Anyone lose their voice from CFS?

Discussion in 'Fibromyalgia Main Forum' started by kholmes46, May 15, 2012.

  1. kholmes46

    kholmes46 Member

    Seems like my voice is always very weak and hoarse, since i've been in this relapse. Makes it very difficult to talk to people in person or on the phone. For me, it's combined with adrenal muscle tightness in my chest. Anyone else have this problem, and any ideas how to make it better?
  2. kholmes46

    kholmes46 Member

    Will try grape seed extract--and lots of rest, just as I'm doing now. Leah: have you been bedridden with this for long stretches at a time?
  3. 3gs

    3gs New Member

    I started getting hoarse and losing my voice. After countless sinus issuses(don't be fooled ck out your teeth) I went to an ENT.

    After numerous tests it turned out my swallowing was not right and acid was also burning my esophgus(sp). I do also get the muscle spasms and my thorat tightens up.

    It's from the CFS?Fibro-some nerve damage(caused by dentist). Rest-stop talking-muscle relaxers-anti acids
  4. MicheleK

    MicheleK Member


    It is quite a regular symptom of ME/CFS both to get hoarse from speaking and also to progress where the voice goes out or talking actually makes one relapse.

    I lost the ability to speak for the better part of 3 yrs. It was a lonely and frustrating time. I also had troubles swallowing but usually only when I was laying down. This too is a symptom of ME/CFS and usually occurs in patients in a more severe state. The trouble swallowing is caused by the dysregulation of the autonomic nervous system.

    The best thing you can do when you get hoarse it to gargle salt water, take anti-inflammatory supplements such as omega 3's, curcumin, EPA from fish oil, and vitamin D. You should also refrain from using your voice and rest as much as possible.

    Besides the hoarseness and loss of voice one can also experience bad sore throats, and burning mouth syndrome, which makes your tongue and the walls of your mouth feel hot and as if you burned them.

    Because ME/CFS is a neuro/endocrine/immune disorder the constellation of symptoms can seem endless. And the way they seem to takes turns showing up can be so annoying. But rest assured that your hoarseness and loss of voice is "normal" for a ME/CFS patient.

  5. kholmes46

    kholmes46 Member

    And hugs back, Michele.
  6. kholmes46

    kholmes46 Member

    What's a loading dose?
  7. SherylS

    SherylS Member

    In your chest? My chest is so tight and hurts all the time. Could this be what I have? Everything checked out fine with my heart and lungs, but I never feel like I can get a full breath!
    Grape seed extract sounds very helpful, but I have sensitivities to anything involving grapes--resveratrol, wine, etc...
  8. Rich333

    Rich333 New Member

    It comes and goes, but I often have trouble talking to people because my voice is weak and I'm hoarse.

    I also have trouble swallowing, and throat spasms...which can be very painful.

    I just carry on, try to stay as relaxed as I can, and these things pass eventually. It helps me to watch something interesting on TV if I can find it, and really take my time with my meals. Eating fast will often trigger a throat spasm...or eating under stressful conditions.

    Trying to stay relaxed is one of the best coping strategies I've ever found for my symptoms...though there are times when that's not possible.
  9. ILoveGreen

    ILoveGreen New Member

    are both hallmarks of CFS...and allergies. Put them together at this time of year, and for me it means barely having a voice, itchy eyes, allergic ashthma, ear aches, and one really bad sore throat. I drink herbal tea with honey and lemon, lots of water, and try to avoid going outside early in the am and late in the afternoon when pollen counts are highest. I lose my voice every year around this time of year, and my Immu-allergist ENT advised me to take pseudephedrine for the ear aches that accompany the sore throats and nasal congestion, Allegra (now available in generic) which really helps with the eye itching and loss of voice, Pataday Rx eye drops (which help my eyes from feeling like someone threw sand in them) and an L-Buterol Rx inhaler for when I start wheezing & have trouble breathing due to the occasional allergic asthma (usu triggered by being around fresh-cut grass or anything in bloom).
    I was SO sick from the allergies that I thought I had some sort of virus until I finally went to the doc. At least they are manageable. Oh, and I was already taking all of the aforementioned supplements. Anything and everything to decrease inflammation, esp the grapeseed oil. It's been a record-breaking year for allergies everywhere due to the early spring warm temps.
    Everything you described sounds like it might be "normal" CFS sore throat aggravated by allergies to me. I know I never dreamed allergies could make me so miserable I couldn't sleep, see straight, breathe or hear, ugh! Good luck!
  10. acker

    acker Member

    I've lost my voice for nearly 4 months now. speaking a few words here and there. tiring to talk and then becomes sore.
    i feel less alone to know others are living with voice loss... yet i'm so worried about it not really getting much better. ent specialist didn't know anything about cfs (surprise) but at least ruled out vocal cord damage and thyroid cause... so others please keep telling me your stories and experiences...
  11. Doznclan12

    Doznclan12 Member