Anyone bedridden due to Fibromyalgia?

Discussion in 'Fibromyalgia Main Forum' started by nleer, Dec 30, 2011.

  1. nleer

    nleer Member

    I am in bed 95% of the time. I am in so much pain and I don't have ANY energy.

    I have HPA Axis Malfunction, Hypothyroidism, agammaglobulemia, cortisol insuf.,
    Hypopituitarism, disc degeneration and more.

    The prednisone that I had to take for 45years has caused most of this, I am trying to find a doctor that will help replace these things that are not functioning anymore.

    Anyone else in bed most of the time? I feel better at night! Does anyone feel better at night?

    Lost in Fibroland
  2. misskoji

    misskoji Member

    I'm so sorry you are suffering so much. Could it be that the predinsone further disabled you? When I was seeing Dr. Lerner, he told me to avoid steroids if at all possible.

    I know you mentioned Fibro, but since CFS and FMS are so similiar (a few of our specialists even consider them the same condition), perhaps you also have CFS?

    I was bedridden at two points in my illness. Valcyte treatment is what brought me back to the level of functioning I am at now. I believe there are many here who are currently, or were bedridden. Hopefully they will see your post and comment.

    About your question-feeling better at night. That's a big YES for me. I recall reading something Dr. Cheney wrote about this. I believe it has to do with our cortisol being reversed. If I can find the link to it, I will come back and post it later.

    Wishing you healing,
  3. nleer

    nleer Member

    Thanks Misskoji!!