pituitary, hypophyseal, adrenal triangle.

    I would bet my bottom dollar that I have those defects.
  3. nerdieduckie

    nerdieduckie New Member

    I am always falling over for no apparent reason. Not even "tripping over my own feet". I just seem to, like you say, get pulled into another direction from which I'm wanting to go. I haven't fallen completely but I do feel like a dork when I'm out in public and just go "woo!"

    I had to put duct tape on the corners of one of my furniture pieces because it had sharp edges and I kept running into them.
  4. monamea

    monamea New Member


    Isn't it fun!! Although I have not fallen I sure feel like a drunk sometimes. I get the feeling that I am listing to one side, usually the left. I can be walking straight but feel like I'm going to left, and I feel like things are going in slow motion or spinning. It scares me so I stop walking or moving til it stops. If the spinning or slow motion starts when I am driving I pull over to the side and stop til things straighten out. If someone is with me I let them drive.
    Anyone else out there?
  5. llama

    llama New Member

    Hi kriket,

    I've just recently began to notice that I'm dizzy and unbalanced a lot. I'll just be walking and before I realize it, I'm listing toward the right and bang into something. Also sometimes when I stand up, I start to tip over and have to grab onto something so as not to fall.

    Thankfully, I haven't fallen yet but certainly not thrilled with yet another emerging symptom!!

    I have this on my list to take to the doctor next week.

    Good luck to you kriket.........Jill............
  6. karinaxx

    karinaxx New Member

    tumbling like a drunk is usually a symptom of MS.
    if you also have extreen muscle weakness and neurological symptoms, you might contact your doc or a neurological MS specialist.
    take care
    P:S: there is a supgroup of CFIDS sufferers, who suffer MS like symptoms.
  7. saintpaulia23

    saintpaulia23 New Member

    I'm new here and this is my first post. I, too, have equilibrium issues with a lot of tinnitus, worsened by bad weather and being put on clonodine for my night sweats (it's a BP med).
    I get vertigo, and everything fades to black, like I'm going to pass out, but I can usually catch myself. Other times, I just will plow into the door jam or something that would qualify as "clumsy".
  8. foggygirl

    foggygirl New Member

    I used to be very athletic and had excellent balance--horses, martial arts, hiking--anything/everything active. Now I'm a real clutz and trip & fall often.

    I can just see me in some Alfred Hitchcock or Steven King Movie--morphing into something yucky that I don't even recognise as being me. That was meant in a ...1/2 humorous note. Maybe we can borrow a line from the Eskimos and instead of Eskimo Humor....we could call it CF/FM Humor. What do ya think?

  9. shar6710

    shar6710 New Member

    I loss my balance often but I think I've only fallen once. My house is very small so there's almaost always something to grab onto.

    At the barn I've had to grab onto one of my horses a few times. Fortunately they're good sports.

    I also get "stuck" on doorjambs and sometimes just walking. Then I have to wait for my brain to "reboot" before I can move.
  10. aquabugs

    aquabugs New Member

    I stumble for no reason, list to the side sometimes, and bump into everything. I talked to the doc who sent me to a neuro. She did a an EEG thinking I might be having seizures. EEG was normal. She pronounced me with no problems.

    I'm still listing and bumping into things, more so when I am tired.

  11. Redshadow

    Redshadow New Member

    Yes, for the last 3 years. I can't drive anymore due to sudden vertigo but the dizziness is always there it just varies in intensity every day. First I was diagnosed with Meniere's disease but when the salt pills didn't help I then went to Hopkins to see Dr. Minor the Meniere's specialist, he talked to me for 3 minutes and said he believed it was vestibular migraine. Then I had to wait another year before I could get an appointment with the vestibular specialists Dr. Buckhotz, as I like to call him, "Dr. Butthole", gave me his book from Amazon and said read it do what it says and come back in 6 months. He also added please write a review if you thought it was helpful. So I then do everything in the book, the exercises and the strict diet, only to get worse I see him after the 6 months he examines me and tells me your problems allude me right now come back and see me in 6 months. I don't even get migraines!! How can vestibular migraine cause heart problems, Hashimoto's disease and electrical pain all over!! I tell ya this gets old. But now I'm see seeing a new neurologist that deals with autoimmune problems and at least he's doing more tests. I really don't want to go to the Mayo Clinic as a last resort as I'm sure they'll also say I don't know.
  12. sunshineslynn

    sunshineslynn New Member

    I to bump into things especially turning corners. I will be just walking and hit the corner of a wall for apparent reason. And I mean full force round the corner and try to move the wall with my I cant count how many times I have tripped over my own feet. My husband hates when I drive since my perception is way off when turning. I never thought it would be caused from FMS makes since those. Very good information.

  13. evol_or_revert

    evol_or_revert New Member

    I use to do gymnastics, dance and horse riding all which require good balance.

    I got sick and couldn't walk though doorways I would always walk in to one side of it. I'd walk in to dressing tables etc and I would get out of balance just walking down the street! Also fell down and up stairs alot.

    It servely disrupted my horse riding, I could no longer jump as I couldn't balance and would fall off.

    As my health is getting better, my balance is slowly improving I hope to have it all back one day so I can ride horses and dance again.

  14. kriket

    kriket New Member

    it's nice to know I'm not the only one stumbling around!!! LOL Just had an incident a few min. ago, I was walking to bed and felt like I just started veering sp? off to one side. Well I hope no one falls and really hurts themselves. Thanks for all who replied w/ all of your experiences.

  15. pamlamb

    pamlamb New Member

    Hi stpaulina23
    I to have tinitus and tmj, and my sense of balance is not always good. I just saw a neurologist, and he thinks its all in my head(ha ha) I also get a sensation of movement when my eyes move and a noise in my head, usually in the evening. I think it is partly from tmj and tinitus, which seems to have no real treatment. At least I know i'm not alone comming on this site, I'm pretty new also, and in St paul,mn. Welecome and good luck. pamlamb
  16. maineweezie

    maineweezie New Member

    Sounds very much like what's been going on here too. I've been nuts trying to figure it out as my doctors haven't a clue what set this off.

    Mine started this summer after the Lovery(rather than call him nasty) D.O. manipulated my upper back and neck. He was going to do this three times. Between Arthritis etc he was not able to do this.I walked out on him after he told me my computer was my enemy and I was a modern day hypocondriac. Dealt with 29 doctors fter a severe whiplash type injury and I'm faking it now??I did let him live.

    Soon after I started my weeble wobble routine. Thank God we're in a mobil home with things to grab onto.We've tryed checking out my ears for viruses. Ruled out MS not long ago. Getting ready to check thyroid etc. Tried dramamine. I rarely dare to go out of the house because of this. I get dizzy with my eyes closed or open.Laying down or standing up doesn't change it.Riding in a car is scary and sets the stomach into violent spasms.There doesn;t seem to end anywhere. Now at least I have some ideas to check out.Thanks for starting this topic.
  17. CanBrit

    CanBrit Member

    I have this from time to time. It seems to be part of my flare process. My speech tends to go funny as well. Mix up words, etc.

    Last night I sent my drink flying off the table, veered into the edge of the hallway and gave myself a bruise. There are moments when I feel vertigo.

    Then, magically it goes away until the next time.

  18. fmkitty

    fmkitty New Member

    I have been triping and falling over my feet for four yrs now,Hey I even fall going up the stairs,I also get my words mixed up a lot was dignosed in july with fibro I think I have had it for about 7yrs,looking back that is when the pain started.fmkitty
  19. Daisys

    Daisys Member

    I complained of this years ago to my chiropractor. It's a feeling that my insides have skewed to one side like a corkscrew motion, so that it feels like I'm going to come down from the step funny and lose my balance. He said that's a common symptom of FM.

    It seems like my orientation perception must be off too. I just can't park the car between the lines in a straight way. I look like one of those rude people who don't care if it messes up a whole row of parking. I try to repark two or three times but end up in the same crooked way. I wonder if it's related somehow.

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