Anyone been to the Fatigue clinic in Pittsburgh?

Discussion in 'Fibromyalgia Main Forum' started by tanu, Oct 6, 2005.

  1. tanu

    tanu New Member

    I am tired of meeting doctors and having to explain my illness.My insurance doesnt cover for private treatments.
    My endocrinologist told me to be vary of Fatigue clinics.
    as they give hormones which are unwanted.What do you think.I am desperate to get better.I am homebound and in bed most of the time.
  2. Zzzsharn

    Zzzsharn New Member

    I live in Pittsburgh also.

    Bumping for input!!

    Sharon
  3. tanu

    tanu New Member

    HI,Sharon how is your health.Tell me more about yourself .I am looking for a friend with a similar ailment to discuss treatment and so on.How about meeting in the chat room at 3pm today so that we can help each other.
    How long have you had this illness?
    What is it you suffer from and for how long?
    I have CFS for 3 years now.I am young but gave up work 1 year ago.
  4. Empower

    Empower New Member

    I haven't been to FFC, because I am still leary of it, seems to good to be true, but since you are in Pgh, I went to a rheumy on Monday who does seem to understand FMS - don't know if he can help me yet or not

    I am also going to participate in a study for FMS and energy output and sleep quality, via this doctor

    I will keep you posted

    BTW my PCP is actually pretty good and very sympathetic and seems to really want to help

    Inf fact, my PCP wanted me on the same treatment program that the rheumy does, so he must be on the ball

    Post if you want names - I have been to alot of doctors, so I hope between my new rheumy, PCP and the FMS study, I can ease some of my symptoms.
  5. ldbgcoleman

    ldbgcoleman New Member

    I respect your opinion but you keep saying you are leary of FFC's without being specific. Please let me know why you are leary so I can understand your POV.

    I have had such great success at the Atlanta FFC and had discussed everything they are doing with me with not one but two other Drs now. They are both family friends and both supportive. Dr B has me doing alot of the same things Mikie is doing.

    I have detailed my experiences on the board as have many others. I have been going since early May. I have gone from no hope to planning for life. I think I am about 75% of what I would think of as normal. I had to struggle to make myself go out on my birthday in April and was in the bed every day by 3:00. I was petrified of becoming completely bed ridden. My friends had stopped asking me to do things.

    I play in the floor with Grant. I just started riding horses. I am taking Salsa with my husband once per week. I took my nieces to Chicago for a 4 day weekend and I wore them out! I have finally agreed to build a house and am excited about it! I have hope now, I have a life.

    I only know my experience but it has been nothing but good at the Atlanta FFC. It has been a struggle but worth every penny and the effort I have had to put into getting better. Lynn
  6. BlueIndigo

    BlueIndigo New Member

    I've never been to a fatigue clinic in Pgh., but I'm originally from that city, and would like to hear of anyone else's experience there--as I might move home if I could find a doctor there--but I never could.
  7. Countrymom

    Countrymom New Member

    but I am a patient at the Atlanta FFC. They are wonderful and even though I am not better yet I still think it will be worth every penny.
    Dani
  8. Zzzsharn

    Zzzsharn New Member

    I'm so sorry, I forgot to go back and check the posts!!!

    My health is up and down, I was bedridden last summer for about 5 weeks, and have made slow improvements.

    My pain specialist gave me brochures on the fatigue center, but I was waiting to hear what "real" folks have to say about it before I attempt a visit. I don't think my ins would cover it either.

    It's hard for me to meet in chat, as I'm at work (bad girl) and check the message boards every so often.

    Let me know how you are doing?

    Bumping for others input on Pgh's clinic..

    Sharon