anyone told sleep apnea is the cause of Fibro symptoms?

Discussion in 'Fibromyalgia Main Forum' started by lastormer, Feb 1, 2007.

  1. lastormer

    lastormer New Member

    I recently had a sleep study done and was told that i stopped breathing multiple times in a hour. When returning to my neurologist he said he thought that the condition behind my fibro symptoms was the apnea. Should i stop at that or look for other conditions that are causing the fibro symptoms? any advise would greatly help me as I am fairly new to all this.
  2. Greeneyes2

    Greeneyes2 New Member

    I was told that treating my sleep apnea would make my fibro go away. Unfortunately, the doctor who told me this was wrong. I later talked to the sleep disorders doctor and he told me that they used to think that was true, but not to count on it.

    I do feel better in some ways. I am not as tired as I was, although I still have problems with fatique. I don't look as tired as I did, and the night terrors and racing heart in my sleep are pretty much gone. (these were because of not breathing) I still have much of the pain and other problems though.

    I would suggest waiting to see how you feel after you are being treated for awhile, but I wouldn't stop looking for other things that can be treated.

    Gentle hugs,
    [This Message was Edited on 02/02/2007]
  3. ravenpaige

    ravenpaige New Member

    From what I've read, they're starting to think this is a chicken and egg thing. Definitely sleep apnea can cause Fibro symptoms, and so if sleep apnea is found and treated, and the symptoms go away, then sleep apnea is the problem. However, it can apparently work the other way also, that Fibro can cause sleep apnea or other sleeping disorders. One study I read looked at the number of previously undiagnosed sleep disorder problems found in people with FM/CFS, and it was statistically much higher than the general population. However, another study found that almost all FM/CFS patients have at least subtle breathing abnomalities when sleeping that could be diagnosed as sleep apnea.

    On the personal side, I have one brother and one sister who have both been diagnosed with sleep apnea, and another sister who is about to have a sleep study. My daughter also just underwent a sleep study. Now both sisters and daughter have been diagnosed with FM, but the brother has not (has no symptoms either). Brother uses a CPAP, sleeps much better, and wouldn't be without it. Sister with apnea tried a CPAP and found it helped for a while, then stopped working. I've yet to hear results on my daughter or other sister, but my guess is that they will both come back with subtle sleep disorders, and so the sleep therapies may not help much or at least long-term for them. In other words, something else is causing the sleep disorders and the fibro. But with my brother, it looks like he has just sleep apnea, and so the CPAP was the solution. Confusing? Very! But the bottom line is that if they've found apnea during your sleep study, you should try a CPAP or whatever the doctor recommends, and see. It just might be the solution.
  4. lastormer

    lastormer New Member

  5. karinaxx

    karinaxx New Member

    that is an intresting topic.
    i have been diagnosed with CFIDS and i have recently done a sleep study , because i knew i stoped breathing when i sleep. at times it was so severe, that i could not fall asleep for hours; as soon as i dozed of, i stoped breathing and of cours woke up again. it went on like this for an hour (torture, because i was so tired and just neeeeeded to sleep)
    anyhow, i think that the whole issue has the same root problem and that is the dysfunction in the Hypothalamus.
    If you want to read more about the function of the Hypothalamus than i suggest you check out wikipedia and follow the links. it is very intresting.

    take care karina

    [This Message was Edited on 02/09/2007]
  6. waxdiva

    waxdiva New Member

    When I discussed FM with my primary doctor, she said, "Oh, that's caused by lack of sleep" which really annoyed me. If only it were that simple...

    I have been using a cpap device for 2 years. I don't know if anyone else has had this experience, but the only time I had an excellent sleep experience was the very first time using the cpap.

  7. lastormer

    lastormer New Member

    Thanks to all for the replies. I have to go in this Tuesday for the 2nd sleep study, I'll be fitted for the cpap machine. Hopefully this will lessen my fibro symptoms.

    Have a Great Day !
  8. Susan07

    Susan07 New Member

    I had my FM long before I started having the apnea. My apnea is mild. I don't stop breathing as much as I breath too shallow probably because of the pain.

    I just got my cpap machine but haven't started using it yet. Can't seem to get it to work right. The doctor's nurse said if I would bring it in she would help.

    Let us know once you've had your fitting session, and how the machine is working for you.

    Take care
    [This Message was Edited on 02/25/2007]
  9. NyroFan

    NyroFan New Member


    I have a hunch and it is just a hunch, that good sleep is important for those who have fibromyalgia.

    I have read of people with CPAP machines (for nightime breathing) who have found they have less pain in the morning.


  10. Mini4Me

    Mini4Me New Member

    I was told by a sleep/pain management specialist that I neither had migraines nor fibromyalgia. It must be sleep apnea, she suggested. After talking me into the expensive sleep study, it was found that I did not have sleep apnea.

    So did she apologize for telling me I did not have migraines or fibromyalgia (even though I had been previously diagnosed with both)??? No, of course not!! She did not take me the least bit seriously because I looked trim and fit for my age!

    What a quacko!
  11. Shalala

    Shalala New Member

    " ... anyone told sleep apnea is the cause of Fibro symptoms?"

    You know what? I went to a Neuro (3/2/07) about my horrible migraines/headaches/neck pain and he says it's probable sleep apnea. Didn't even touch my neck or shouldeers or order an MRI ... just told me to double my Lyrica (boy that was a nightmare) and is sending me to a sleep specialist next week.

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