anyone have periphal neuropathy or copper deficiency, I need help

Discussion in 'Fibromyalgia Main Forum' started by lynn1972, Feb 28, 2007.

  1. lynn1972

    lynn1972 New Member

    I have these two deseases and theres very little know about the copper deficiency our last thing we know to try is infusions of copper twice a week, problem is they've never tried this on anyone where I live, but I have no choice but to try it or else I would die. If you know of anyone with this copper thing please let me know
    [This Message was Edited on 03/01/2007]
  2. tandy

    tandy New Member

    back up top for others to hopefully respond~


    I don't know anything about these,...
    sorry~
  3. suzetal

    suzetal New Member

    Start your post off with what you need help for.

    Also a little bump for you.

    Hope you can get answers.
    Sue
  4. pam_d

    pam_d New Member

    I know nothing about copper deficiency, but I do know a little about peripheral neuropathy. It can be diagnosed with an EMG exam (nerve conduction study) and can be caused by a variety of things.

    My husband had near-crippling peripheral neuropathy for years, his was caused by Type II diabetes, which is a common cause of PN pain. He was in a lot of pain (a burning sensation, just plain pain, and numbness). Anyway, his doctor finally talked him into trying the AD drug Effexor. Within about 24 hours, his pain was at least 95% reduced! His only regret, he says, is that he didn't take it sooner. Cymbalta is also used for this particular type of pain, and I think there are a few other ones, too. You don't want to use ADs lightly, they can have side effects and can be difficult to withdraw from, so you need to find out all you can beforehand---but my husband has had no side effects, and his reduction in pain is so great, that he feels it has been totally worth it.

    You really have to weigh the whole quality of life thing, I guess!

    He had also previously tried large doses of Alpha Lipoic Acid, which had been used experimentally on PN patients---he gave it a long trial, about a year, but spent a lot of money and got no good results from it.

    The Effexor has changed his life---he walks and hikes regularly now, whereas previously the neuropathy was so painful, it kept him from exercising at all---NOT good for a diabetic.

    I hope you get some responses about the copper deficiency---I'm sorry, I don't know anything about that, hopefully some folks here do. Good luck to you!

    Hugs,
    Pam
  5. SnooZQ

    SnooZQ New Member

    Hi Lynn,

    Estrogen loves copper! Have you had your E2 level checked? If low, perhaps some bioidentical hormone replacement would be helpful.

    Before signing on for IV Cu, I'd want to make sure that the "deathly low copper" wasn't a lab error. Second opinion, repeat test, that sort of thing. Clincal signs of severe Cu deficiency: spastic gait, sensory ataxia, anemia & neutropenia. Can mimic or co-exist w/B12 deficiency ... perhaps explaining the PN symptoms.

    Have you tried eating foods high in copper? Beef liver, smoked oysters ... whole foods usually pack in the cofactors helpful in assimilation of a mineral, as opposed to supplements. And Cu supplements are difficult to take

    Sorry to say, I don't know of anyone who's had to have IV Cu.

    Best wishes.
  6. joeb7th

    joeb7th New Member

    I have a nerve feeling, won't call it pain, just more like tingly, prickly feelings and haywire feelings inside like baldder tingling and acting weird or penis tingling.

    My sensitivity to temperatures are 3 times what they were a year ago. I get so cold I can't bear it, tremor, shake, and too much heat and I feel almost same thing but reversed.

    I get ZAP feelings inside , especially at night in bed. Like an electrical shock right up through my middle upper abdomen right up through my chest. My whole body jumps. Get heart jumps too.

    Lots of forearm and scalp itching.

    My neck and back and tense up so much and I get so exhausted when I am getting these nerve attacks.

    And incredible anxiety.
  7. rockyjs

    rockyjs Member

    Lynn, have you been taking any supplements containing the amino acid cysteine (could include glutathione)? That can deplete copper. Also taking too much zinc can cause a copper deficiency. I would be very careful about the infusions - copper can become toxic very quickly.

    You may have a mutation of genes that either store or transport copper. I would see a metabolism specialist before doing any big guns replacement therapy.

    Peripheral neuropathy is strongly associated with copper deficiency. If that is the cause, then the symptoms will decrease as you replenish copper. Loss of balance is also common.

    Have you had any stomach surgery like a resection? That is one of the most common causes of copper deficiency in humans. The other major cause is celiac disease/gluten intolerance. Have you been tested for that? A gastroenterologist would be the specialist to see for that condition.

    Jan