Anyone around with left ventricular dysfunction???

Discussion in 'Fibromyalgia Main Forum' started by kooky, Jul 20, 2003.

  1. kooky

    kooky New Member

    Hi everyone: Would like to hear from anyone with left ventricular dysfunction and mitral regurgitation. Both conditions.
    I was not aware that I had both (since 2001) until I went through my medical record from a local hospital. To my surprise I found out that I had left ventricular dysfunction as well. I immediately sent a copy to my GP and was referred once more to a cardiologist. Further tests will be made to ensure that this has not developed further. Into what, I dread to think!!!!
    My advice to you all is to always if you can monitor all your test results as sometimes they may escape your primary physician.
    I should have been given antibiotics when having tooth abcesses over a period of two months earlier this year!
    Thus, do keep yourselves informed and keep on exchanging tips and advice from this very good message board. Take care all and kind regards. Kooky
  2. kooky

    kooky New Member

    excellent. I am not sure what sure that the 71% is also called the ejection fraction or not. Your cardiologist sounds to be quite approacheable.

    I am not pleased about not being told that I should be taking antibiotics for all dental work or tooth abcesses etc... I just recently found out by reading info on the internet!

    The reason that I started worrying is because I read an article concerning left ventricular dysfunction stating that it is a type of heart failure. Another article stating that if a patient has mitral regurgitation and left ventricular dysfunction of a low ejection fraction (mine is 50%), then it should be regurlarly be monitored for heart failure or may need vavle surgery etc...

    Well, hope it continues to go well for you. Take good care and kind regards. Kooky.
  3. kooky

    kooky New Member

    excellent. I am not sure what sure that the 71% is also called the ejection fraction or not. Your cardiologist sounds to be quite approacheable.

    I am not pleased about not being told that I should be taking antibiotics for all dental work or tooth abcesses etc... I just recently found out by reading info on the internet!

    The reason that I started worrying is because I read an article concerning left ventricular dysfunction stating that it is a type of heart failure. Another article stating that if a patient has mitral regurgitation and left ventricular dysfunction of a low ejection fraction (mine is 50%), then it should be regurlarly be monitored for heart failure or may need vavle surgery etc...

    Well, hope it continues to go well for you. Take good care and kind regards. Kooky.
  4. kooky

    kooky New Member

    Funny about the white coat syndrome, we are all suffering from this from lack of interest from the "white coats"!!!!

    About what you said, it could be that I misunderstood. However, is your husband on any medication? I also have a low ejection fraction of 50% but the doc did not prescribe or say anything about it, or about the left ventricular dysfunction. Does this mean heart failure, or does it mean that if it not monitored it could lead to complications?

    I am so breathless even when washing my hair or on minimal effort. I am mostly bedboudn or homebound nowadays!

    Am not sure when I will be having my appointment for a cardiac MRI, but it will not be before six to eight months. Here in the UK, it would cost about $3500 for this to be performed privately, but on the NHS (which we do pay for in our taxes), it is free but the wait is awfully long!
    Well take care and will post message about this am sure again.... Regards. Kooky.
  5. kooky

    kooky New Member

    I am 46 years old and do not suffer from high blood pressure. Only mild mitral regurgitation and the left ventricular dysfunction + ej of 50%.

    It is just that when I typed in left ventricular dysfunction or mitral regurgitation, the articles says that if you have these two + low ejection fraction, an echo should be performed to ensure that the valves are not damaged or that there are no developments of heart failure. Again, perhaps I misunderstood. I may be panicking for nothing.

    What worries me the most is that recently, I walked a little out of my appartment, got a nasty chest pain, dizzy, with breathlessness, nail of my left thumb went blue!

    I went to A & E and an ECG was performed. Then I asked my GP to refer me to the cardiologist. He suggested that I may have angina (I was spooked) and should have an MRI to ensure that the heart is not dammaged by the left ventricular dysfunction.

    I am so breathless all the time. Am not overweight, just about 10 lbs over.

    I read recently that putting flax seed oil (fresh and organic) on cottage cheese, about 4-6 tablespoons each day, + vit B6 + cayenne, garlic, onions, fresh ginger root, L-Carnitine help unclog arteries.

    But I do have a list of herbs to help with heart failure, such as lilly of the valley, hawthorn, chestnut etc...

    I am not taking the above yet as I have allergies and am trying to reintroduce certain foods in my diet over a period of time. When feeling stronger, will try all the above.
  6. kooky

    kooky New Member

    Well, the breathlessness not only come on minimial physical effort.

    I have been having these on and off the last two years! Anyway, I am sure that left ventricular dysfunction is definitely some type of heart failure now. The reason for this is that there was yesterday an email sent to our local group about a lady who died with this problem. Apparently she had it for many years.

    I have no idea when I will next see the cardiologist but will definitely ask him about these.

    Why did you suggest that I post a message to these people??? Do you think they might know. Thanks for the advice concerning vitamins and supplements. Will do my best to try and re-introduce these in my diet.

    Will keep you posted about the developments concerning this left ventricular dysfunction and mitral regurgitation. Not mitral valve prolapse. I think there is a difference.

    Regards. Kooky
  7. kooky

    kooky New Member

    Thanks for the advice and your concern. I do not have such oedema at present, just a little overall water retention. Breathlessness only on exertion or minimal effort.

    I did go to A & E last week. The docs took my oxygen saturation and it was noted that with a few steps taken it went down to 93%. This doctor suggested I see a pulmonary specialist. My GP has not acted upon it.

    I saw a cardiologist last Monday, a chest x-ray was performed. But have not been told of the results yet!
    An ECG came back normal.

    However, he did not explain to me what was mitral regurgitation and left ventricular dysfunction. I got the info from the net.

    Of course I am worried. We are at the mercy of doctors. It is no use going again to A & E. They will only treat emergencies and refer us back to our GPs. If they are in a hurry or whatever, it is difficult to understand what the problem is.

    I can only trust that in the judgement of the cardiologist in 2001 when the echo was performed and he saw MR and LVD, that he thought it was not important. However, I am simply amazed that I was not told and had to request copies of these from the local hospital to find out!

    But I will copy the original message and send to the people you mentioned who might be able to explain what these results mean etc...
    Will let you know what they say.

    Meanwhile, take care and kind regards. Kooky.


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