Anyone else decide to forget pain med's due to clinics??

Discussion in 'Fibromyalgia Main Forum' started by lovstoshine, Oct 21, 2005.

  1. lovstoshine

    lovstoshine New Member

    I just posted a very long story about an out of state funeral I know I need to go to but I will not be able to
    (if you want you can read what happened under "thought i was going to a funeral but now I am not"

    I have decided that I am going to go off all pain meds - slowly of course but I am over the way I am treated. I just can't take it!!

    I would rather be in even more pain than continue to be treated as a druggie!!

    I am an upstanding citizen who has always paid her bills, worked hard and did the very best I could with my children - I don't even have a driving ticket -- ever!!

    But due to my chronic pain I am treated like a leper a sleaze someone who is always trying to get one over on them although I have never given them cause to think otherwise.

    I just changed to a new pain medication clinic as I am seeing one of the Dr's there for my Fibro, CFS, and Myofascial Disease and she knew how much trouble the pain clinic I was going to was giving me.

    If I ever had to call which was only a few times in the couple of years I was there they never returned my calls etc.. and when you would see the Dr. he would say that won't happen again!! well it did and they were under medicating me so she encouraged me to come to her pain clinic

    Well seems they don't like to return calls either and also are good at making me feel worthless so I am going to go to my appt Oct. 27th since I can't go to the funeral but I am only going to tell her what happened and how I was treated and that I cannot continue to be treated this way and I will be going off my meds

    Now I may not be able to get out of bed most days which I know will of course bring on more depression but I am over this I have worked to hard all of my life to be a good person - not perfect of course but you know what I mean

    Anyone else decide they just can't take that attitude either????

    Jeanie
  2. cindy41

    cindy41 New Member

    My mother was under the care of a pain management clinic. She had 2 broken vertebre in her back. They always treated her like a drug addict. It used to make me so angry. They did not treat her pain enough and she spent most of the last years of her life in bed. She lived with us, and I would hear cry in her bedroom at night. She finally just gave up and died in her sleep. I used to tell the docs, who cares if she is addicted!!! She was in her sixties, didn't drive, was not able to work. I just wanted her to have some comfort. So I know how you feel. And the way this country treats pain is horrendous.
    Good luck to you and take care of yourself.
  3. patches25

    patches25 New Member

    Jeanie, if you decide to go without pain medication, you need to go off slowly as you said. Cutting pills in half and quarters has worked for me.

    Once I see you asked about FFCs. I really feel that this disease didn't just come out of the blue. Probably most, if not all of us, have an underlying bacterial, parasitic, and/or viral cause for this. And just how many of us have been tested for those causes. At least the FFCs are making a stab at testing for some of those potential causes. If that is not a possibility, maybe you could find a Lyme literate doctor near you to have some testing done. It really is hard when you feel you are alone in this type of life and no one is on your side. I wish I could just hug you because I know how difficult it is to keep going. I hope you find some help soon. E.
  4. MamaR

    MamaR New Member

    Jeanie,
    I just posted under your other message about the funeral. I hope that you see it because we sound so much alike! Especially with the adult children, and docs not wanting to give pain relief!
    I...like you, am so tired of the attitude of the medical system! I also worked so hard all of my life, and was forced to stop work.
    I went to the ER this past Wednesday with severe dizziness, nausea, chest pain, tingling in my left side. They did a EKG and blood work, but the doctor (looked like he was 18 years old) didn't even come in to give me the results on EKG! I was treated for vertigo! I was told by the lady that did the EKG that it was borderline...so I am going to see a cardiologist because my mother died of heart failure, her father and her brother also! Plus, my dad had open heart surgery when he was only 50 yrs old! I am now 53. We can't give up totally on help from doctors. I know we want to....SOOOO MUCH... as we are so sick and tired of the "LOOKS" from them when they hear... FIBROMYALGIA!
    I do feel like it is getting some better, as I have been going through this for about 10 years! We just have to be firm.

    I don't want you to feel worthless!! I know I go through that also, but we just have to hold our heads up HIGH and be firm with them!! We are SICK! What if we had cancer....they would help, right?

    Love....Mari
  5. Leaknits

    Leaknits New Member

    No, Lovtoshine, but I'm at the verge of forgetting my clinic dr!! I went to him yesterday and, for the third time in as many months told him 2 Percoset painmaskers per day are just not enough for the pain my body has.
    ME "Will you add one tablet per day to the prescription?"
    DR "No. You will just get used to the increased amount and have to take more and more."
    I'm in Lake County, CA where MediCal/MediCare dependent people have to use the clinic system. Private docs here mostly do not accept Medi/Medi patients since the reimbursement to them is different to them than to the clinic docs. Makes no sense at all.If anyone here knows of a cfs-understanding dr in Lake County, I sure would be glad to hear of him or her.
    Not only did dear dr refuse my request, he insisted on putting me on Oxycontin which I do not want and also informed me he is going to set up a psychiatrist appt for me....uh, I have the d'd (d*****Disease), not mental illness. He doesn't seem to understand that, also says alternative to Oxy would be morphine sulphate to which I'm allergic or methadone...no, I'm not addicted to heroin. I don't feel this man gives a darn about patients, just wants to force me to do what he thinks I should.
    Dear fellow survivors, please excuse the rant and thanks much for listening.
    Lea.
  6. elsa

    elsa New Member

    I know you are up-set and you have a right to be. I'm sure you are terribly frustrated over this entire situation, but I think you need to take a deep breath and re-think your decision to stop all pain medications because of two clinic's unprofessional behavior.

    If you follow through with your plan you are the only one that is going to be affected by it ... and not in a positive manner either.

    The doctor's business and life in general is not going to be interupted by the news that you are going to stop taking your medication because you don't think they are being supportive enough of you.

    I'm not intending to be harsh ... they just are not going to have the time to be worried about you. They will see you as an adult who is fully capable of making her on decisions. If you don't want to be treated with pain medications ... for whatever reason, then they are not going to drop everything and try to make it all up to you.

    I think you have turned to two different clinics for appropriate help and have come away feeling badly. This isn't a good enough reason to make your life unbearable with uncontrolled pain.

    It is an excellent reason to lean on us while you go about the exhausting task of finding the right doctor for you. They are out there ... just time consuming to locate.

    Please re-think this. I would be all for you if you wanted to stop taking rx pain medications for alot of reasons, but because you are angry at the pain clinic isn't one of them. I am afraid you are going to hurt yourself physically by not controlloing your pain and those insensitive doctors will never know the sacrifices you are making.

    I so hope I haven't upset you. I am not sure I put my thoughts into words well at all. I feel alot of compassion for you ... I'm angry on your behalf ... and I'm scared your frustration is going to push you into doing something that is only going to hurt you.

    I'll be thinking positive thoughts for you. Please take care ...

    Elsa
  7. lovstoshine

    lovstoshine New Member

    Elsa and to everyone else who replied I know you are right and I have tried to come to my senses and I am sure I will by the 27th and yes I know that the Dr.s do not care what I do one way or another truth be told they would be happy! one less person to have to deal with!!

    I was just so angry and hurt - I knew if I did not get the medications my husband would not get off work and I know had he really tried he could have but he will never admit that.

    I have been in bad shape for quite some time and I know inside that he thinks he is doing this for my own good as it would have been hard for me to travel without proper med's but at the same time I am so anrgry at him and well I guess to be honest myself as I can't accept that my life has to revolve around these medications!!

    I am also waiting to hear if I will be approved for my long term disability from work and my 90 days is up and I know that is stressing me as well

    Deep down inside I know that they deal with so many people trying to do them wrong that they start to mistrust everyone it's just that I have never had to experience this type of treatment before and I guess well after 4 years of actively trying to seek treatment and being treated like this it has taken it's toll.

    I know so many of you have been doing this much longer and I am so sorry, I have been living with this much longer it's just that I went as long as I could before going to med's it's not like I just didn't try other routes first

    I called my Mom today and let her know we will not be coming, she was of course upset. We have had a rough relationship but have just recently been getting along so much better

    I will of course send flowers to the family and I know they will understand but I was very close with my cousins and would have liked to have been their to show my support but I will call them too.

    Thank you all for listening and reminding me that the bottom line is I have to think of myself and I know I am not doing anything wrong I am just trying to have some kind of life outside of my bedroom. I will just remember in the future that if anything like this happens again I will keep it to myself as I know they will not help

    Well I rambled again - don't know what I would do without you guys I so did not even want to live last night I was so over all of this but I am a christian and would never do anything to myself - I know it is a sin

    Hugs to all of you,
    Jeanie
  8. elsa

    elsa New Member



    I'm so sorry honey. You hang in there. You have all of us and you can come and ramble on, spilling your frustrations anytime you need to.

    It is hard grasbing the fact that in some form or fashion most of us will be on medications/supplements for the rest of our lives all thanks to CFS/FM. I know it's tough, but at least you're not in the boat alone.

    I'll be thinking of you. Try to keep your chin up ... just take it one day at a time.

    Elsa
  9. JLH

    JLH New Member

    "patches25" mentioned that she cut her meds in half and it worked for her.

    I just wanted to warn everyone to NEVER CUT TIME-RELEASED PAIN MEDS!!!!!!!!!

    Cutting a time-released med like Oxycotin in half could be a FATAL mistake!!!!

    Everyone probably already knows, just wanted to remind you!!
  10. ldbgcoleman

    ldbgcoleman New Member

    I would very calmly explain the treatment you have recieved and follow that with I know you don't want patients to be treated in this manner and give them a chance to fix it. If they don't then I hate to say it out find a better Dr. just because these guys went to med school doesn't men they are all competant!

    Please don't go off your mmeds with out asking the Dr the best way to do it! Take Care of yourself! You deserve to be taken care of! Lynn
  11. granmama

    granmama New Member

    My primary won't prescribe narcotics, at least not ones like Oxycontin or Morphine. He will prescribe Vicoden though.
    So, he sent me to a "pain specialist" for my back.
    As I was in the waiting room, many of the patients looked drowsy, one was even asleep. This did make me feel very uncomfortable.
    But, I tried to have the right attitude, hoping he would give me injections or maybe a patch. NOPE! Just DOPE!
    I tried them, got sick. Then was put on more, got sick.
    So, I told my primary I would rather be in pain then live with this drug induced state. So, he increased my darvocet and klonopin, which has helped for months now.
    This is not the first time dissatisfation with pain specialists has come up here. Many may need it, but I chose to do without at that time.
    Now, I'm at a point that darvocet is not helping my back, but hydrocodone does and my back does not hurt in the morning. I only take one. I don't know how much longer he will keep refilling my script (initially given when my back went out recently).

    I've been through: NSADs, muscle relaxers, narcotics.
    I say don't quit cold turkey, but if it's not for your body and mind, then stop!
    Stay well,
    granmama
    [This Message was Edited on 10/22/2005]