Anyone Given Rx Meds for IBS? Natural cures?

Discussion in 'Fibromyalgia Main Forum' started by CAAnnieB, Sep 6, 2005.

  1. CAAnnieB

    CAAnnieB New Member

    Hi All,

    I recently saw a GI specialist who diagnosed me with severe IBS. He says it and my Gastritis are caused by Fibro & stress.

    His recommendations were stress reduction (obviously), and antidepressants. (Nortriptyline & Celexa) I'm not into drugs...I have very weird reactions to them & most irritate my stomach! I prefer to go the natural route instead of taking/ experimenting with more meds. I told this Dr. that I'm not keen on throwing more drugs into my system. He then also recommended Psychotherapy (long term, says he) to address my supposed deep-seated fear/stress issues. (I'm not under any more stress than the average person...besides the stress that comes with living with this DD & having to see nutty Dr's like this guy!)Don't think I'm keen on the shrink therapy idea either...

    Seriously tho'...Has anyone else been prescribed these drugs specifically for IBS? Or are there other meds specifically for IBS? Do they really work?

    Any great treatment ideas for IBS? Natural/ herbal remedies?

    I'm actually more concerned about the Chronic Gastritis. This Doc seems to think it is my body being ultra sensitive to normal body functions (IBS?)...Gastritis goes along with Fibro/ stress.

    I'm rambling, sorry. Guess I just am curious what others do for their IBS...Just another diagnosis to add to all my others!

    Annie B
    [This Message was Edited on 09/07/2005]
  2. Bruin63

    Bruin63 Member

    I was given, Librax, didn't help, given CharDonnetal, (SP?) again didn't help.
    I find that my Soma helps had Vistirl.

    Back in97 I had a Dr. ask me to joing a Clinical trail, that he was doing.
    But I would have to have given up my Vicodin, and I said no way.
    I had worst pain, all over than the IBS. I have lived with that all my life.

    There is also a trigger point, called, McBurney's Point that cause's pain for me in the Intesineal track.
    It get's a Lump in the area, but once the Soma kicks in it relaxs it enought that I am able to release, some of the build up, shall we say, ;o)

    My SIster is on a new Med, but she say's it isn't working for her.
    I'll ask her today,(again lol) what the name of it is,
    they started her on it when she was in the hospital, back in July.

    I'm sorry your having this problem, I hate it, it has caused me so much Pain and Stress during my lifetime.
    I was born with this, and I was a 6 month Colic, the Dr's think this was the start of the IBS.
    Good luck, I hope you find something that will helps you, it's a misery for sure.
  3. tngirl

    tngirl New Member

    I take Zelnorm, twice a day. I have IBS with constipation and occasional diarrhea. It does help. I also occasionally take milk of magnesia.

    I was also prescribed Lactulose, but it didn't help me too much. It seemed to give me a lot of gas, so I am not taking that at the present.
  4. atpeace

    atpeace New Member

    Hi, Annie. I've had fibro since 1994 and have had IBS for the last several years....insult to injury, I say ;)

    I haven't found much relief from doctors. Like you, I don't want to pour more drugs into my body. That has always ended up making me feel worse; the side effects are frequently as bad as what they're supposed to help. To be honest, I simply don't go to the Dr. anymore for either the fibro or the IBS....I know they can't really help me.

    I found a website that is WONDERFUL for those coping with IBS. It's helpforibs dot com (obviously written out, because I don't know the rules for advocating other websites on here). They suggest a list of foods that are bad triggers for IBS, such as coffee (any caffeine), red meat, fried foods, insoluble fiber, and whole wheat. They also suggest different natural meds that help (peppermint, fennel, ginger, soluble fibers).

    I dunno if that site's plan is the way to go for everyone with IBS, but it has helped me cope tremendously!


    [This Message was Edited on 09/07/2005]
  5. fifthofanickel

    fifthofanickel New Member

    After being diagnosed w/microscopic colitis in 1999 I had been gluten free..I had a colonoscopy in June, & found my intestines were healed, but do have IBS w/c&d...I need to continue to watch what foods I eat & am very med. sensitive.

    The IBS group I belong to, one of the suggestions was taking extra virgin olive oil 1-2 Tablespoons a day..It has to read on the label "first cold pressed" That is the best oil from the olive..And I have to say it's been helping w/both C&D. I take one Tblsp. as I tread softly in taking anything. And it should be taken right away in the morning b4 even taking water..

    There are other suggestions on the site also, and one has to find what works for them. Just as in this DD....If you google Irritable Bowel Syndrome, I think it's the 6th one down..Just remember the name org......

    Hope you find something that works for you...
    [This Message was Edited on 09/07/2005]
  6. CAAnnieB

    CAAnnieB New Member

    Thanks to all of you for your replies. I will check out the recommended web sites. I think that my most discomfort intestinally happens when I'm taking all my natural remedies! My Holistic Dr. recommended Similase (Digestive Enzyme) with meals. I believe it made my abdominal pain worse, so I've quit taking it!

    I'm also to be taking Probiotics, which I am. I'm just slightly confused about WHEN to take them tho'. One bottle says, "20-60 minutes after eating". The other brand says," before meals & at least 2 hours apart from herbs & prescription meds". Hmmm...I hate conflicting advice!

    The intestinal rumbling/ gas/ pain hasn't been too bad this past week, thank goodness. I've been constipated my entire life. I was having great success with just taking mega doses of Magnesium every day, but recently I've had to supplement with more fiber. (Fiber Smart powder by Renew Life)

    The IBS doesn't really concern me too much. I suppose it would me a MAJOR hassle if I worked outside the home! I feel sorry for those of you who struggle with bowel problems during work hours. That would be a hassle, to say the least!

    Bless you all,
    Annie B.
  7. earn

    earn New Member

    Dear Annie,
    I have had this for most of my life---mine being diarrhea--no constipation. Have had to go to emerg room, had scopes, and taken meds--with not much help from any thing. Was never able to travel with friends. I know where all the rest rooms are in all the stores (sure you know what I mean).

    The thing that has given me a new life is pain meds I started on for fibro and Rheumatoid. their effect on me is normal stools and not constipation. Also I asm having trouble with severe reflux now-and started taking Gavascon for that-and found that it stops the diarrhea.
    Hope this helps you--it may not-but hope so-Laverne
  8. Bruin63

    Bruin63 Member

    That is what my Sister is taking now, and she say's it help's.
    She recently had to miss a coupule of day's, and she said she got worse.

    Here's Information that I got from Medline;

    Why is this medication prescribed?
    Sulfasalazine is used to treat bowel inflammation, diarrhea (stool frequency), rectal bleeding, and abdominal pain in patients with ulcerative colitis, a condition in which the bowel is inflamed. Sulfasalazine delayed-release (Azulfidine EN-tabs) is also used to treat rheumatoid arthritis in adults and children whose disease has not responded well to other medications. Sulfasalazine is in a class of medications called anti-inflammatory drugs. It works by reducing inflammation (swelling) inside the body.

    How should this medicine be used?
    Sulfasalazine comes as regular and delayed-release (enteric-coated) tablets. It usually is taken four times a day in evenly spaced doses throughout the day so that no more than 8 hours separates any two doses, if possible. Take sulfasalazine after a meal or with a light snack, then drink a full glass of water. Follow the directions on your prescription label carefully, and ask your doctor or pharmacist to explain any part you do not understand. Take sulfasalazine exactly as directed. Do not take more or less of it or take it more often than prescribed by your doctor.

    Swallow tablets whole; do not crush or chew them.

    Drink plenty of fluids (at least six to eight glasses of water or other beverage per day) while taking sulfasalazine.

    Continue to take sulfasalazine even if you feel well. Do not stop taking sulfasalazine without talking to your doctor.

    Other uses for this medicine
    Sulfasalazine is also used to treat bowel inflammation, diarrhea (stool frequency), rectal bleeding, and abdominal pain in Crohn's disease. Talk to your doctor about the possible risks of using this drug for your condition.

    What special precautions should I follow?
    Before taking sulfasalazine,

    tell your doctor if you are allergic to sulfasalazine, sulfapyridine, aspirin, choline magnesium trisalicylate (Triosal, Trilisate), choline salicylate (Arthropan), mesalamine (Asacol, Pentasa, Rowasa), salsalate (Argesic-SA, Disalcid, Salgesic, others), sulfa drugs, trisalicylate (Tricosal, Trilisate),or any other drugs.
    tell your doctor and pharmacist what prescription and nonprescription medications you are taking, especially digoxin (Lanoxin), folic acid, and vitamins.
    tell your doctor if you have or have ever had asthma, kidney or liver disease, porphyria, blood problems, or blockage in your intestine or urinary tract.
    tell your doctor if you are pregnant, plan to become pregnant, or are breast-feeding. If you become pregnant while taking sulfasalazine, call your doctor.
    plan to avoid unnecessary or prolonged exposure to sunlight and to wear protective clothing, sunglasses, and sunscreen. Sulfasalazine may make your skin sensitive to sunlight.
    What should I do if I forget a dose?
    Take the missed dose as soon as you remember it. However, if it is almost time for your next dose, skip the missed dose and continue your regular dosing schedule. Do not take a double dose to make up for a missed one.

    What side effects can this medication cause?
    Although side effects from sulfasalazine are not common, they can occur. Sulfasalazine causes temporary infertility in males. Fertility returns when the medicine is stopped. It can also cause your urine or skin to turn yellowish-orange; this effect is harmless.

    Tell your doctor if any of these symptoms are severe or do not go away:

    loss of appetite
    upset stomach
    stomach pain
    If you have any of the following symptoms, stop taking sulfasalazine and call your doctor immediately:

    skin rash
    sore throat
    joint or muscle aches
    pale or yellow skin
    difficulty swallowing
    unusual bleeding or bruising
    What storage conditions are needed for this medicine?
    Keep this medication in the container it came in, tightly closed, and out of reach of children. Store it at room temperature and away from excess heat and moisture (not in the bathroom). Throw away any medication that is outdated or no longer needed. Talk to your pharmacist about the proper disposal of your medication.

    In case of emergency/overdose
    In case of overdose, call your local poison control center at 1-800-222-1222. If the victim has collapsed or is not breathing, call local emergency services at 911.

    What other information should I know?
    Keep all appointments with your doctor and the laboratory. Your doctor may order certain lab tests to check your response to sulfasalazine.

    Do not let anyone else take your medicine. Ask your pharmacist any questions you have about refilling your prescription.

    Brand name(s):
    Azulfidine EN-tabs

  9. Bronagh

    Bronagh New Member

    Hi Lorri,

    I'm a member of that site, it's Heather's, cant put the address here?

    I haven't been there for a while for different reasons BUT i could do with going back because my IBS has turned from constipation to the other one:(

    It is brilliant there, i learned so much, i was in a bad way when i got there and started to take Physillium Husk which was great for my constipation, i believe it is great for diarrhoea also. I followed the diet and felt marvellous but then got lazy.

    I was prescribed Colofac for spasms.

    Bronagh :)
  10. hehmommy

    hehmommy New Member

    My husband has suffered so bad with severe IBS for years. He has run the gammit on meds-doctors-natural things. He even went as far to make this wild tincture out of green walnuts and vodka one time. YUCK!! That stuff tasted nasty. When he was diagnosed with BiPolar the doctor had put him on Prozac. It was like a miracle for him. All his symptoms had disappared completly. The doctor said it has that effect on several of his patients and now I hear they are actually prescribing it for those with severe IBS. Unfortunately he had to stop because the Prozac was interacting with his Lamictal. He got sick immediately after quitting the med. He does however get some relief from taking his fiber faithfully everyday and he takes 2 immodiums every other night. If he forgets to take it he gets really sick the next day. Same goes for my Dad who has it too. He now still gets sick though without that Prozac. He wished he could go back on it. You have to keep trying different things until you hit on something. One doctor said that elimination diet thing is awful. You pretty much wind up eliminating everything from your diet and most of the time it winds up being nothing you eat seems to help or worsen it. Waste of time. I hear for some those probiotics things work. Let us know if you hit on something that helps. I am begginning to think there is no real cure for this like FM and CF.

    Trish :)
  11. Bronagh

    Bronagh New Member

    Hi Annie,

    I have the address for the IBS site that Lorri is talking about, i dont think it is allowed to write it here, ask the moderators about that point.

    I am a member of that site and it is absolutely great.

    I haven't been there for a while, it has great help and info, i learned so much about IBS i couldne believe the type of food that effects us.

    At the time i joined i had IBS with constipation and everything that went with that awful condition, i started to take Physillium Husk, you can get it in the health store, actually members of that forum take it for diarrhoea also.

    Sadly my IBS is with diarrhoea these last few weeks so i will have to go back on it again and will have to go back on the forum also. I get their newsletters frequently in my email.

    I wish i could give you the website address.

    Bronagh :)
  12. CAAnnieB

    CAAnnieB New Member

    Lori-at peace & Bronagh~

    I went to the website you referred to...Looks very interesting & when I have more time; I'll read, read, read!

    Thanks guys!

    Annie B.

    P.S. Bruin, I'm allergic to Sulfa meds :(
    But maybe someone else could be helped by the info you posted, Thanx!

    P.P.S.S. Trish~ Sounds like the Prozac worked for your husband in the way this Dr. told me that Nortriptyline & Celexa do (Antidepressants)...

    He said they really aren't sure WHY they work, but they seem to help some people with IBS symptoms. If I wasn't SO,ooooo tired of trying new meds; I might consider it.

    Right now; I'm not a big fan of prescription meds, even tho' I'm still on 4 regularly.I'm downright freaked about putting one more body-altering pill into my bod! (Especially one that would alter the hormones/ chemicals in my brain!) That's just me...after 12 years of trying OODLES of medications, treatments,etc. If my symptoms become super nasty; I might change my mind & try one of the AD's.

    But this is all good info for others out there with this IBS...Thank you very much.
    [This Message was Edited on 09/07/2005]
  13. Bronagh

    Bronagh New Member

    It really is a great site Annie, there is so much info about IBS.

    You can ask for help about all your IBS, yes loads to read there.

    Best of luck, maybe i'll see you there soon:)

    Bronagh :)
  14. tandy

    tandy New Member

    I have IBS really really bad too~
    Sometimes its absolutely the worse! for weeks at a time.
    I wish I knew what site yous are referring too??
    Maybe I need to go back over the replys here cause I'm missing it. (does'nt surprize me. Bad fog day!)

    I'm certainly gonna search that McBurneys point!
    Thank you!
    I have horrible scarey stomach pains with my IBS and I do feel lumps sometimes!! (lumps that go away)
    so I don't know if its gas pockets of what!?
    I'm a thin person so when I'm laying down I can feel some hard knots at times. ??? its the weirdest thing!! and scares me thinking I have a tumor or something!
    but its gone after a day or 2?? only to return when the IBS acts up again.
    Where abouts have you felt knots or lumps?
    Hope you see this and can answer me quick~
    :) Tandy
  15. qnjamie

    qnjamie New Member

    I guess IBS is the most common symptom.
    I take Levsin or Levsinex. The difference is the form.
    Levsin is an oral tablet for abd pain or colon cramping when it happens.WONDERFUL!!
    Levsinex is a bigger dose taken regularly for preventive measures.
    I got that Rx from University of Michigan dr in gastro.

    I never knew I had IBS...I just thought it was my body.
    I steer clear of anything you know upsets gastro (MSG etc)
    I also eat peppermint candies!![This Message was Edited on 09/07/2005]
  16. Milo83

    Milo83 New Member

    When I was first diagnosed with IBS back in about 1992, (I had mostly diarreaha), my gastro put me on a RX Drug, called "Bentyl" and it really did help, plus I upped my Fiber Intake...

    Now, I go either way, and just take 2Citracel Every day...

    I was one of the unlucky ones that couldn't take Zelnorm - but they say it's a good drug.........

    Take Care.......Love, Donna
  17. razorqueen

    razorqueen Member

    is for Constipation dominant IBS. Wish I could afford to take it. It is very costly. I don't find any rhyme or reason for my IBS flare ups, other than stress. I can eat one thing one time, and nothing, and another time, 1/2 hr later, off too the loo!
    Large doses of Magnesium help me stay regular, and I take Modulin when I have a flare up. Seems to help. I take it before I eat then.
    IBS is definetly NO fun when it flares up when you are at your job! I am a hairstlyist, and when you are working with a customer, and feel the pain and cramps coming on, boy, its not something you want happening!
  18. atpeace

    atpeace New Member

    Hi, Bronagh! I've gotten lots of great info from the "helpforibs" site. I have Heather's recipe book, and I take the Peppermint Oil caps and 1/2 tsp. of the Acacia fiber every day...I've seen wonderful results!

    As long as I keep the trigger foods to a minimum (the worst for me are fried foods and dairy), drink plenty of water, take the fiber and peppermint caps, and get some exercise at least 4 times a week, my IBS symptoms are MUCH reduced.... even non-existant many days!

    I think IBS is one of those disorders that is different with everyone. What triggers one person may not trigger someone else.

    IBS I've learned to treat fairly effectively.....fibro is a whole 'nother story lately. :(


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