Anyone have thoughts on PT?

Discussion in 'Fibromyalgia Main Forum' started by JEANSKI, Mar 25, 2009.

  1. JEANSKI

    JEANSKI New Member

    Have you had physical therapy? What was done and how was it for you? Any thoughts are helpful. I am just trying to decide where to turn to next...
  2. 3gs

    3gs New Member

    I advise caution pts seem to have the idea one size fits all. I stopped going because they would not listen that I could not do the usual program.

    ened up hurting more.
  3. ikathy

    ikathy New Member

    Hi, I have had pt several times. I seem to have more physical therapy during the winter months because that is when I am at my worst. "Gentle" physical therapy is advised like myofascial release therapy, light stretching, and possibly warm water therapy (pool in the range of 88 degrees). I believe some physical therapists can be too aggressive in their approach in treating us, but there are others out there who are knowledgeable about our condition and take it slow. My advice to you is to call around to local PT centers, ask to talk to a Physical Therapist and find out what their treatment plan is. I liked the ultrasound therapy to relax my muscles.

    I am now working with a Yoga Therapist (very gentle, hatha yoga) and this is helping somewhat. I have to be careful to not overdue because I have a tendency to just push myself and then pay for it later. "No Pain No Gain" does not apply to us.

    Kathy
  4. Pansygirl

    Pansygirl New Member

    with PT last summer was not good. They had me doing simple things like jumping rope in place
    and using a stair step and doing some other simple stretches and this totaled all of 5 minutes
    and I literally could not do it.......it left me exhausted the rest of the day and then I also
    ended up with painful muscle spasms. So it didn't take me long to decide this wasn't working for me.

    The PT told me I was just out of shape......no they didn't get it even when
    I tried to tell them I had fibro.

    I now walk daily and depending on how I feel that might be 2, 5 or 10 minutes or somedays
    not at all. Everyone 's body is different and no one treatment works for everyone.

    I really wish there was a cure for fibro.

    I'm not sure what you have tried but I do hope you find something that gives you some relief.
    gentle hugs,
    Susan

  5. LindaJones

    LindaJones New Member

    the fibromyalgia support group referred me to a physical therapist who helps people
    with fibromyalgia
    he recommends low-intensity exercise
    I have heard that exercise helps some people with fibromyalgia
  6. meowee

    meowee New Member

    I have been thru a lot of PT. It helps while you are there, but as soon as you get home, you are back where u started.

    I honestly think you can do just as well at home. Devise a plan of stretching slowly and work up.

    Good luck.
  7. JEANSKI

    JEANSKI New Member

    I like the look of a PT center nearby me. It has a warm water pool. They also incorperate myofascial release and tens and all that good stuff. I know I need more help than just someone to "coach" me about moving my body. I agree I can do that stuff at home. I need someone to also work in these things like the TENS and myofscial release etc. So, I am gonna go for it. Fingers crossed they are a good fit for me!
  8. spacee

    spacee Member

    Man was I lucky. He had his own place which had machines and a warm pool 92 degree.

    He started me in the pool Monday, Wed. and Fri. one on one with a trainer (woman) range of motion 5 mins, rest 5 mins, range of motion 5 mins. By the weekend I was so exhausted I would sleep all weekend. He said, "You are doing too much. Let's go down to twice a week".

    He also said that I would not tell any difference for 3 months. But at the end of three months I would be able to join the 30 min. group class (which was range of motion) He was right! After doing that for some months, I felt the "urge" to swim a lap. So that summer I started going to the Y's pool, I would still do the range of motion exercises but then I would swim a lap and later worked up to more but rested in between.

    It really saved my life. But I was in terrible shape from being so sick for 2-3 years and losing down to 108 lbs. I had to lie down to eat.

    What was wrong? Tachycardia...heart beating too fast. took about 16 docs before one could figure that one out.

    I'm rambling now....

    Sounds like you have found a great place!

    Spacee
  9. shybear

    shybear New Member

    what did the doc give you to get your tachycardia under control?

    I have been getting physical therapy for my FM and CFIDS for 20 years. Have several that I go to depending on my problem. I see one when my back and neck hurts and she does gentle mobilization which is her specialty. When my shoulder hurts I see another physical therapist who is specialized in sports medicine. Then when I get a trigger point flare I can't resolve I see a physical therapist who knows how to apply gentle pressure to it for 5 minutes or more and I am amazed how she gets the trigger points gone. Physical therapists tend to have specialty areas. They are not all the same. I called the different practices in town and kept asking if they had a physical therapist with an interest in treating fibromyalgia patients and which symptoms they liked to treat. Usually the physical therapist called me back. You can go to a physical therapist in most states without a doctor referral, but if your insurance requires a doctor referral, they you can call your doc for one. Physical therapists have done wonders for me. When my insurance runs out, most physical therapists will lower your charge to just the amout of what the insurance and your co pay would be and some will charge even less. Keep looking until you find one that can help you and don't feel bad about seeing another in the same practice. Shybear
  10. shybear

    shybear New Member

    what did the doc give you to get your tachycardia under control?

    I have been getting physical therapy for my FM and CFIDS for 20 years. Have several that I go to depending on my problem. I see one when my back and neck hurts and she does gentle mobilization which is her specialty. When my shoulder hurts I see another physical therapist who is specialized in sports medicine. Then when I get a trigger point flare I can't resolve I see a physical therapist who knows how to apply gentle pressure to it for 5 minutes or more and I am amazed how she gets the trigger points gone. Physical therapists tend to have specialty areas. They are not all the same. I called the different practices in town and kept asking if they had a physical therapist with an interest in treating fibromyalgia patients and which symptoms they liked to treat. Usually the physical therapist called me back. You can go to a physical therapist in most states without a doctor referral, but if your insurance requires a doctor referral, they you can call your doc for one. Physical therapists have done wonders for me. When my insurance runs out, most physical therapists will lower your charge to just the amout of what the insurance and your co pay would be and some will charge even less. Keep looking until you find one that can help you and don't feel bad about seeing another in the same practice. Shybear
  11. OMG Ii asked my rheum if there were stretches that would help, he sent me to PT and the PT said I understand Fibro, the first session wasn't bad, he did a few but only 2 to 5 times. The second WOW they added 10 PLUS 5 more, I don't think I will continue but do the ones at home at a slow rate. THEY DO NOT UNDERSTAND FIBRO , no way.

    After surgery I did do a heated pool and believe that is the only way to go.
  12. spacee

    spacee Member

    I have taken Isoptin 240 which is a calcium beta blocker. It controls the heartbeat. I can have a palpitation here and there but not the racing.

    Spacee
  13. Asatrump

    Asatrump New Member

    Every time a PT touched me I got worse. Various ideas they had, all sent me down hill.

    Since then I tell my Doctor I want nobody touching me! He wouldn't listen for a long time, but had to follow up the problems each PT did to me, and saw with his own eyes.

    My own solution and I know it would not work for everyone, but is a hot tub. Each year we can take a certain tax deduction as this is my medical therapy.

    The hot tub is in my garage, which means I can go in each and every morning, or more times if I like, in spite of wind, snow, bugs, etc.

    I do have high blood pressure but I keep the water at 100 in winter , 99 right now and over the summer will put it at maybe 95, so I can stay in the full half hour. One seat in particular helps most, and I dont' have to tell a massage person what muscle to work on.

    I know people have talked on the forum about how even a hot bath makes them feel unwell, but this tub keeps me mobile.

    Want a grin?? Picture old gray haired granny streaking in the garage when temps out there have been as low as 8. Takes 12 steps from the kitchen door to the tub, count 1.2.3 while I flip the lid up half way, another two seconds to put my robe on a hook, leg over, butt over, ahhhhhhhhhhhhhh. My body is warm getting out , although occasional times if I didn't hurry you could dub me "icicle butt granny". tee hee, not a pretty picture huh? But it works for me, and nobody is peeking, so no gagging noises from the peanut gallery.

    It beats a bath tub with jets because the water doesn't cool down during a 30 minute period and it is ready to go.

    To me PT=H2O
  14. spacee

    spacee Member

    Tooo much...but cute and v. smart of you!

    Spacee
  15. loto

    loto Member

    to me, when I had PT, before I was ever diagnosed with FM, (had herniated discs), was a waste of my time. I know everyone is different, but what they had me do at PT I could do at home, saving time and money! That's just my opinion though!!!!!
  16. UVAMOMB

    UVAMOMB Member

    PT could not get near me for quite awhile when I was first diagnosed. Has anyone tried trigger point release and dry needling? That can really give some amazing, though temporary, relief.
    Spaces, does the med for tachycardia cause you to swell in your legs and hands or cause dizziness?
    Also, my pain mgmt. doc says Fibro does NOT cause tachycardia per say. Yes, pain can cause the heart to race, but she says the tachycardia needs to be worked by a specialist. I am seeing an invasive cardiologist, but am having prob!ems with the medication he presribed.
    Thank you.
  17. LBDucky

    LBDucky Member

    I did water therapy for my hip pain and the stretching parts were great but the strength building parts killed me.

    I also felt that as soon as I was out of the water and on my way home the pain was back just as bad.