Anyone diagnosed with FMS and then with MS?

Discussion in 'Fibromyalgia Main Forum' started by Krista47, Aug 21, 2008.

  1. Krista47

    Krista47 New Member

    I was wondering if anyone with a FMS/CFS diagnoses was later diagnosed with Multiple Sclerosis?

    I've been sick for 7 years with FMS. I asked for a brain MRI to check for any MS lesions. They found a possible lesion and now I'm waiting to hear from the MS specialist whether it is MS or not.

    My symptoms were non-stop leg pain (as well as overall body pain), stumbling, falling down at times because my leg would give out, and dropping things continually. Being in the heat makes my pain worse, as does the cold. Brain fog, chronic and severe fatigue.

    If anyone else has been diagnosed with MS, would you please let me know why, such as what your symptoms were?

    Many thanks in advance for your help,
  2. LaurieB

    LaurieB New Member

    I have three people that I know -- a friend, a former co-worker, and a SIL who have MS and none of the three was first diagnosed with (nor even thought to possibly have) fibromyalgia. I wish you good news soon, Krista.
  3. carolannwestern

    carolannwestern New Member

    I was told that I had MS about 5 years ago. I was then sent to Ann Arbor Hospital. The specialist said that I didn't have clusters of leassons. That is the difference between MS and other things. My spots are from anxiety and panic attacks.

    They diagnosed me with the stress induced and the horreditary type of panic and anxiety.

    They diognosed me with FM about a year ago.
  4. simonedb

    simonedb Member

    does anyone remember from reading Osler's web or from being one of the epidemic people from the 80s---what the difference between the lesions found in brains of cfs and ms people was? That was the shocking thing, Cheney and Peterson found lesions in the brains of cfids folks, it sort of blew everyone away, some sort of brain damage was going on.
  5. Krista47

    Krista47 New Member

    Wow! This has been very helpful and eye opening.

    I can't tell you how much I appreciate everyone's response.

    Thank you,
  6. kitteejo

    kitteejo Member

    Both of my older brothers have/had MS. The younger one passed away at 40 years old. He had complications to mono and his autopsy showed severe deterioration of the Mylar leading from his brain to his spine.

    My oldest brother now 61 was diagnosed with MS about 4 years ago. His brain MRI shows a great deal of damage, doctor said it looks like swiss cheese.

    I got sick over 5 years ago. I was tested for MS but did not have it. I have CFID and FM.

    Both of my brothers have/had fatigue, falling, confusion, memory problems and a lot of other symptoms that CFID and FM patients have but there is a big difference between them. My younger sister is fine.

    You could go to Web MD to read about MS but you should not diagnosis yourself. Wait to see what the doctors say.

    I've never read anywhere that CFID or FM leads to MS.

  7. butterfly8

    butterfly8 New Member

    Dear krista47

    Since fms/cfs is really diagnosed by a process of elimination, it seems that, during the testing proceedures, some things are picked up that could indicate a different condition. These have to be investigated and either confirmed or eliminated.

    One of the 'things' that often shows up in people suspected of fms is brain lesion. USUALLY, it is only time which reveals, for certain, if it is fms or ms, since both have similar symptoms in the early stages. Often, a good specialist can guess, based on his experience.

    I became terrified when I began to develop certain symptoms that a good friend of mine, who had been diagnosed with ms about 25 years ago, also exhibited. These included: blurred vision, awkward movements, migratory pain, mental confusion. The mri revealed several lesions. The test was completed twice more over the next 2 years. The lesions had not changed, nor had my symptoms become worse. The neurologist concluded that it was fms rather than ms. Never been so happy to have fms!!!!!

    I know that it is a terrifying time while you wait. However, based on the fact that you say that you have had fms for 7 years, you may draw some comfort from the possibility that, if it was ms, you would have deteriorated further in all liklihood. Good luck and I hope you 'only' have fms.
  8. Krista47

    Krista47 New Member

    Thank you for taking the time to tell me your stories. It is so heart breaking to hear what so many people go through.

    I'm so appreciative to have the people on this board respond with such care and kindness.

    Thank you and much love to all of you and your loved ones,
  9. LonelyHearts

    LonelyHearts New Member

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