Anyone feel they have been cured from taking Valtrex?

Discussion in 'Fibromyalgia Main Forum' started by rigdon007, Jun 7, 2005.

  1. rigdon007

    rigdon007 New Member

    My dr. claims I have Epstein Barr and the high doses of Valtrex will rid me of my problems in 6 months and I will feel well in 1 year. I don't believe I have ever felt well.

    Anyone really been cured by taking Valtrex?
  2. kbak

    kbak Member

    big pros and cons on Valtrex. I be interested in other people's experience too.
  3. Krista47

    Krista47 New Member

    I know several of us were trying it, at different doses.

    I was on it for a couple of months, then went off it, and tried something new that worked very well for me.

    I'd be interested to hear from Valtrex users too. I know Mikie suggested an antiviral that might work better than the Valtrex.

    Kris
  4. Mikie

    Mikie Moderator

    And supposedly has fewer side effects. Some docs are using IV antivirals. Have you considered Transfer Factors? Had I known then what I know now, I would have opted for them instead of the Famvir. I took Famvir prior to facial surgery as a preventive measure and went into a temporary complete remission. That is when my doc and I decided that I likely have either stealth Herpes-Family Virus(es) or a reactivated virus.

    Both the Immune Transfer C and the TF System 100 sold here target EBV. The difference is that instead of killing the viruses outright, TF's train the immune system to recognize and kill the viruses on its own. You take them for three months and then pulse them for only a couple of days every six weeks. I just did a pulse and had an immune response with swollen lymph nodes, a headache, and fatigue. That lasted a couple of days and they I Herxed for a day with diarrhea.

    Sixty-seventy percent of us with these illnesses have tested pos. to HHV-6 in studies. Antivirals do not usually kill HHV-6. The Transfer Factor 200 targets both strains of this nasty virus.

    You can read in the store here about TF's. You could also do a search in the Library here or do a web search. I know how well the TF's sold here work and highly recommend them.

    Has your doc mentioned hypercoagulation? Many with chronic infections have an overgrowth of fibrin in their blood. A low SED rate is not definitive, but it is a clue that hypercoagulation may be present. Check the HEMEX Lab website. It explains all this and describes the ISAC bloodwork panel to check for hypercoagulation. Heparin treatment will rid the blood of the fibrin pockets where the pathogens hide from the immune system.

    Love, Mikie
  5. Krista47

    Krista47 New Member

    I have to bump and file this one because I keep forgetting what Mikie says, and I want to take this to my FM specialist...first appt. is Aug 3.

    Thanks,
    Kris
  6. Betsy2

    Betsy2 New Member

    I took 3 gms of Valtrex every day and never noticed any improvement of my condition
  7. Mikie

    Mikie Moderator

    I hope this info, plus whatever you find in your research, helps. Keep us updated.

    Love, Mikie
  8. ANNXYZ

    ANNXYZ New Member

    ( I took it 2 years ) I had chronic EBV and was frequently in bed . Valtrex helped , after three months . HOWEVER , I believe the reason I had EBV was due to
    a mycoplasma infection that has weakened my immune system
    and made me susceptible .

    Dr Martin Lerner of Detroit pioneered the valtrex therapy for EBV . Read about him and his abttle with CFS . Search google.
  9. upnorth

    upnorth New Member

    I've just finished a 2 1/2 month course of Valtrex for CFS symptoms - throat, glands, ear, fevers, lymph nodes and am not sure if it made too much difference. Maybe it depends on the dosage.

    I had extremely high titers to EBV in the winter and haven't had them checked recently.

    However, I have improved significantly since the onset of summer which could also be attributed to the valtrex or perhaps the season (I tend to improve in the summers) - it's so hard to tell with relapses and remissions what the factors involved are.

    It seems that there are more people here on valtrex lately.

    It's good to get updates on people's progress.
  10. tansy

    tansy New Member

    and relaxed during my MRI. It was done during a week when I felt remarkably well for me, my pain and fatigue were at much lower levels too. I just wondered if it was due to the magnetic pulses since it did not feel like anxiety or anything like it. My mind remained relaxed partly because I have got through other times when my heart’s gone crazy or I have problems breathing, and survived those. I read about people suffering because they find it claustrophobic or the noise is too loud, the ear defenders I was given took the noise levels down to a tolerable level. That's what made it all seem so weird.

    I have gone back to reading up on chiari. There are so many overlaps with these DDs and neuro lyme, but in my case the surgery and aftermath make it worth pursuing if I can get copies of the images taken. My physical state after that surgery 24 years ago was proof of the force and battering my jaws, head and neck were subjected to.

    The MRI picked up problems with my cervical spine which are frequently reported here, I will not get much funded help for that in the UK so if I pay and go back to a chiro or specialist PT I want to know of any potential problems beforehand; especially since I have had them in the past.

    It’s reassuring to see you are in good hands, Dr Lerner is definitely one of the best, especially for those who feel they have marked cardiac involvement.

    Love, Tansy
  11. Slayadragon

    Slayadragon New Member

  12. Texas Jackie

    Texas Jackie New Member

  13. Slayadragon

    Slayadragon New Member

    Rigdon: It's good that your doctor gave you a timeline.....I've yet to hear one so far. What do you think of your doc? do you trust him/her at all?

    Krista47: What did you try after you went off the Valtrex? Did you have any side effects when you were on Valtrex (or whatever you switched to)? Or herx effects?

    Betsy2: Did you herx at all when you were on Valtrex? How long did you stay on it?

    Annxyz: How much did valtrex help? What was your dose? Did you have herx symptoms when you were on it? Are you still taking it?

    Upnorth: what dose of Valtrex were you taking? did you herx when you were on it? Why did you go off?

    Thanks to all in advance for your responses. This is really important information!!
  14. Hootie1

    Hootie1 New Member

    I've been taking valtrex for 6 mths and notice no difference. I still have the flu-like symptoms. The only thing that has gone away are the rashes on my legs and arms. I'm not sure if the valtrex helped that or not. I take many other supplements from the FFC.