anybody tried promadol for cfs

Discussion in 'Fibromyalgia Main Forum' started by kingcole, Jul 6, 2006.

  1. kingcole

    kingcole New Member

    has anybody tried this Promadol for chronic fatigue.. after interferon years ago i have not been the same and folks just dont understand ..thanks jcm memphis
  2. UnicornK

    UnicornK New Member

    One thing I did find was this:::

    "Chronic Fatigue Syndrome – Are You Suffering from It?
    Lately it seems that your usual activities leave you more than just tired. You are downright exhausted. You crawl into bed early in the evening and sleep like a dead person, but when the sun streaks into your bedroom window in the morning, you feel as though you haven’t slept a wink. Overall, you feel like you’re coming down with something. Those swollen glands and tender throat might be signs of a cold or the flu coming on… only you’ve felt this way for months now.
    Why are you so tired all of the time? You feel zapped as if there isn’t a spark of energy anywhere in your body. You have always been as healthy as a horse before and you’ve never missed a day of work. Now, you can barely get out of bed.
    You’ve heard the term before but you always shrugged it off: chronic fatigue syndrome. It sounds like a joke. But now, you’re beginning to wonder if perhaps you have this condition or if it is all in your head.
    What Is Chronic Fatigue Syndrome?
    The disorder commonly known as chronic fatigue syndrome (CFS) was thought for years to be the Epstein-Barr virus. Today, it is not associated with Epstein-Barr, but because the symptoms of CFS are similar to viral issues, it is thought that a virus may actually be to blame.
    The most common characteristic of this disorder is the debilitating fatigue that it brings on. CFS sufferers can have varying degrees of the illness from mild to severe. But CFS patients also complain of differing degrees of the illness in that some days the symptoms are mild enough for them to have normal routines and other days they are bedridden.
    CFS is extremely debilitating and many sufferers are disabled because of it. Despite periods of adequate rest and sleep, their symptoms do not improve and they get little relief. It has been determined that CFS affects people mostly between the ages of 20 and 40, but teenagers and even younger children have been diagnosed with the disorder. Women are more likely than men to suffer from CFS.
    If you are feeling exhausted and no amount of sleep or rest helps you feel better, you might become frustrated, upset or depressed. Other people, who do not suffer from CFS, may not be very understanding or patient. It’s very difficult to deal with this condition because you don’t feel well and there isn’t a lot of sympathy from non-sufferers.
    Causes and Symptoms
    There is no known cause of CFS. Some people report symptoms of the disorder after having another illness like the flu. Others say that they noticed a gradual occurrence of CFS and that their symptoms began worsening over a period of time. Despite research being done, nothing can determine a precise reason why someone suffers with CFS.
    With CFS, pinpointing the exact source of your symptoms can be frustrating because these symptoms mimic other disorders. You’re probably exhausted with a nasty sore throat, swollen glands, and a fever. The last time you felt this way, you were in college and the school nurse told you that you had mononucleosis. CFS also has symptoms similar to other sicknesses, namely fibromyalgia.
    If you have CFS, you may experience some of the following symptoms:
    Severe fatigue even with adequate sleep.
    Difficulties sleeping.
    Muscle and joint pain.
    Sore throat.
    Stomach problems.
    Difficulty remembering things or concentrating.
    Swollen glands.
    Head to the Doctor
    We’ve all had the experience of pushing the snooze button when the alarm clock goes off at full blast at 6:00 AM. Everyone has come home from a day at school or the office mentally drained and ready to simply fall into bed. That’s normal fatigue and exhaustion.
    But if you have found that you have had to curb your normal activities and fitness routine regularly because you simply cannot function, it is time for you to call your doctor. Fatigue can be a symptom of any number of illnesses and conditions from hay fever to cancer. So, don’t fool around. Make an appointment and head to your physician.
    Unfortunately, there is no specific test that your doctor can perform to determine a diagnosis of CFS. So much for a blood test and a call from the doctor telling you that you have CFS! Basically, your physician will rule out certain illnesses as the reason behind your weakness and weariness. He or she will ask you a lot of questions to determine an accurate health history and will conduct an examination as well. He or she will take urine and blood samples to try and pinpoint the cause for your fatigue.
    You might have to undergo testing for other conditions like sleep apnea or hypothyroidism to rule out both of these conditions. In addition, tell your doctor about any medications – both prescription and over the counter – that you are taking. Certain medicines may make you feel overly tired.
    It is generally decided that CFS can be diagnosed after a patient’s fatigue is not caused by overexertion and is not alleviated by rest and sleep, and if four or more of the classic symptoms of CFS are consistent for a period of six months or more.
    It is important for you to talk with your doctor about CFS. The condition may have you feeling quite depressed because you cannot take part in the usual activities that you enjoy. Although there is no medication that can completely alleviate CFS symptoms, if you are battling depression, your physician may recommend an antidepressant.
    Remedy the Situation
    Sure, all you want to do is lie in bed and feel sorry for yourself. You have every right to feel that way! But you can’t lie there forever because the inactivity can cause other health problems. Think about what can happen – obesity, blood clots, muscle atrophy. And imagine all of the wonderful things in life that you’ll be missing out on – snowy days outside with your children, an evening at a fancy restaurant, having old friends come by for a dinner party.
    So, what can you do to start to feel better? Well, there’s no cure for what is ailing you, but here are some things for you to try so that you can get back on the road to healing:
    Get in shape – No one expects you to hop on a chair lift and ski down the Rockies or swim 100 laps in your backyard pool. But a gradual return to exercise is the first step to start the healing process. By beginning a simple exercise routine – usually under the care of a doctor – you can gradually begin to build up your energy level and improve muscle tone. Consistent, yet gentle exercise is a good remedy for any chronic condition.
    Try a pill or two – To alleviate muscle pain and headache, reach for a bottle of ibuprofen or acetaminophen. Ibuprofen can reduce inflammation in the body but make sure that you take it with milk or food if it upsets your stomach.
    Get some sleep – It may sound kind of funny to hear that you should get your rest. But it’s imperative that you get adequate sleep so that your body can recover. If you need to rest during the day and there is too much noise, listen to a relaxing CD of ocean sounds or calming music. Another suggestion is to invest in a white noise machine which will bring consistent soothing sound through your room, enticing you to slip into Dream Land.
    Say goodbye to stress – Everyone has some degree of stress in their lives, but how we deal with it can greatly affect our health. Suffering with CFS is stressful enough, so do whatever possible to eliminate other stresses from your life. Try some relaxation tapes and breathing techniques. Consider a gentle yoga program. All of these things encourage the body to be more stress-free.
    Eat, drink, and be healthy – Although your coffee pot is on around the clock to help keep you awake, now is not the time to become addicted to caffeine. Instead, eliminate coffee – which may actually interfere with sleep patterns – and other things like tobacco and fast food from your diet. Eat healthy and fill up on fruits, veggies, and healthy proteins. Drink lots of water and add just a dash of fruit juice (orange, cranberry, or grapefruit) to give it a more citrus-like taste. Avoid food additives like aspartame and MSG as well. Eat more complex carbohydrates like wholegrain breads and oatmeal and avoid simple carbs like table sugar and white flour.
    Indulge in a healthy habit – Do you love photography? Have you always wanted to take an oil painting class? Are you interested in volunteering at your local hospital? Find something that you are interested in or have always wanted to try and go for it! A healthy hobby or job is something that will encourage you to get out of the house and do something that you really enjoy.
    Get the support – CFS is something that not many people understand and you may discover that you don’t have a lot of support or sympathy from those closest to you. Ask your doctor if there is a support group in your area that you can get in touch with. Just chatting with other people who have symptoms like yours may help you feel more empowered. If it’s not possible for you to attend meetings or there isn’t a local group nearby, you can always turn to the Internet. There are a number of online chat rooms and forums where people can talk to other sufferers and swap suggestions and ideas.
    Turn to magnesium – The body uses magnesium for a variety of things including making new cells and relaxing muscles. Some CFS sufferers report an improvement in their symptoms after increasing their magnesium intake. Spinach, nuts, and whole wheat bread are among the foods that offer considerable levels of magnesium, but you may want to try a supplement.
    Write it down – You should consider keeping a journal and write in it daily. No, you don’t need to hide the key of your diary or post your most secreted information in there. Instead, keep tabs on your health. Write down what times of the day you are most fatigued and when you have the most energy. Note what foods you’ve eaten and you might notice a link between something that affects you negatively.
    A Few Final Words
    When suffering with CFS, you might feel quite hopeless like you will never get better and will be drained and weary like this for the remainder of your life. It is definitely understandable why you would feel this way, but it’s important not to lose hope.
    If you are a parent and your child has CFS, encourage your child to continue to take part in activities that he or she enjoys. Of course, you will need to monitor when he or she is feeling well enough to participate, but it’s very important for any person with CFS to try and have as normal a life as possible. Plus, taking part in a pleasant activity may actually help boost the immune system and promote healthier living.
    It’s very possible to have CFS for a number of years, but you will probably begin to notice that episodes of the condition become less frequent and less intense. Many people have relapses but over time, these lessen. Most sufferers actually recover completely from the condition.
    It is very important for you to know that you are not alone and that new research is being conducted so that CFS will become a better understood disease."

    I thought it was interesting that he has such a good grasp of what CFS is all about.

    God Bless.
  3. Leaknits

    Leaknits New Member

    Anybody have ideas as to where ingredients of this Promadol can be tracked down?
    After 'netting around for over an hour...during which I clicked on "info" link after link, only to be sent to glossy home pages shouting the product's praises with NO list of ingredients except for the unclear "propietary botanicals," I gave up.
    Thanks in advance,
  4. Leaknits

    Leaknits New Member

    Hi, D:

    Thank for sending me to the right click-here! Rats, there are some ingredients in the stuff I can't go near...that's just the way it is sometimes.
    I tried, also, to do a copy/paste of the what's-in-it: it won't let me. That's odd...

  5. kingcole

    kingcole New Member

    go for it
    st johns wort is probably the main deal..cant tell since my routine has changed and im busy busy again...[This Message was Edited on 08/04/2006]