anyone help

Discussion in 'Fibromyalgia Main Forum' started by anj211, Jul 2, 2009.

  1. anj211

    anj211 New Member

    I have recently been diagnosed with cfs, i get a lot of upper backpain mainly shoulders neck and inbetween shoulders but my doc says this is muscular and due to posture does anyone out there no if cfs can affect your posture. I have recently started a very light yoga class which also covers a lot of meditation and relaxation has anyone else tried anything like this? and if you did, has it helped what do you think.
  2. Sheila1366

    Sheila1366 New Member

    I think mine is due to the fatigue. I am just so tired and it takes effort to keep from slumping over. The yoga class is good, I hope it helps.
  3. LindaJones

    LindaJones New Member

    I saw a doctor who specializes in cfs
    he recommended yoga, pilates, and tai chi
    I also talked to a physical therapist who helps people with fibromyalgia
    he recommeded low intensity exercise
  4. birding55

    birding55 New Member


    My CFS/ME was diagnosed months after a whiplash injury, so every neck, shoulder and upper back pain is presumed to be associated with trauma. However, frequent muscle tightness has been a part my CFS/ME all throughout my body and it has made the above pain areas worse. I think it has inhibited full recovery as well since I still deal with that pain after 12 years. So, it wouldn't surprise me if CFS/ME in others would make muscle pain from constant tension worse (kind of like how tension can cause headaches too).

    My doctor has had me on Skelaxin (a muscle relaxer) for years. Now I take it only when I really need it and it usually helps. He is also very supportive of meditation, relaxation and stretching techniques, including light yoga. I would hope that your doctor is as well.

    I don't understand, however, why your doctor would assume your CFS/ME isn't affecting your muscles and how they respond to posture issues. CFS/ME obviously affects muscles or aerobic exercise wouldn't be so toxic to most of us. Our muscles often don't recover as they should to work load, so while your posture may not have changed since CFS/ME, your muscles' ability to deal with it may have. They could be more easily strained, then become and remain sore. I hope this makes some sense. If your doctor isn't well versed on CFS/ME, maybe you should try to see a specialist if possible. I've been to great doctors in North Carolina and in Chicago.

    If you can tolerate mild yoga, meditation and relaxation exercises, then I think they could be of benefit. However, be very careful not to push too hard, especially if you have not had CFS/ME very long. I kept thinking I could push myself (mind over body...tough it out) and may have worsened my condition early on. I ended up pretty much bedridden within the first year or so, which lasted for many years. Take your limitations very seriously. Please don't be a martyr like me!
  5. birding55

    birding55 New Member

    I appreciate Linda's experience and I hope it has worked out well for her. I just want to, respectfully, provide another perspective.

    I can understand a CFS/ME doctor recommending yoga, pilates and maybe tai chi in a particular case, but I don't know if many CFS/ME sufferers could tolerate more than the very lightest activity without worsening symptoms. I know I couldn't tolerate those activities over most of the duration of my illness...12 years. I think it would depend on the severity level of each person with CFS/ME; there is a very wide range, from still working to completely bedridden.

    Fibromyalgia is another story. People accurately diagnosed with Fibromyalgia are generally known to benefit even from more intense exercise. Fibromyalgia is not characterized as having the same lactic acid build up in the muscles as occurs in CFS/ME. This is a very big difference as I understand it, although I suspect that some people who receive a diagnosis of Fibromyalgia actually have CFS/ME. It happens. Some, like me, have been diagnosed with both.

    If a person with CFS/ME does take on low intensity exercise, it should be accompanied with frequent rest periods allowing muscles to recover. For example, Dr. Lapp in Charlotte, NC, told me to start with about two or three minute periods of light exercise (non-aerobic) followed by two minutes of rest. He said to build up very slowly over time, always allowing for double or triple rest periods in between. We need to be keenly aware of our own bodies. Nobody else is in a better position to know how certain activities affect our symptoms. If an activity makes symptoms worse, it is probably too much too fast.
    [This Message was Edited on 07/03/2009]