Anyone know a Doctor in the Toledo Ohio/Ann Arbor Michigan area

Discussion in 'Fibromyalgia Main Forum' started by mlp1954, Jan 21, 2006.

  1. mlp1954

    mlp1954 New Member

    Hi...I am new here. I just found your site. Does anyone know a good doctor that knows how to diagnose and treat Fibro in the Toledo Ohio and Ann Arbor Michigan area? I live near both and would appreciate any input. Thanks.
  2. GBHope

    GBHope New Member

    Where are you at? I'm in Toledo. I go to Dr. Mutgi at South Toledo Internists because he has a little bit of knowledge about CFIDS, but don't know a lot of doctors around here that really do much for it. He monitors it, but is not real open-minded about some things, but still a good doctor. I have gone to him for about 9 years. There is Dr. Jay Nielsen in Maumee. Dr. Chappell down in Blufton. Him and Dr. Nielsen are both more openminded. What about the Fibro and Fatigue Center up in Troy, Michigan?

    GBHope
  3. proteinlady

    proteinlady New Member

    Daniel Clauw, MD and Leslie Crofford, MD are both in the dept of Rheumatology in Ann Arbor. Both are actively involved in FM research. Clauw was at Georgetown but just moved to UM in the past year or two. Both of these people have published their research on FM and CFS.
  4. mlp1954

    mlp1954 New Member

    Thanks for the info on the drs in Toledo. I am in Monroe. No good doctors around here. I go to Ann Arbor but didnt know of any specialists that might know about Fibro. I am not even sure I have it, I do have RA tho.
  5. GBHope

    GBHope New Member

    It's ridiculous. I would probably say the docs in Ann Arbor would be better for rheumi's too. My doc's fine for diagnosing my fibro, but other than that, he does nothing. I have some kind of autoimmune problem that flares up once or twice a year and my sed rate goes up. My RF is always positive, but he always says I don't have it. He just tested my anti-CRRP or whatever that is called and it was negative, so I don't have full-blown RA, but he feels I have some kind of arthritis.

    I'm surprised. I thought Monroe was a nice little town. Been through there a couple times lately with my son and my husband. Didn't know they were lacking so badly with docs.

    GBHope
  6. mlp1954

    mlp1954 New Member

    I have been to the rheumy's at Toledo Clinic. I was not happy after about a year or 2 there and now go to Ann Arbor. Not happy there anymore, he sent me for PT and when I saw him I asked him what the PT reported to him, (after completing the treatments) and he said he didnt read it and didnt plan on reading it. That just rubbed me the wrong way. I think good rheumys are hard to find. Monroe has none. Who do you see in Toledo? Are you happy with him? Let me know. Thanks Pat
  7. mlp1954

    mlp1954 New Member

    I will check into the Drs you mention at UofM.
    I did now know they had specialists in Fibro there. I appreciate it.
    Thanks. Pat
  8. GBHope

    GBHope New Member

    I see Dr. Goldberger. He is in with Gordon and Treuhaft. I will say that Goldberger definitely can tell you if you have fibromyalgia. He is great at finding the trigger points. I have heard that the docs at Toledo Clinic stink and won't even deal with you if you have fibromyalgia. I used to go there and so did my daughter when Dr. Scott was there about five years or so. He was really good. I wish he was still there. Good luck whereever you decide to go. I wish we had more options around here.

    GBHope
  9. mlp1954

    mlp1954 New Member

    I did see Dr Goldberger ages ago when I first got RA. I got mad at him and maybe shouldnt have been so hasty and writing him off. I had a bout with Bakers cysts, altho at the time I didnt know why I could not walk, I was in extreme pain. I called his office since I was seeing him at the time and he called me back and more or less told me he didnt know what I wanted him to do about my not being able to walk. He was nasty. I never went back. Then I started at Toledo Clinic rheumys and all they ever did was inject me with cortisone every couple of weeks. I had so many of those shots, it was like the only option he gave me, they helped short term but I didnt think they were that good for someone to get so many. Now I am seeing the dr in AA and I am not thrilled with him either. This has been over the course of 6 years, so I dont make hasty decisions. Thanks. Pat
  10. GBHope

    GBHope New Member

    Sorry your experience with Goldberger was so bad. It's hard to find a decent doctor. If Dr. Santoro was still out at MCO, now MUO (Medical University of Ohio), I would tell you to see him, but he had a falling out with the hospital. He was wonderful. He treated me whole family. We all have fibromyalgia. He was very open-minded and helped us a lot. Well, maybe you can try the Medical University of Michigan docs. Do you think you have fibromyalgia from the pain and symptoms you're having? I hope you can get some answers.

    GBHope
  11. mlp1954

    mlp1954 New Member

    I know I have RA or something like it as I went from being perfectly normal and healthy one day, woke up and felt like I had been hit by a train the next, the following year was horrible. I had fine joints, then a year later needed hips replaced. I got one done and am ready to do the second soon. I just think I may have fibro too. I have the tender spots, 4 of them on my upper back near my neck, my neck is still alot of the time, I feel muscle pain all over, mostly arms and shoulders. Maybe it isnt Fibro, but who knows. Can you tell me what you know about Fibro since you have it and people in your family have it too? I would appreciate any input you can give me. I am tired and dont sleep well. I fall asleep fine, but wake up continually all thru the nite. I work full time and sometimes I just want to cry and go home, but can't. Thanks for your help. Pat
  12. GBHope

    GBHope New Member

    So sorry you're struggling like you are. I know how you feel. I have both CFIDS and fibro. I have chronic sore throats, muscle pain, post-exertional fatigue, brain fog, balance issues, ringing ears, dizziness, food intolerances, allergies, chemical sensitivities. I can't hardly do anything. If I go do something, I'm paying for it later. The dizziness and fatigue are the worst, but the pain can be pretty bad too. I have most of my pain in my shoulders and neck. My whole body will be stiff and ache though. When I flare, my dizziness is worse, my fatigue, and my neck is stiffer. I have all the trigger points myself and Dr. Goldberger had no trouble finding all my spots and diagnosing me back in 1996 or 1997. You may have what they call secondary fibromyalgia. I don't have any swollen joints either, but when I flare, my RF goes up and sed rate too. I just feel horrible when this happens and can't do much of anything. Kind of like now because I have this stupid virus for the last 2-1/2 weeks. It is very likely that you have fibromyalgia because lots of people with RA have secondary fibromyalgia. Who diagnosed you with RA? Hope this helps a little bit. I'll be more than happy to answer any other questions you might have.

    Ginny
  13. mlp1954

    mlp1954 New Member

    Thanks for the info. You definitely have more going on than I do. I think you are probably right that I have secondary Fibro if at all. I dont have nearly the symptoms you do. I was much sicker when this first started in 2000, My joints are worse now, but my Sed rate is low and I am not in such bad shape. I used to not be able to get out of bed, I can now on my own. When it first hit me I thought I was dying, honestly. Maybe I have just gotten used to it. Who know. I am sorry you have so much going on. What meds are you on? Do they help much. Did you say your daughter has fibro too? I hope you have a great week. Would love to keep in touch with you since we are almost neighbors. Take care, Pat
  14. GBHope

    GBHope New Member

    If you want you can E-mail at my regular E-mail at GBonnough@yahoo.com. Hopefully I'm allowed to post this at my own risk. Yes, my daughter and my son both have fibro and my daughter has both fibro and CFIDS. My son is not to bad now, but my daughter is in pretty bad shape. Are you able to work? I'm not and tried and made myself worse, even doing my medical transcription at home. I get really bored. I can't drive much because of the dizziness, so I'm pretty much stuck here. Do you live alone? I live with my husband and son, two dogs, and a cat. My husband and I went up to Frenchtowne Square Mall back in November. That was when I was really sick with the hyperthyroidism I developed after my wonderful, NOT, hysterectomy in June of this year. My health has not been the same since, even at my horrid CFIDS/fibro baseline. Sometimes I get a glimpse of my horrid life before the hysterectomy, but then it runs away again, LOL. I tried taking Premarin and will never do that again, then the hyperthyroidism started and the elevated sed rate, AGAIN, for about the 15th time in the last 10 years, and my joints wouldn't move. I could not get my clothes on and off without help for a couple of days. My shoulders froze, then my thumbs, then my wrists, then my right hip. I don't know what that was from. My sed was up in the 60s though and that may not be much to some, but to me it hurt like you not what!! Well, take care and definitely stay in touch either here or on my regular E-mail. I have had that one for years.

    Ginny
  15. ksp56

    ksp56 Member

    in Ann Arbor, was highly recommended by another member on the board. He is a rhuematologist and internist.

    Ellen said he is kind, compassionate, understands fibro and cfd AND if pain is involved, he isn't afraid to treat it. He is off of Plymouth Road. I am sure you could find his name with directory service.

    I am thinking, strongly, about seeing him. I know there is a several month wait, but they also have a cancellation list. We live in Indiana, but it would be so worthwhile.

    Hoping you find someone! I'm glad you found us..

    Kim
  16. mlp1954

    mlp1954 New Member

    Thank you for the info on that doctor in Ann Arbor, I know the area well as my Orthopedic surgeon is near there. I am so happy I found this board, I dont know what took me so long and I found it be accident. It seems to be quite popular and lots of intersting posts. I have been reading thru them. Do you know if that Doctor treats RA also? Thanks Pat
  17. ksp56

    ksp56 Member

    I am almost certain he does treat RA. He sounds great! My RA factor is positive, so they are keeping a close eye on me. He deals with it all, from what Ellen said~

    If you want to call him, I know I have his phone # someplace. I will look for it and post it tomorrow, on this post. Would you like that?

    This is a great board! I think you will feel very much, at home!

    'Talk' with you soon!

    Kim


  18. mlp1954

    mlp1954 New Member

    I appreciate your help on the doctor. Yes if you could post his info that would be great. I think this is the best arthritis type board I have ever visited. Is there someplace on it to search for members near your area? Where are you at? I am in Monroe. I may of told you that. Thanks again. Pat
  19. EllenComstock

    EllenComstock New Member

    I see Kim already told you about Dr. Vallance in Ann Arbor. He is a great doctor to see about FMS. I've been seeing him since March of last year. It may take several months to get in to see him, but definitely worth the wait. I actually got in sooner as they called me when another patient cancelled.

    The first visit Dr. Vallance spends more time with you-about 45 minutes. He acts like he has all day to spend with you and is good about answering your questions. He also writes notes during the visit on things he wants you to do or remember. They make a copy of their file and give you the original.

    When my blood work results came in, they sent me a copy and during the next visit, Dr. Vallance went over the results with me and explained what everything meant. He is so thorough.

    I would be happy to give you Dr. Vallance's address and phone number. I am at work so I don't have it with me.

    Ellen
  20. EllenComstock

    EllenComstock New Member

    Dr. Vallance believes in aggressively treating pain and believes that most people will not become addicted to stronger pain meds. He has me on Kadian 20 mg. (morphine). It's a low dose. He started me on 20 mg. twice a day. I recently told him that I am starting to have some of the sharp, shooting pain again so he upped the dosage from 40 mg. to 60 mg. I am sleeping better now than I have been in years.

    I love a doctor who acts like we are a team working together to make me feel better.

    Ellen