Anyone else with Tinnitus out there ?

Discussion in 'Fibromyalgia Main Forum' started by Fudge43, Sep 15, 2005.

  1. Fudge43

    Fudge43 New Member

    I have tinnitus in my right ear .. well over a year ago it started .. are there other fibro people with this noise .. mine is a high pitched whine .. I have to have white noise at night to help NOT listen to it .. if anyone has recommendations for help with this I would greatly appreciate it ! Thanks
  2. Bailey-smom

    Bailey-smom New Member

    She had to use a series of steriods to help hers. Have you been to your dr? It could be very bad - she was told of eventual hearing loss.

    Kelly
  3. Kinsie

    Kinsie New Member

    I've had it for about 20 years.

    I thought my ear was stopped up, so I went to the ear,note and throat doctor. Well, my ear was not stopped up. I had developed tinnitus. To rule out everything else, I had a bunch of tests done at the hospital ( they rule out if there may be a tumor).

    I thought having it in one ear was bad, but a couple of years later it started in my other ear.

    I have never found anything that helps.

    I don't notice it so much at work where it's noisy, but when it's quiet at night it's loud.

    I wish I had some good news for you.

    Kinsie
  4. fivesue

    fivesue New Member

    so I guess I don't know what not having it is. It doesn't bother me; some medications make it worse, but usually, it's just a constant ring in my ears. Like I say, I can't remember not having it.

    I had lots of ear infections when I was young, and my dad has chronic tinnitus, also. So...

    I can't help...but you aren't alone and mine has nothing to do with FM.

    Sue
  5. smiffy79

    smiffy79 New Member

    i have it in both ears at two high pitchs,one from an iron maiden tape and the other from an ac/dc tribute band concert.
    no help for it though.
  6. Lurlasgirl

    Lurlasgirl New Member

    unfortunately - I can't tell you what to do to make it better.

    I have it in both ears, and it sounds like cicadas... sometimes louder than at other times, but always there. I've had it for years, and so far have found nothing that helps.

    I don't know if its related to the FM or not -- I've had both so long, its kind of hard to know.

    Hope you can find something that helps!
  7. rbecca47

    rbecca47 New Member

    I have it in both ears, went to ear nose and thoart doc. ran test. said there really isn't anything that can be done. i have hearing loss in both ears. hearing aid in one ear helps. but loud noises is like fingers on a chalk board.
  8. getfitat40

    getfitat40 New Member

    I didn't develop it until after college when I got multiple ear infections. My ENT actually put a tube in one ear to see if it would stop it but it did nothing but make the sound different in one ear from the other ear.

    At home I have a fan going in my bedroom all 4 seasons for the white noise. I travel with a noise machine because otherwise I can't sleep.

    There is no cure that I know of and I researched a lot. People used to be committed to institutions because it was driving them crazy. I do know you should not take any asprin products because that makes it worse.

    Nancy
  9. gnanny

    gnanny New Member

    A high pitched whine and sounds like air rushing. I dont remember when it started. I sleep with the tv on to help mask it.
    I probably 'earned' it. Lots of loud music...lawn mowers etc. I thought I was invincible !
  10. fairydust39

    fairydust39 New Member

    I have had Tinnitus for 30 or more yrs.(In both Ears) A long long time.I had ear infection as a child and had fluid the Dr didn't remove and lost my hearing. I'm almost totally deaf but can hear some with hearing aids. When I take the hearing aids out or have a cold(Like right now) It is terrible. But I just have to live with it. I'm so sorry you have Tinnitus!I can't use the phone at all but my Husband does all the phone calls and I have my e-mail,thank God. As far as I know there is no cure for Tinnitus. My Husband and I were in the Hearing aid business for 25 yrs. and I have never found anything to stop it!!
    Shirley
    [This Message was Edited on 09/15/2005]
    [This Message was Edited on 09/15/2005]
  11. LittleBluestem

    LittleBluestem New Member

    As Kinsie said, you need to see a ear, nose and throat specialist to be sure there is not a correctable problem behind the tinnitus. A Chiropractor can check for pinched nerves.

    No cause could be found for my tinnitus of several years. I have found that Ginko Biloba reduces the sound level of my tinnitus. 30 mg 3 times a day works better than 90 mg once a day for me.
  12. Jeanne-in-Canada

    Jeanne-in-Canada New Member

    when I was dx'd w/ environmental illness and allergy tested, I discovered wheat was the cause of this. I cut it out of diet for awhile and got over it w/ enzyme therapy.

    I've been getting it again, but the symptoms were a bit different. this time I seem to have narrowed it down to canola oil. Avoid the oil, avoid the symptoms. Eventually I'll knock the sensitivity to it back mainly w/ enzymes and aloe, like I did w/ the other food sensitivies.

    It's almost as dastardly hard to avoid canola oil in Canada as it is wheat. We kind of invented it and have went bonkers over it every since.


    Jeanne
  13. Fudge43

    Fudge43 New Member

    You guys have been great in responding .. I really appreciate it ! ... The cicada noise is exactly what it sounds like .. I did have my hearing tested a while back when it started .. and to my surprise it is my good ear (left one ) that has some hearing impairment .. that really discouraged me .. it didn't seem logical for my good ear to display that ..
    In any case .. I've researched a lot and found that B6 is supposed to help .. I started taking that to enhance the L-Tryptophan for sleep .. so may be it might help with the tinnitus ..
    Thanks for all of your imput ! .. and besides canola oil my Canuck friend .. soy is in a load of things .. I'm allergic to that great stuff and was reminded once again when we had some chicken strips for dinner .. instant flaring cheeks and headache .. fished the box out of recycle and there it was on the ingrediants .. I have to remember to READ the packages ! geez ! haha
  14. Fudge43

    Fudge43 New Member

  15. Angel6801

    Angel6801 New Member

    I can't really help you with this but It sure good to know that I am not alone. I have been suffering with ear ringing ever sine I was younger. But.. I am also deaf. So, I can't tell if that is related to my FM or it is because of due to be deaf. Lately I have bad ear ringing and become more frequently thatn it used to be. They can be really scary. It is really tough cuz I had to go to work at night time by myself (i am cleaning the offices) and sometimes I found myself hearing those strange noises and it increases the stress and anxiety i had been suffer. If you find anything to make it go away, let me know. :)

    I do know that if your ears are ringing, it normally could be sign that you start to losing little hearing (not always true so don't let that scared you okay?) But there is numbers of reasons why it trigger the ear ringning. It might be wise to talk to ear dr about it.

    Take care
  16. smiffy79

    smiffy79 New Member

    do you find yours gets louder when you are stressed or when your pressures up?

    mine gets unbearable sometimes when i am angry.
  17. jarjar

    jarjar New Member

    Dr. Marshall of the Marshall Protocl had tinnitus. Went back from the days when he was in the military shooting loud weaponry. Upon completing the marshall protocol his cleared up. Turns out it is related to the bacteris which is playing havoc in our bodies. You can go to the web site and read about it and find out that many of us with our disease has this problem.
  18. Fudge43

    Fudge43 New Member

    Thanks again for the input .. I started taking garlic pills .. I guess I should stick to my guns with that and see if it makes a difference .. it REALLY helps to know there are others with this maddening noise though .. thanks again !
  19. Mikie

    Mikie Moderator

    I think my tinnitus is a result of the seizure activity that causes so many of us to suffer from sensory overload, insomnia, RLS, muscle spasms, and anxiety.

    Love, Mikie
  20. Banka8

    Banka8 New Member

    I have it. Sometimes its soft sometimes its loud. But it is always there.

    I'm on the Marshall Protocol and it gets louder for awhile after I take the antibiotic then it calms down. So I think it has to do with the cell wall deficient bacteria. Hopefully the MP will help this annoying symptom.

    Seems like there are alot of us with tinnitus. The sinuses are probably a good place for certain species of bacteria to thrive.

    It drove me crazy in the beginning but now I just ignore it.

    Judy