Discussion in 'Fibromyalgia Main Forum' started by busybusymom, Dec 4, 2005.

  1. busybusymom

    busybusymom New Member

    I am so frustrated!! There are so many diseases and conditions that mimic chronic fatigue syndrome I could scream!!

    I saw a show today on Discovery Health about a woman who had been suffering from severe migraines, fatigue, and pain for several years (same here...). She saw numerous doctors until she met up with a cardiologist who diagnosed her with mitral valve prolapse. He literally saved her life!!

    I looked up MVP, and I have 90% of the symptoms. I have never been checked out thouroughly by a cardiologist, although about 3 years ago I went to one because my heart would start racing out of the blue for no reason - this went on for several months. Can you guess the dx?????!! ANXIETY!!! What a bunch of horse----! I even told my husband that was what the doctor was going to dx me with!!

    Some of the symptoms of MVP include migraine, dizziness/balance problems, vertigo, fatigue, brain fog, and more. I have ALL of these and have been diagnosed with CFS.

    Needless to say, I am calling my regular doctor tomorrow to get a referral to a cardiologist who will LISTEN to me and not think I am crazy. So, any of you checked out for this???

    I am just so sick of being sick - I am turning 40 on Jan 3 - this will be the year I get a proper dx and tx plan going!!!

  2. lenasvn

    lenasvn New Member

    Anywho, CFS and FM often have the same symptoms as Mitral valve Prolapse. As a matter of fact, many with CFS/FM get mitral valve. Your CFS diagnosis may be absolutely correct, in other words. It is not a bad idea to check if you do have Mitral Valve Prolapse though. I was thinking about it too.

  3. busybusymom

    busybusymom New Member

    My son was born with a heart murmur which closed when he was around 6. I'm wondering if that was just a fluke or if there is some genetic thing to it. Aren't MVP and murmur related somehow????

    I think it's a good idea to get everything possible ruled out. Post if you do get tested!

  4. lenasvn

    lenasvn New Member

    My mum probably have it, but never got diagnosed. She had severe migraines all of her life, she had a stroke twice from them. My brother just got diagnosed with a sinus?? (fibrofog) something and will have surgery. It surtenly seems related, but we all three have FM. Hmmm? (again).
    Yeah, happy birthday to us!
  5. busybusymom

    busybusymom New Member

    The woman on the show was put on meds - they didn't specify which one(s). I'm assuming it was in the same family as the atenolol. I'm sorry it didn't work for you. I tend to have low bp, so if I did have MVP, I would have to try other options.

    Thanks for all your replies!

  6. Fudge43

    Fudge43 New Member

    My MVP was discovered by a doctor who specialised in respiritory problems .. about 3 years ago .. she HEARD it (yes .. it is called a "heart murmur").. even though mine is a minor one ..

    I was sent for an echocardiogram and they nailed down which valve was leaking with the backwash of blood .. since then I have had 2 heart stress tests ( because of chest pain and morbid heart history in my family) .. but I'm not on any medication .. I was told if the valve gets too bad there is surgery to replace it .. mean time I just concentrate on the fibro and Hashimoto's thyroid ..

    There is a precautionary measure when you have dental work done .. cleaning etc ... I take antibiotics to prevent infection with the back log of blood in the heart.
    Also have an echocradiogram once a year to see if the situation is progressing ..

    Magnesium was mentioned on here quite often as a supplement to actually aid MVP .. we seem to lack that and increasing it helps with some of the symptoms ..

    I was just glad to read about the weird traits it creates, so I didn't think it was just ME .. such as a severe startle reaction .. I jump 3 feet when startled .. even when it was just my son or husband walking into the kitchen and I didn't see them coming ..
    The huffing and puffing .. I'm not in bad shape and it really bothered me that it would happen to me just going upstairs ..
    All sorts of weird things that make you think YOU are strange .. we aren't ! it is the condition !
    So .. read up on it more .. and try not to worry .. it actually explains a lot of our problems once you get used to the condition.
    Good Luck
    Fudge : )
  7. MaryCecelia

    MaryCecelia New Member

    I was diagnosed with MVP when I was 9 (am 32 now) and began Corgard for it. Prior to that I had a hole in my heart, and thank goodness it closed. I've been to the cardiologist lately to see about stopping the Corgard because I know 23 yrs. on a beta blocker, whose main side effect is fatigue, can't be good for me.

    Imagine my surprise when he did an echo and said I'd "outgrown the MVP." He said he could hear a click, but some women just have a click, and it's nothing to worry about(???) Well, I tried taking less Corgard for a week, and my pulse raced, so he had me return to regular dose and wear a heart monitor. I'll see him again this week. Well, any way, I thought I'd share my story. By the way, my mom has MVP, & my dad was born with a hole in his heart that ended up closing at age 6. Good luck to you. Let us hear.
  8. Frecker777

    Frecker777 New Member

    Many of my doctors have told me I have MVP since they hear the “click” and I certainly have all the symptoms associated with it (heart palps, anxiety, etc.). Anyway, this past year my heart symptoms got really bad and I went to see a cardiologist who did a halter monitor and echocardiogram. He told me I had some abnormal rhythms, but said most people do and offered me a beta blocker. I decided not to take the beta blocker, but now with my recent diagnosis of lyme disease, I wonder what is really to blame for my heart irregularities…
  9. millennia

    millennia New Member

    I read that while about 7% of the average population has mitral valve prolapse, 75% of people with fibromyalgia have it. They are often comorbid.
  10. goaska29

    goaska29 New Member

    I have more than one family member with MVP, so I went into the cardiologist to check me out. After a Holter moniter, an ekg, and an was discovered that I actually had an Atrial Septal Defect. It's a small hole in the wall between the upper 2 chambers of the heart (Atria). It is fairly common in babies, because it is congenital and a result of the heart not fully developing. I had that closed up this past August, but my symptoms remain unchanged.

    It was like a bonus to find this too, I guess??!

  11. auntyemnga

    auntyemnga New Member

    I was diagnosed with MVP when I was about 16. I had thrown my knee out of place and when I saw the doctor for follow-up he told me I had it. Of course, way back then (I'm now 49!), the only thing they told me was to be sure to take antibiotics when having any dental procedure and any time I had surgery. I have never been to a cardiologist and none of my other doctors have ever suggested I do. They just give me the antibiotic before any procedure.

  12. chickadee

    chickadee New Member

    I started having chest pains and really feeling bad. (I believe this was the start of my FM). I went to doctor after doctor and they could find nothing wrong. Finally they did an echo cardiogram and showed me on the monitor how the mitral valve was holding blood and then releasing it in a woossh!

    So for years I thought I had mitral valve prolapse, took the antibiodics for dental work, etc. Also have been taking Atenolol for 25 years. I have had several echo cardiograms in the last 5 - 7 years and they say no prolapse.

    I asked how it got better since I had actually seen it on the monitor. The technician told me that years ago, lots of people were diagnosed with MVP when actually they should not have been. He said the parimeters for an MVP diagnosis are much different now than they were.

    However, what they found this time for me was aortic stenosis. I had the aortic valve replaced last April with a pig valve. No, I do not have to take rejection medications. They used a pig valve because I have ITP (low blood platelets) and with a mechanical valve, it is necessary to take blood thinners which I shouldn't take.

    I tell my kids that since I got the pig valve, I have this uncontrollable urge to wallow in a mud puddle! LOL. The only drug I take is the Atenolol (and some tylenol for FM pain.)


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