Anyone have BAD experience with T.P. injections?

Discussion in 'Fibromyalgia Main Forum' started by painfreesoon, Nov 17, 2010.

  1. painfreesoon

    painfreesoon New Member


    I had T.P. injections about 2 yrs. ago, and it took about 2 mos. to get over it. It caused a major flare. My muscles spasm very easy.

    The last month I've been dizzy almost everyday , which I have not been for about 7 yrs. when I was first diagnosed, that was actually my worst symptom, it lasted non-stop for 3 mos.!

    But, I'm thinking of giving it another try. I had it done by the best doctor here in Nashville.

    I just am really depressed, I feel like I'm going backwards, to where I was several years ago. this past year has been awful. I don't know what to do I'm desperate.

    I have Myofascial Release Therapy which helps, I can't have acupunture, it made me flare, and the needles wouldn't go in.

    My neck is like cement. I go to a pain doctor, I've tried ALL the meds. I'm on pain and muscle relaxers, but nothing is working.

    I was able to do a little around the house, now I'm back to being in bed ALL day. I can't stand this.

    I've done evereything litterally and scared, I'm just going to keep getting worse.

    I pray, listen to positive meditation tapes, etc.
    I've tried meds that didn't work a second time to see if some how they would now. Dumb I know but like I said I'm desperate.

    I know if the shots made me worse before, I scared they will again.

    But somehow hoping fo a different outcome, I know dumb. I just don't know anymore.
  2. lisadot

    lisadot New Member

    I GET the cement neck problem!!!! I like to say it feels like I have my neck held up with rebar (those steel rods) which is ready to snap.

    I had my first round of shots, and was headache free for 5 days, and then had a migraine, but maybe it was because I went into a casino which had smoking. Yuck.

    Recently I had the second round of shots, and he went up higher into the neck. Ouch! I made him spray me with cold spray first (ethyl chloride), but it doesn't help much. He injected my traps and neck in a total of 6 places. Let me tell you...this second round was A LOT more uncomfortable that night and the next couple of days. It just ached!

    I walk around at work with a bag of frozen PEAS. Which is really a local major pharmacies cold pack with velco. The one I bought at this site did not get cold enough - even when I put into into my office -22 Celsius freezer. Using this tends to stop the headaches if they start.

    I have to say since the injections I have only had one migraine, and again I think the smoking triggered it. So, to me that's a HUGE improvement. I tried acupuncture and it didn't really help.

    What happens with your myofascial release treatment? Is it done by a physical therapist? What is their opinion of your progress or back-sliding?

    I'm sorry about your pain, and I do really get it. I know that doesn't help your pain, but at least you know there are others that understand your situation.

    I'm more worried about my liver since my gallbladder was removed, and the subsequent pain. I have to have my labs done next week. They were normal in March, but now I worry they are high. I am avoiding pain and all other meds as much as I can. I was going get tested this week, but my husband is having surgery Friday, so that's enough to worry about. LOL! Cripes, I am a mess too!!!
  3. LittleBluestem

    LittleBluestem New Member

    Have you talked to the therapist that does the Myofascial Release Therapy to see what s/he thinks would be a good next step? Has s/he shown you how to work on the trigger points between treatment? If you don’t already have it, you might want to get “Fibromyalgia & Chronic Myofascial Pain, a Survival Manual” by Devin Starlanyl and Mary Ellen Copeland. It’s an oldie but goodie.

    P.S. Sometimes you will get a different result when you try something a second time. If something about your condition has changed, the outcome of the treatment may change.[This Message was Edited on 11/20/2010]
  4. Mikie

    Mikie Moderator

    On whether one has myofacial pain syndrome or fibromyalgia. Trigger points are involved in MPS. Tender points are involved in FMS. Injecting tender points in FMS patients isn't usually effective. There are people with both conditions for whom the injections may help.

    If one has MPS, a good physical therapist, who can do myofacial pain release therapy, can be a God send. I had MPS following an auto accident and the therapy was wonderful but it really didn't do anything for my FMS. Some people with FMS will get their tender points massaged but, eventually, the tender points return.

    Love, Mikie
  5. ellikers

    ellikers New Member

    I think my body fits the bill for both myofascial pain and fibro (tender points and trigger points, oh my!)

    Here's a great article about myofascial release and how it can be beneficial!! Just came across it and wanted to share: